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Anyone else out there with a Wound Vac?  I've named mine Wilbur. Anyone else out there with a Wound Vac? I've named mine Wilbur.

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  #1  
Unread 10-12-2004, 03:10 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

Hi Sisters,

It's a long, long story, but I finally had a wound vac placed last Friday. We've named him Wilbur after the pig in Charlotte's Web. Obviously, he sounds like a little pig. I'm trying to get used to carrying around this little pack and tubing all day. The worst thing is when I wake up at night and have to go to the bathroom. By the time I have everything unplugged and untangled, I REALLY have to go.

Are there any other sisters out there who are dealing with similar wound healing issues?

In April my OB/GYN and a general surgeon tried to do a hyst but had to stop the surgery because it was so bad that it was life threatening. After healing from that surgery and getting my blood counts up, a gyn/onc and his team did a TAH/BSO on 8/30 for massive endo that had attached everything together, and I mean everything. It took the surgeons over 60 minutes just to enter the abdomen. Unfortunately, I developed a seroma (like a hematoma but serous fluid, not blood) behind the vertical incision that caused the incision to burst open about ten days after surgery. YUCK!!

Since then, the home health nurses have been packing the wound two times per day with saline gauze but there is still a 9cm tunnel that just won't heal. grrrr

I finally went to a Wound Specialist last week and he started the wound vac. The wound doc plans to surgically modify the wound so the tunnel is not so deep and narrow. Hopefully, this will allow it to heal from the bottom instead of closing itself off. It's been a long road... and it's not over yet.

I could really use some moral support right now as I sit here with Wilbur by my side.

Kellyn
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  #2  
Unread 10-12-2004, 05:33 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

I had 2 sets of antibotics for infected stitches. The stitches at the top and bottom of my vertical incision opened and then got infected. I have just finished the 2nd set of pills and it looks like the infection is gone. The stitches are almost healed. Yesterday a large scab came off the top stitch and it started to leak a samll amount of fluid again!

I understand your frustration about healing - I sometimes think my incision will never heal. My DH says they are doing much better and to be patient.

The doctor told me the most important thing is to keep the stitches dry but it is almost impossible to keep the bottom of the incision dry due to sweating and hot flashes.

I just keep thinking - this too shall pass!
  #3  
Unread 10-12-2004, 05:40 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

So sorry for eveything you've had to endure Kellyn....I want to send you tons of 's and prayers for a better recovery with no more bumps in the road for you. God Bless you sweet dear sister!


luv,


mich
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  #4  
Unread 10-12-2004, 06:32 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

God Bless you Kellyn!

What a rough road you're having to travel! I haven't been where you are, but I've heard of this kind of situation before with different surgery, so at least you know it's not uncommon.

Wilber, hmmm, why do we tend to anthropomorphize our machines? I named my I.V. pole in the hospital "Stanly". My mother has a sleep apnea machine she calls Fred. I hope you and Wilbur will soon be able to come to a parting of the ways.

Again, May God Bless you as you recover.

Marta
  #5  
Unread 10-12-2004, 06:40 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

Hi Kellyn,
I just had to reply to your post. I have been a home health nurse for 18 years. I am a supervisor and in the office at present, not out seeing patients. I just want to say that we have had GREAT healing success with wound vacs. I know they are kind of a pain, but worth it in the long run. I hope your home health nurses are as great as the ones I work with. Most just love what they do, particularly because people do so well at home and there is more time to spend with you. When I first read your post, it reminded me of the movie, Castaway and his soccer ball named "Wilson." They became best friends, just like you and Wilbur will be before it is all over. I will be praying for you, and wish you the best! Hugs, Hugs, Hugs
  #6  
Unread 10-12-2004, 09:20 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

Thank you, dear sisters, for all your warm wishes and words of advice and encouragement. Your support means more than words can say.

We're still reeling tonight from some bad news. Last week before they would place the wound vac, I had a CT scan to make sure there was no correlation between my big tunnel and my "insides." Fortunately, the wound stops along the abdominal wall but they found a mass on my left kidney on the CT scan. They then sent me for a renal ultrasound which confirmed the mass but could not actually positively identify the lesion.

The wound care doctor has me seeing a urologist tomorrow and he wants to wait to do the surgical modification of the wound until the urologist figures out what's going on. The scary thing is that they think this might be a renal cell carcinoma. Obviously, DH and I are pretty worried.

I just can't believe this. Here I am, a 36 year old healthy mother of two who just wanted to end the ten year struggle with endometriosis and now I've had two major surgeries in six months and may be facing another. :0(
I've always told DH that I was "high maintenance but worth every penny," but this is ridiculous. hehe

Again, thank you all for your help and moral support. Sorry to vent my woes but I know you ladies will understand. I have trouble talking to DH about it because it just makes him more stressed and my parents are already worried as well. The last thing I want to do is to make this worse for them.

Kellyn
  #7  
Unread 10-12-2004, 09:36 PM
Anyone else out there with a Wound Vac? I've named mine Wilbur.

Kellyn,

I just wanted to send big s your way. You've been through so much at such a young age. I wish you the best, and I hope your upcoming results are favorable.

It sounds like you've got a great attitude and are dealing with this misfortune with a sense of humor. That's so important...

You'll be in my thoughts and prayers. Please keep us posted.

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