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  #1  
Unread 09-16-2004, 10:59 AM
Adhesions?

Hello

Some of you may know that I have been having GI problems lately. I'm still searching for answers.........in fact, I'm on my way to the doctor right now.

My question to you all is.......have any of you had adhesions that has caused any sort of GI problems? I've had 3 gynecologic surgeries and an upper GI surgery. I'm starting to wonder if my problems could be from adhesions. I'm a likely candidate for adhesions, so maybe it's a possibility. And maybe I'm way off base. Just curious to know if this has happened to any of you.
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  #2  
Unread 09-17-2004, 07:55 AM
Adhesions?

Yes. Adhesions can cause slow downs in your intestinal function and ultimately blockage. At the time when my endo was orginally diagnosed the surgeon remarked that I was very close to bowel perforation from the endo and adhesions growing on the bowel. The symptoms I mainly noticed were constipation pre-menstrually and then diarreah the first few days of my period. Like clockwork.

Please let us know how your visit goes with the doctor!

  #3  
Unread 09-17-2004, 08:06 AM
Adhesions?

pasdechat:

I am having the same problems as you and was wondering the same thing. I have been having alot of GI problems also, and I saw my surgeon last week she is sending me to a GI Doc, because she said its possible it could be adhesions, since I had alot due to many abdominal surgeries and massive amounts of endo. That was one of the main reasons I was in the hospital for over a week following my hysterectomy, because of the massive amounts of adhesions attached to my intestines and I had some complications. She also told me it could be IBS.

She said with adhesions there is usually alot of abdominal swelling and not much diahrea(sp)? and usually constipation is a big symptom. She also said with adhesions the abdominal swelling is intemittent, it comes and goes. My appointment is next week so I guess I will know something then. I hope everything works out with your Dr. apt also. Take care.
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  #4  
Unread 09-17-2004, 08:09 AM
Adhesions?

I just had my ovaries removed and adhesion surgery .

For months I was puking . I had GI like symptoms

Granted that I did have some gut infection in April the monthly nausea carried on . I have always had bad pms and it triggered off nausea dna puking .

my gynae did the surgery . They found a grossly enlarged endometriotic ovary and my gut was stuck to it as wekk as to each other

They put a film about some parts of my gut

Im still getting waves of feeling ill off and on , and iM still on anti emtics but I have had VERY good days now after they took ovaries and did work on my adhesions .

My GP thought that adhesions cause that portion of the gut to have little or no peristalsis movements . The upper tract may stil be functioning normally . Eventually there may be a pile up somewhere and I used ot regurgitate all that time

Its ben ten days since the OP and I have noticed a definite drop in the number of times I regurgitate if at all .

I hope that you will find relief too (((HUGS))) we dont deserve to suffer like this or to be misunderstood

mei
  #5  
Unread 09-17-2004, 09:03 AM
Adhesions?

Thanks for your replies. I went to the doctor yesterday......unfortunately not my primary care doctor. I couldn't get in with her, but I did like the doctor I saw.

She listened to everything and came to the conclusion that most likely my GERD symptoms are returning since my surgery last year. I feel like some of my symptoms could possibly be returning since occasionally I have some acid reflux and I feel that sharp pain in my esophagus that I used to have. I also have a pain at the top of my stomach that I had before my surgery. I had a hiatal hernia and I think that's what caused that pain.

BUT, does GERD cause diarrhea and constipation??? I don't think so. I'm not having diarrhea anymore, but I am constipated most of the time and that's very unusual for me! No one can give me an answer about the diarrhea or constipation.

This pain is something that is there most of the time......and mostly when I eat. It is there all night and wakes me up several times a night and when I am sleeping, I'm dreaming about things that could cause abdominal pain(like getting hit in the stomach) or about eating lot's of food that makes me sick........this is how bad the pain and nausea is.......I'm dreaming about it because I'm feeling it!

Anyway, the doctor put me on Prilosec and said to give it 6-8 weeks to work. If I'm no better than come back and I will get a referal to a GI doctor. I will give it only 4 weeks and then I will see MY doctor and get that referal sooner! I think it's rediculous to have to wait 2 more months when I'm sure Prilosec is not the answer...........but then you never know. Maybe it is the answer????

Thanks again! I'll keep you posted!
  #6  
Unread 09-17-2004, 09:40 AM
Adhesions?

Oh, (((Pasdechat)))...

I'm right there with you; have my first appointment of a long line of them today, in fact.

Hiatal hernia can leave you with chest pain, if it's big enough. I had one on my gastroscopy, of which the GI doc who did it said it was "of no significance." Well, I shared that report with my internist who said, no, it could well be. If I had a hiatal hernia with 24 hours of clear liquids only, lying down AND with general anesthesia, then it was highly possible when I ate it became more apparent. They can slide up into the chest cavity, if big enough!

Alternating diarrhea and constipation can be due to cycling and endo on the intestines, or adhesions responding to hormones as well. Didn't I remember that you'd kept your ovaries? That can be cycling and impacting the intestinal function.

I don't know if you saw, but I posted a thread on a new adhesion study a couple of weeks ago. It discussed small bowel obstruction and its relationship to adhesions. Although it didn't break down the GYN surgeries to those of us with endo, most of the female patients studies were post GYN surgery, some as many as ten years out. It did say that the "webbed" type of adhesions were more likely to cause trouble than discrete "band" adhesions. Endo causes the webbing of adhesions; in fact, that was the exact word used in my operative report!

I think a lot of doctors are reluctant to consider adhesions because 1) they're so hard to find and 2) it means a further surgery. In your case, given the history of blood clot, they may be even more reluctant to consider any exploratory surgery. However, I have patients on Coumadin who have surgery all the time -- it IS do-able, if needed!

If they do contemplate adhesion surgery, I'd ask for a referral to a GYN-oncologist. They have the experience to work on bowel issues as well (part of their extra three years of surgical training). My GYN (who didn't do my surgery) has already said that, when the time comes, the oncologists need to tackle it. I'm seeing her at 12:30 today and also picking up copies of my records to hand-carry to a new oncologist -- since that time has come for me.

I wouldn't even give two weeks to the Prilosec, especially as you needed such heavy-duty doses before of your acid blockers. What you might want to do is to chart your diarrhea/constipation episodes -- mine look suspiciously monthly and I had my ovaries taken! If you are losing weight, gaining abdominal girth, and can document daily nausea such that you can't eat (like (((mei))) went through prior to her surgery), that warrants another workup.

The center I'm going to be going to has a multidisciplinary team for their GI department, including chest surgeons. They are very aggressive in treating GERD, too, since they've proved a link between long-term GERD and pulmonary fibrosis (lung scarring). I have both, and although I'd suspected the link, this is the first time I'd seen a group taking that seriously. They work closely with the GYN-oncologists, too. I hope, for me at least, this kind of care is the answer.

I'm tired of living with pain, too -- and you've already been through so much. If you like your PCP, I'd put in a call, let them know that you saw this other doctor, and that you'd like his opinion of her plan. Also, see who GH refers to for GYN-oncology in your community. If you do suspect adhesions, and another surgery is contemplated, I'd insist on the referral!



Audrey
  #7  
Unread 09-17-2004, 10:01 AM
Adhesions?

Audrey......first of all, I'm amazed at how much you remember about my medical history! I appreciate all your input. I think you're right......I do need to get in with my doctor. I guess I wanted to give it a few weeks and say "see, this isn't working!" My gut feeling(no pun intended) is that there is something more wrong with me than IBS(a lot of my symptoms match up to IBS) or GERD. I had the gut feeling when I was pregnant with twins and when I had the blood clots in my lungs. Both times doctor's wouldn't listen and both times I was right. I have to go with my gut and be persistent.

I have lost weight from this.....10 pounds in the last 2 months. That's not alot of weight in 2 months, but it's weight that came off without trying. Weight that came off because of the misery that food brings me.

I knew yesterday that when I couldn't get in with my PMP that I should just wait for the next available appointment next week. When the doctor's don't really know my history like my PMP does, they don't really treat me in the way that I should be treated.

I also wondered if my diarrhea/constipation had anything to do with my cycle. I noticed when I had 10 straight days of diarrhea that it was at the same time that I had all my "period" symptoms, such as acne, breast tenderness, pelvic pain. I'm getting close to that time again, so we'll see if it happens again. I will also chart my symptoms like you suggested to keep track so I can show the doctor.

As far as the pulmonary emboli........what exactly do they do for people with a history of clots when they have to have surgery? Do they put them on Heparin before and/or after surgery to prevent clotting? Do they have to go back on Coumadin? I went off Coumadin in March. Would I maybe have to go back on it? I am scared for another surgery because of the clots, but if it comes down to it, I need to know what this pain is so I can get rid of it. It is affecting my health. I'm not eating right at all because of this.

I'll let you know what happens
  #8  
Unread 09-17-2004, 10:18 PM
Adhesions?

Hi Ladies,
I completely understand what you all are going through. I also have severe adhesions and they are miserable to live with! I have the diarrhea and constipation and here's how it was explained to me by an adhesion specialist. He said when the adhesions are near the bowels they pull on them causing diarrhea and or constipation. He said most of us are misdiagnosed as having IBS because the docs just don't understand what is going on. I found that interesting but not completely sure if its true. Although I've talked to others who were told the same thing by adhesion specialists.

Right now I'm dealing with not being able to eat and the losing weight. So far I've lost 40 pounds and its still coming off. I'm surviving on ensure.....lots of water......and a low residue diet to prevent obstruction. I've found soft foods the easiest on my gut. Things like soup, mashed potatoes, jello, etc..... I never dreamed I'd have a hard time gaining weight and find that ironic. I was always one of those people who could look at a piece of cake and gain weght! lol.

As for the abdominal swelling.....have that too! And it definitely does not come and go. I've talked to lots of other ladies and never heard that. They have all complained that the swelling won't go away.

I highly recommend researching adhesions and have found alot of great info at www.adhesions.org. After reading other womens stories it helped me understand what I was going through and why. They also have a message board where you can post questions.

(((pasdechat))) I hope everything goes well with your doctors appointment and you find some answers soon!!
Take care,
~Mary
  #9  
Unread 09-18-2004, 06:43 AM
Adhesions?

Im thinkint that Drs should take a deeper look into this ,look at how many of us with endo or similar problems end up with GI symptoms

There must be some link here . Afterall endo gets deposited all over sometimes scarrig the gut

mei
  #10  
Unread 09-30-2004, 10:11 PM
Pain related to Adhesions

I had a TAH 8/16/04 and had my 6 week check up this past Tuesday and everything was great. Unfortunately, beginning this past Sunday I began having extreme lower abdominal pain and pressure on the rectum and vagina. On a scale from 1 to 10 it was around an 8 or 9. Vicodin was the only thing that helped. Yesterday, after an "attack" at 2 a.m., and another at 6 a.m. I lost all bladder control and called the gastroenderologist. They think I have adhesions. So my question is - has anyone lost bladder control with adhesions? The "accidents" seem to occur only when I move. Having a CT scan on Sunday to rule out everything else.
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