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Some advice please Some advice please

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  #1  
Unread 08-30-2004, 09:55 AM
Some advice please

Hi ladies

Here's my story:

Had my hyst almost a year ago (can't believe it!), and still suffered from lower left pelvic pain for some time after. Went to a pain clinic in May where they diagnosed me with ab wall trigger points for which they gave me a cortisone injection, and illio inguinal nerve entrapment for which they also gave me a cortisone injection. Seemed to work great. Went back 8 weeks later when they repeated the treatment. Didn't seem to work so great the second time around. Went back, after being shuffled from doctor to doctor (none of them fully seeming to care about my situation, or even bothering to read my chart), and had several appts cancelled and rescheduled, after much begging on my part. The new doctor thought no more injections, and told me to take Amitripoline (not sure of the spelling there), to see if that helped. I didn't want to be on a drug like that, so I never have taken it. But, shortly before that appt. I had started taking Dicetel for IBS, that my gyn had given me last December when I was having diarhhea problems (the problems stopped and I stopped taking the Dicetel last winter, but still had a lot left). I felt that much of my pain seemed to be bowel related and not this other stuff that the pain clinic thought it was.
The Dicetel seems to work (if I don't forget to take it - go figure!), but occasionally I get these horrible cramping pains (what's cramping?), in my whole lower pelvic area and they radiate all the way up to the top of my rib cage. The only thing I can describe it as, is like having a contraction (although, I've never had children so don't really know how that feels, but if I had to imagine it, this is what I would imagine). It only last a few moments usually, but then can leave me with lower pelvic cramping still. It feels bowel related to me, but what do I know.
Should I go to the pain clinic (they are only anesthesia specialists) and tell them about this, or my family doctor, or what?

I hope someone out there has some ideas for me. I am really at a loss.
Thanks.
Shelley
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  #2  
Unread 08-30-2004, 09:14 PM
Some advice please

((((Shelley)))) I'm so sorry you're still having all these problems, almost a year after your hyst

The pain you describe is very similar to the pains I have been having since about 3 month after my hyst. Since my pain is located in the lower right abs, just where my right ovary is, I was convinced that it was my ovary giving me grief. However, my doctor has diagnosed bowel spasms, twice. And, since then, I did have an ovarian cyst burst and, while the pain was in the same location, it was slightly different... and much, much more intense!!!

Since the Dicetel is helping, it does sound like you might be right in your assumptions that you're dealing with bowel issues. Have you tried getting a referral to a gastro specialist? This might be the right course of action for you Even if your GP disregards it as gyn related pelvic pain, you can insist on getting on a referral to a gastro specialist. And you should mention that you are taking the Dicetel and that it's helping with your symptoms.

Sending lots of s your way. Please be sure to keep us posted.
  #3  
Unread 08-31-2004, 12:46 PM
Some advice please

Shelley,

I am sorry to hear that you are in pain. Here I go again on my Zoloft mantra, but hey, I do feel better and feel a duty to pass on my experience. So, here goes ...

Before I tried the zoloft, I thought, hey I'm strong ... I don't need that stuff ... antidepressants are for people who can't handle life and I have lived through a lot not going to start being drug dependent now... etc.

Now, I think, geez, why did I wait so long? Took several years for my Doc to convince me to give it a go. First he suggested it as a way to calm my PMS symptoms and I thought ... hmm an antidepressant every day for just a few days of hades ... nah .. I hate to take medicine, besides DH says I'm not "that bad" and DH doesn't think I need an antidepressant, so if he can stand it, that's fine.

Then, after my surgeries when I was still having pain and clearly leading a stressful life, dear doc says, hey consider taking something like zoloft for pain control. I suffered for a few months more and then finally relented. What can I say, I'm a bit stubborn. Had to make friends with the idea.

After just a few days of taking the zoloft, I was noticing that I just wasn't getting bugged about things that would normally set me off. I felt much more in control. I still have a full range of emotion, its just more appropriate levels than what I had before.

Over the next several months I have noticed my pain has continually improved. I can't tell you the last time I actually had to take a darvocet, but then again, I am not dwelling on that type of thing anymore. Just taking it one day at a time. Although I feel more centered and in control of my stress, I still feel just like me (me, but better). I am not light headed or unable to focus on intellectual tasks. So, for me, its all good.

I'm not saying to take the antidepressant - its not a cure all and finding the right one can be a challenge. In all honesty, I don't need one hand to count the number of people who know me in person who know I take zoloft. They just think I have undergone some sort of personality change over time - that I have just decided to not stress out. It wasn't overnight so it seemed like I had just figured a way to get it together (and that is what happened, just took chemicals for me to do it).

Hope that your pain resolves soon! In the meantime.. gentle, healing s
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  #4  
Unread 09-01-2004, 12:44 AM
Some advice please

Hi Shelly,
I had alot of the same pain and I was told mine is from IBS and Diverticulosis. I think your right in wanted to have your bowel and stomach checked out. I agree with Danny that you should try to see a G.I. dr. Keep us posted!
  #5  
Unread 09-01-2004, 06:49 AM
Some advice please

Hey gals, This is interesting to me , also. Just here to compare- It's been 2 yrs since my TAH. Once in a while I seem to feel a lot like this. My dr. told me it was an adhesion. She said that it is a gas bubble or "something else" going through my colon. So I now went to GNC and take something to help keeps things moving. It does help! The pain that I get will make me drop to my knees. I can barely make it to my b. room to lay down. Reminds me of labor pains BUT labor pains would come and go. These remain and the pains shoot down my leg and up my side. When the pain gets so intense that my body starts shaking, I make my way to the bathtub and soak in a hot bath. The shaking (as if I am freezing), seems to make it more stressed and I feel I need to relax. Sure wished a hotflash would come then, when I need it. When I lay down I can actually feel something moving so I think the dr. is right. Don't know if this is the same as yours. If you'd like, let me know what you think. We can compare more. Take care. Judy.
  #6  
Unread 09-01-2004, 07:38 AM
Some advice please

Thanks ladies for your responses. I talked to DH about it, and told him that I really didn't want to take the Amitripoline - I just don't feel right about it (Michelle, I have often thought of you, as I rememeber the struggle you had in first taking Zoloft, and then how great you felt after you started on it, and I guess, still do!- That's great - I'm glad you found something that works for you). I didn't like the side effects that were described to me, and I'm just afraid to take it. I have changed my mindset on my own, and have decided that I can handle this, and that I'm not going to let it rule my life. I am also convinced that it is not gyn related, but gastro related, and I think I may go to my family doctor and talk to her about it more. But at the same time, I'm so sick of going to new doctors and waiting months for referral appt.s and always having that hanging over my head. For now, I'm taking my Dicetel, and got some Metamucil and trying to eat extra fiber and drink lots of water. I feel those things do help. I will go and see my GP if the really bad sharp radiating pains persist, but I have given up on the pain clinic. I don't think it is the right place for me right now.
tcs - what is diverticulosis, and how does it differ from diverticulitis? (Anyone else who may know the difference is welcome to answer too!!)
Thanks again ladies for your caring words.
Shelley
  #7  
Unread 09-01-2004, 08:14 AM
Some advice please

(((((Shelley))))) Sounds like you've come to terms with your decision not to take the Amitripoline and that may be the best thing for you: going ahead and taking it when you have so many reservations about it may not have been the right frame of mind to start the new meds. And you always have the prescription, should you change your mind

If you aren't already doing so, you might want to journal your symptoms. I've been told that my bowel spasms are linked to my IBS and IBS is triggerred by sooooo many outside things, including diet and stress and PMS and Med and, and, etc... I find that journaling helps both me and the doctors pinpoint just exactly what is going on and helps everyone manage the symptoms.

Sending tons of s your way.
  #8  
Unread 09-01-2004, 07:43 PM
Some advice please

Hi Shelly,
I hope you can aleast get some relief soon. Be careful with the fiber as I was told to start out slowly and work my doses higher over a month. If you take to much to fast you will bloat up and have bad gas. OUch!! I use Bene-Fiber as it has no color, flavor or grit. It cost a little more, but I don't get the bloats or gas with it.

Diverticulosis is pockets that form in and on your stomach and colon. Small food parts. can get stuck in them and cause bad pain! Things on my NO-NO list are nuts, seeds like in grain breads,popcorn, strawberries- (outside seeds) and so on.

Diverticulitis is when the pockets become infected from the food stuck in them. You have to go on antibiotics and if bad enough, you can lose parts of your stomach or colon.

The fiber helps keep the pockets clean. My dr told me if I have to have or accident have the NO-NO foods to take a 1/2 dose of M.O.M. to clean it out.
I hopr this answers some of your ?"s. Just ask me if you have any more.
  #9  
Unread 09-02-2004, 06:42 AM
Some advice please

Dany
Thanks for the journal idea. That is a really good idea - for me and my doctor I'm sure.

tcs - thanks for the info. I am starting the fibre slowly, and have already been on the Dicetel for some time. If I forget to take one (I take them with each meal), boy, can I ever tell. I got Metamucil as my fibre supplement - it's also unflavoured and has very little colour to it, and only a tiny bit gritty. I haven't felt bloated or any gassier than usual, so I guess I'm doing OK.
Did you have this problem pre hyst or only post? I seem to have developed it post hyst - it seems there's always something, and I've come to accept that. I know I could be in much worse shoes!

It is great to hear from other ladies going through similar things. Thanks again.
Shelley
  #10  
Unread 09-02-2004, 06:43 AM
Some advice please

Hi. I've also had a lot of bowel problems since surgery and only recently managed to find something to reduce the pain - I am now trying to follow a low residue diet which restricts foods like the ones Kim is referring to on her no-no list - ie. nuts, grains, seeds. Apparently my bowel problems are more to do with adhesions from surgery causing what my doc referred to as sub accute bowel obstructions but this new diet is helping big time. If I start to get an obstruction, my doc told me to take the colonoscopoy bowel prep. but not in the same quantity. I think you should definitely talk to your doctor more about the possibility of this being gastro related.

BTW, do you still have your ovaries? Was your hyst for endo? Have the doctors ruled out the possiblity of the pain being related to any of your previous problems or surgery?

Take care, H.
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