Endo after Hyst? Is it possible? | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled

HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Endo after Hyst?  Is it possible? Endo after Hyst? Is it possible?

Thread Tools
Unread 10-10-2004, 04:45 PM
Endo after Hyst? Is it possible?

I have posted before about my pelvic pain similar to before I had my Hyst. I have had a CT scan, xrays, and ultrasound looking for the source of my problems. We thought it was my gall bladder, and it is only functioning at 4%, but I do not have stones, so they will not remove it until some other things are ruled out.

It was recently brought to my attention that endometriosis could be causing my pain. It is a constant burning in my lower pelvic regeon especially on my right side. It travels all the way up to my ribs. I am constapated and when I do go, my BM's are not overly hard it is just very painful and hurts a heck of a lot. I frequently feel sick to my stomach and I am very very tired all of the time. Sometimes I wake up and take my daughter to school only to come home and find I cannot keep my eyes open and then I sleep for 3 or 4 hrs. Also, my right breast is very very tender, as if I was having my period.

Anyway....My question is. Is it possible to have endo after a hyst. I have had everything removed. I go to my gyn on tues, but I never thought about endo until a friend of mine mentioned it.

So, if anyone knows anything about this please let me know. I so want my life back. I just got remarried in June and I feel horrible for my girls and husband. I want to get back to being me. Is ther any hope?

Thanks so much to everyone who responds!
Sponsored Links
Unread 10-10-2004, 06:22 PM
Endo after Hyst? Is it possible?

hi julie,
yeah it is very possible for endo to come back after a hysterctomy.
i mean in my case it did..i had a hysterctomy in decemeber of 2003 and another surgery done in august of this year and they found endo on my bladder and remaining ovary... i have read alot on endo and they say it can come back..how long has it been since your hysterctomy? i'm sure you'll have lot of input on thi topic .i know with endo everytime the dr. say's it might be endo they want to do surgery and surgery leads to scar tissue and bingo Endo! well good luck and

sending you alot of your way!!take care
Unread 10-10-2004, 07:36 PM

Thanks for your post. I had my hyst in 4/02. I have been great ever since w/ the exception of my weight gain and then all of the sudden bam. Here we go again!

I have had 5 abdominal surgeries from the age of 18-25. That includes 2 c-sections. I don't have ovaries or anything anymore. My first ovary was removed right after my 18th b-day.

I can't remeber or not but don't think I had any endo when I had my hyst. I do know that my ovary would bleed and cause a burning feeling and that is what I am feeling now.

I would rather have endo than the other thing they are checking me for. Crohn's disease. yuck, I don't want it.
Sponsored Links
Unread 10-11-2004, 04:56 AM
Endo after Hyst? Is it possible?

Yes, it's definitely possible for endo to recur after a hysterectomy, but as far as I know only if you keep your ovaries or go straight onto HRT. I had extreme endo (my doc who was our best endo specialist said in the worst 1% of cases). I chose, following his advice, not to use any sort of HRT for at least 12 months. I ended up managing for 18 months. The theory is that any remaining dots of endo (he removed any visible during my the surgery) would most surely shrink to nothing byr the time a year as gone. So far so good - 5 1/2 years later.

I have my fingers crossed for you that you find a resolution soon. I can't imagine how awful it would be to go through all that, have a hyster, and then have trouble return. Not nice.

Good luck!
Unread 10-11-2004, 09:53 AM
Endo after Hyst? Is it possible?

i too had a tah last year and had to go back to have more endo and adhesions removed along with my remaining ovary. i had it on the ovary, bladder, ureter and bowels both times.

it is a dreaded disease and hyst will not cure it in all cases.

have you been on HRT, as endo feeds off of estrogen so anything that you might have been taking that has any type of estrogenic affect could have fed it.

I feel for you I had both my surgeries in less than 12 months and the menopause symptoms without HRT has been a challenge!!!!

keep us posted!!!
Unread 10-11-2004, 01:53 PM
I have been on HRT since day one!

I have been on HRT since day one. I was only 25 when I had my Hyst and have been on Estrogen ever since. At first I took Estradiol and since Feb of this year I have been using the Climara 1mg patch. I have been pretty happy with the results. I guess, until now.

What I don't understand is, if Estrogen is what causes endo, why put us on it? Don't I need to be on something at my age? I still have at least 20 years before I hit the menapause age.

Any input?
Unread 10-11-2004, 01:56 PM
One more thing....

You say you had it on your bowels etc... How did this effect you? Did you have constipation and other symptoms similar to bowel problems? Bloating, feeling of constant fulness after you ate?

Unread 10-11-2004, 02:05 PM
Endo after Hyst? Is it possible?

my doc was very clear about not taking HRT for at least 6 months to a year postop.

each time i had it on my colon. first time it wasn't too bad just had a piece of my ruptured appendix stuck to my bowel along with appendix stones.

the second time it was on my bladder, left side of my bowels and yes I did have issues with going to the bathroom and unfortunately feel like I am starting all over with the bowel issues going from one extreme to another just as it was prior to both surgeries.

I am surprised you have been on HRT!!!

you are probably also like me and had lots of adhesions? I have had 3 laps and 2 abdominal surgeries and had lots of adhesions which might also be the cause of the bowel issues. I am just so over being sick and going to the doctor I am trying to hold out as long as I can. being operated on 2 times in less than 12 months was enough for me for a while, my tummy is still tender and I still get swelly belly. I just want it to go away - I am almost 6 months postop from second surgery and don't remember it taking this long for the swelly belly to go away or the tenderness.....
Unread 10-11-2004, 02:19 PM
I never knew...

I haven't had surgery since my hyst in 2002, so, I don't know what I have. But, more than likely I do have adhesions. I have had one Laparoscopies, and 4 laparotomies (including my 2 c-secs). It wouldn't suprise me.

I have had a CT scan done and I have thickening of my colon walls. That is what the surgeon who won't do anything w/ my gall bladder has said. I saw the CT scan the the thick walls are there. However, I find it odd that when I read my CT report the thick wall were not mentioned. In fact it said everything was pretty normal except for some distention (sp) of my intestines.

As far as a swelly belly, I have had that ever since my 2nd child was born and especially after my hyst. My lower abdomen has gotten even bigger lately after I eat my entire stomach area is huge, but I haven't gained any weight, but I can't loose weight either. As far as the BM probs. I just don't go. Finally when it gets too uncomforatable I have to use and enema to get at least a little relief. I have had 2 sets of x-rays the ct scan and an ultrasound of my abdomen, but not my pelvis and no one has mentioned any abstruction.

I am at a loss.
Unread 10-11-2004, 02:27 PM
Endo after Hyst? Is it possible?

from what I understand of endo and adhesions, they can cause not only blockage but pulling in opposite directions of where they are supposed to be. my whole pelvic area was stuck together pretty much. My bowels were not obstructed completely through it was all on the surface but it was enough to cause problems going to the bathroom. Endo is its own type of adhesion and when you have your cycle it flares up and causes more discomfort. I hate it. I think having endo is as bad as having cancer because there is no cure, its only treatable.

Since my hyst I have read more and more that so many women have hyst thinking it will get rid of the endo, if there is the slightest spot left and it has many colors and forms, any thing that has an estrogenic affect can cause it to grow and spread.

I am sorry you are having troubles...it just never seems to end. Feel free to email me if you like.

I am not online at home (home pc crashed) but am during the day at work.


Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
0 Reply, Started By lisa922
1 Reply, Last Reply 06-23-2006, Started By Buttercup432
12 Replies, Last Reply 07-29-2005, Started By carlag
1 Reply, Last Reply 04-04-2005, Started By nervous_nel
3 Replies, Last Reply 01-31-2005, Started By lpete301
1 Reply, Last Reply 07-31-2004, Started By Ellsbells09
3 Replies, Last Reply 07-23-2004, Started By Macree
2 Replies, Last Reply 11-05-2003, Started By doll
5 Replies, Last Reply 11-23-2002, Started By nervous_nel
5 Replies, Last Reply 02-06-2001, Started By Gillian
8 Replies, Endometriosis Support
1 Reply, Hysterectomy Recovery (post hysterectomy)
8 Replies, Hysterectomy Options and Alternatives
7 Replies, Hysterectomy Options and Alternatives
14 Replies, Preparing for Hysterectomy (pre hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)
11 Replies, Hysterectomy Recovery (post hysterectomy)
11 Replies, Preparing for Hysterectomy (pre hysterectomy)
4 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
3 Replies, Preparing for Hysterectomy (pre hysterectomy)


Hysterectomy News

September 22,2020


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing