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Has anyone had a successful Fistula repaired? Has anyone had a successful Fistula repaired?

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  #1  
Unread 09-14-2004, 04:52 PM
Has anyone had a successful Fistula repaired?

I had my uterus and cervix removed July 13th. Since that time, I had a major leakage problem. I tried to self cath and that didnt really work. I was wearing the pads until I went for my six week checkup and found out that there is a large hole in my bladder and the excess urine is leaking into my vagina. I have had a cath. in since Spet. 1st, I have had a scope done and my bladder is now attached to my vagina right were the hole is, I am going friday for another IVP and thursday for another scope to see how well my bladder is healing. It is swollen and irritated from the surgery. The doctor says that I will be 100% once the surgery is done and once the cath is removed, which wont be until four weeks after the surgery is done. I am scheduled to have the repair surgery Sept 28th.

If anyone has had the surgery and they were normal afterwards, please let me know. I feel that wearing a cath for two months my bladder wont work at all once it is removed. I want to live a normal life without leaking or wearing this attractive bag that sloshes around when I walk.\

Your replies will be welcomed. So far I have not seen anything too positative on the web page.

Thanks
Kim
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  #2  
Unread 09-14-2004, 08:14 PM
Has anyone had a successful Fistula repaired?

Hello, Kim.

So sorry to hear you have joined the fistula sisters. I know you posted looking for positive fistula repair experiences, and there are some who post, unfortunately, I am not one of them.

Are you going to a urologist for the fistula repair? From my own experience, and others on this site, it seems like generally there is a 4-6 month wait after the hysterectomy before they attempt to repair it. The wait is to give your bladder time to heal before the operate on it again. My original gyne had never repaired a fistula, so I went to a uro at a teaching hospital who has had more experience. I am the "lucky" one to be his first repair failure. It was a vaginal repair, the next will be abdominal. I have had a suprapubic catheter since July 16...I also wonder if I will ever remember how to pee!

Do you know which repair you will be having? If the vaginal repair would have held, the recovery would not have been too bad, all things considered. There was not as much pain after the surgery as when I had the hyst.

Good luck to you! Let us know how you are doing!!

s to you,
Dee
  #3  
Unread 09-14-2004, 10:34 PM
Has anyone had a successful Fistula repaired?

Hi Kim -

I'm here to tell you there are successful fistula surgeries! I developed a fistula 5 weeks post op due to a stitch inadvertantly being placed through my bladder. When the stitch started to dissolve, it tore a hole in my bladder.

I ended up at the Cleveland Clinic for my repair because the doc I saw in Columbus said he couldn't fix it without causing further damage. He said that the whole was too close to my ureter tube. So he set me up with the head of urology - Dr. Vasavada. Not only did Dr. V fix my fistula, he was even able to fix it vaginally!!!

Seeing you're from Michigan, the Cleveland Clinic may be an option for you.

I know it is so hard to think positive when you're going down such a dark path. But keep you chin up, listen to what the docs say, and keep yourself in their faces!!

You are in my thoughts & prayers. Please keep me posted on how you're doing.
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  #4  
Unread 09-15-2004, 09:18 PM
Has anyone had a successful Fistula repaired?

I just wanted to pipe up w/my encouraging story..sure, it's an awful long haul to have to go through this stuff, I know...

but I had my vaginal repair (fistula due to the ol' stitch through the bladder-story) and I'm not just 100%..I'm 110% better!!

There is a WONDERFUL life (and a DRY life) after repair, (in my case).
Sure, I still worry that the repair may 'fail' ..but for now, all is great! We only have each day, right?
  #5  
Unread 09-16-2004, 07:09 AM
Has anyone had a successful Fistula repaired?

((((Kim))))

Just another shot in the arm here- there is a light at the end of the tunnel. It seems like forever while you are waiting and after surgery, but I to am another success story. I had a vaginal repair and it was a success.

The MOST important thing is to find the most skilled URO/SURGEON you can find. They have to have done this many times and be confident to repair you. After surgery I had the supra for a month to be extra careful and let the bladder heal. It was a long journey, but everyday, brought me closer to the end.

Keep the faith and be your own advocate. Let me know how you are doing and the "sisters" here are wonderful. They kept me sane during my recovery.

Mucho
Karen
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