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Help, Just diagnosed with bowel endo!! Help, Just diagnosed with bowel endo!!

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Unread 08-24-2004, 01:12 PM
Help, Just diagnosed with bowel endo!!

Hello sisters,

I just returned from my appointment with the bowel doctor/sugeon who did my colonoscopy and as I suspected, I've been formerly diagnosed with endometriosis of the bowel. It is only in one spot right now, in the recto-sigmoid portion so I'm lucky in that perspective--but no so lucky that I will require surgery to have it removed.
I have an appointment in 2 days with my gyne/surgeon to discuss the surgery as I will want my cervix removed at the same time. I think however that instead of having these 2 doctors work together on my surgery I might ask my doctor to refer me to an endo specialist. One big problem is that I live in Northwestern Ontario (Thunder Bay) and we do not have such a specialist here. I will most likely have to travel to Southern Ontario to see one.
Has anyone had bowel resection to remove endo? If so, how was your recovery compared to the hysterectomy?

Please, any stories or words of wisdom would be appreciated.

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Unread 08-25-2004, 11:00 PM
Help, Just diagnosed with bowel endo!!

Karen ~ I'm sorry to hear about your endo. I have not had a bowel resection, though I did have endo on my bowels that was removed, so I understand your pain and problems. I am fortunate that I have an endo specialist in my city and he recommends having the cervix and both ovaries removed for the best odds of preventing further recurrences (I did, however, keep one ovary). My entry should bump you to the top of the list, so hopefully someone else can help you more.

Best of luck to you and feel free to pm me any time.

s ~ Clementine
Unread 09-09-2004, 02:29 AM
Help, Just diagnosed with bowel endo!!

Hi Karen,

I am a newbie here. Iregistered after reading your post. I had a sigmoid colon resection a few years ago because of endometriosis. At the time of surgery, the docs thought it might be colon cancer. But the tests showed it to be endometriosis and not cancer.

My recovery was better than with my hysterectomy. I was in the hospital 5 days. My concern was what could I eat after having a piece of my colon removed. At the hospital my doctor suggested I eat what I, hamburger... he suggested with a smile. So I discovered that I could eat normally. When I came home, I rested a lot. The recovery was gradual but steady like after any surgery. The sutures came out the following week. By the fourth week post-op I was getting out of the house and visiting friends.

After 6 weeks I returned to work. Don't push yourself too hard after surgery. Let your body tell you when to lay down and rest. Keep a positive attitude. You 'll be up and back to your routine and soon forgetting about it.
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Unread 09-09-2004, 07:11 PM
Help, Just diagnosed with bowel endo!!

Take a look for (((surferbabe's))) posts on the subject. She had a bowel resection for diverticulitis last year -- if you search using her name and the keyword "diverticulitis," you should find a journal of her experiences with it.

Resection of small amounts of bowel should not cause too much trouble, digestively speaking. My DD had her entire large intestine removed when she was two days of age, and eats (and stools) more or less normally . My dad also had a resection for colon cancer and found little trouble with it after the first few weeks, where of course you're healing.

Is your surgeon a GYN-oncologist? If not, I'd ask for a second opinion with a colorectal surgeon. I realize that it's hard in rural areas, but well-worth the travel to get the care that you need. My GYN actually said that the oncologist I'm seeing for possible surgery myself in the near future would probably have a colorectal specialist as well. I had a small bit of bowel resection years ago when I had an ectopic pregnancy in the cul-de-sac that they couldn't remove without doing a resection at the same time. They wound up waiting (this was emergency surgery) till the specialist could get there! I think it probably improved my outcome at the time.

I may be dealing with something similar -- I haven't quite started the round of testing that I need to re-do, as I'm waiting to shift oncology practices. But I'll know more soon, and I'll look forward to hearing how you're getting on!

Unread 09-18-2004, 10:52 PM
Help, Just diagnosed with bowel endo!!


What are the symptoms one might expect with endo in the recto sigmoid area?

I have had alot of problems in what I feel is that area and would appreciate any info you could share.

Unread 09-19-2004, 08:50 AM
bowel endo


My symptoms started with what I thought might be irritable bowel. Every month at that time my bowels would change from normal to soft and frequent. I would go several times a day. Then I noticed that afew months went by and I was now experiencing alot of mucous with my bowel movements. I felt like I constantly had to go to the bathroom and when I did, nothing would come out except mucous. It was clear and odorless and looked just like saliva. Afew months went by like this then one month I started having rectal bleeding with my period. Now every month when I would get my period I get rectal bleeding. There is a great deal of pain and discomfort also associated with it. I constantly feel as though I need to go to the bathroom but can't. I've started experiencing alot of constipation and just feel totally uncomfortable when sitting on the toilet. Having a BM is becoming a chore to do. I have a great deal of pressure down there and the pain becomes unbearable at times.

Everybodies symtoms may be different, those are mine in a nutshell.

If you are worried that something may be wrong in that area you should bring it up to your doctor. It is best to go through all these tests and find out what is wrong than to wait and regret not doing something sooner.

Hope this helps.
Unread 09-19-2004, 09:16 AM
Help, Just diagnosed with bowel endo!!


Thank you for the info.

I am experiencing a few but not all the symptoms you had, so maybe it's not endo.

I will talk to my doc about it the next time I see him (which is about every couple of months!)


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