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Neurofibromatosis and Hystorectomy!! Neurofibromatosis and Hystorectomy!!

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  #1  
Unread 10-09-2004, 03:30 PM
Neurofibromatosis and Hystorectomy!!

Hi all. I'm new here and need to have a hyst, due to sever endemetreosis(sp?).

I also have Neurofibromatosis which can be effected by hormones. Is there anyone here who has NF and has or been through a Hys? I cannot take HRT and would like to know what you did and how it worked for you. Also did the NF increase after your HYs???

Due on Dec 1/04 or sooner for the Hys I see the Gyne Dr on Tuesday. Will update then...

Thanks
Penni
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  #2  
Unread 10-09-2004, 06:53 PM
Neurofibromatosis and Hystorectomy!!

Hi ((((Penni))))) and to Hyster Sisters. You have found the right place for information, support (lots of it) and s.

While I'm not personally familiar with neurofibromatosis, are are a few posts where this issue is discussed: Neurofibromatosis Search Result

Here are also some website where Neurofibromatosis is discussed, and where you might find some insight on the effect of a hyst:

http://www.nf.org/
http://www.nfinc.org/
http://www.ninds.nih.gov/health_and_...neurofibro.htm
http://neurosurgery.mgh.harvard.edu/NFR/
http://www.nfauk.org/

Note: All these links have been submitted to the Resources Library
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