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Could this be adhesions? Could this be adhesions?

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Unread 08-31-2004, 10:29 AM
Could this be adhesions?

I had a TVH almost 3 years ago....within the last 6 months I have had major pain in my lower back, around my hips and on my left side of my butt (occasionly its on my right side). My butt feels like it is tied in a knot. I also wake up in the middle of the night with my arms numb and also my knees. Some days are worse than others...mainly worse days. I had an MRI and xrays done about 6 months ago...on the xray they found an old injury on my tailbone, so I went through months of going to the chiropractor and after my insurance wouldnt pay any more I went to physical therapy which was very painful! They did alot of therapy on my periformis muscle which caused me more pain! I decided not to go back to physical therapy because now Im thinking maybe it is adhesions. I have a hard time being on my feet for a long period of time and the same from sitting. I can't sleep at night because I am very uncomfortable. I am taking pain pills that barely take the edge off the pain. Can somebody tell me if they are experiencing any pain like this? I have no life anymore...I am a mother of a 10 year old and an 18 year old.....My kids play baseball and football and I have a very hard time going to all of there games because of the pain. They need their mom back and I don't know how to get there! Can anybody help me please? Thank you and sorry this is so long.

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Unread 08-31-2004, 10:45 AM
Could this be adhesions?

Oh ((((Bobbie))))) I'm so sorry that you've been having so much pain

I do not have personal experience with adhesions or the kind of pain you're having , but I did want to send some s your way. And to mention that there is lots of links to web sites discussing the Adhesion monster in our Resources Library. Here's the link to the Adhesion Resources Hopefully, this should help shed some on your problems until someone can share their experience.

Please, do keep us posted.. your kids should have their mom back
Unread 08-31-2004, 11:30 AM
Could this be adhesions?

Hello, I am not trying to give you medical advice but maybe you should go to your medical doctor and request a MRI. Xrays can take a picture of your bones. MRI's show your disc etc. Could be a disc/vertabrae problem? I had back surgery 9-6-2001. I went thru a very hard time with low back pain and leg pain. I had ruptured disc at L-5 and S-1 and the bones were pressing on my sciatic nerve and ouchhhh!!!!!I had been going to my chiropractor every day one month prior to my surgery. Doc did my MRI on 9/4 and I had surgery 9/6. (it may not be this for you) I was just trying to help.Good Luck and take care...Sunshine 48

7-6-2004 TAH/BSO
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Unread 08-31-2004, 11:32 AM
Could this be adhesions?

Sorry Bobbie, I re-read your post and saw that you have already had an MRI. oooooops...
Good Luck. Sunshine 48
Unread 09-01-2004, 11:34 AM
Could this be adhesions?

Hi Bobby,
I can relate to the constant battle with pain and the constant battle to get some control over it. For ten years I have suffered from severe pelvic and back pain that just kept getting worse. The doctors would run all kinds of tests and nothing ever showed up. Sometimes the pain would get so severe it would bring me to my knees and I would pass out. I would go to the ER and be accused of seeking drugs. I would go to the doctor and be accused of seeking attention! Aaargh. Finally last year I got fed up and knew I had to do something. It had gotten to the point that I couldn't take care of my kids and could barely get out of bed. So I referred myself to a pelvic pain specialist and asked him to do a diagnostic laproscopy. He agreed and the surgery was performed in Nov. When my doc sat down with me in recovery he said that I have severe pelvic adhesive disease that has been left untreated for far to long. He had to cut adhesions just to get to the area he was trying to work on. He said its the worst case he has ever seen. Since my diagnosis I found that adhesions do not show up on any non invasive tests like x-ray or mri. The only way to detect them is through a diagnostic laproscopy. Unfortunately my case is so severe that my prognosis is poor. I'm sharing this with you not to scare you but to show that pain is our bodies way of telling us something is wrong and it needs to be investigated further. So yes you're symptoms could be realted to adhesions or it could be something else. There is a wealth of information on the web about the adhesion monster like Dany said. Please educate yourself and demand that your pain be taken seriously. If I can answer any more questions or you would like to know of any resources, message boards etc relating to adhesions I'd be happy to help!

Unread 09-03-2004, 10:28 PM


I totally agree with what Mary posted. As a fellow sufferer of adhesions I can verify, 100%, that they can cause unbearable back pain and do NOT show up on most routine imaging (I don't know if they show up on any imaging, to be honest). I would talk to your GYN or else a pelvic specialist.

I had massive amounts of scar tissue removed 2 years post-hyst and I was pain free for a long time after that. Unfortunately, I think they've come back... which as I understand happens all too often. Still, I think there is hope for you.

Lots of luck!
Unread 09-05-2004, 08:25 AM
Could this be adhesions?

I'm with you sister! I had TAH 2-03 for Lg fibroids and endo. Lost both overies but kept cervix. I have never totaly been out of pain. I have had the same kind of pain and in the same area as you. Had the same tests and physical therapy on periformis which made it much worse! Went to a new gyn. who did lap surgery on 8-3-04. Found small amt. endo and adhesions on the colon. Now, 5 wks post op. the pain is just as bad as before surgery with the added delight of tingling in the butt cheeks and numbness in my legs. I'm going for a nerve conductivity test in a few weeks to see whats what. My Dr. thinks my cervix is pressing on the nerves coming out of the spine into the pelvic area. He wants to remove the cervix but I want to be sure this surgery will fix the problem. I too have been living 1/3 rd my normal life. I am self employed and have had to go part time. It has been rough but I keep thinking there is something I'm supposted to learn here. I need to wise up and get this lession so I can move on. How are you doing these days?

Take Care,

Hanna Lou

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