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Fibroids & Biopsies Fibroids & Biopsies

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  #1  
Unread 10-17-2004, 12:18 PM
Fibroids & Biopsies

Hi, everyone. I had a transvaginal sonagram, a hystoscopy and a colposcopy on Friday. My only prior symptoms were pain and bleeding upon intercourse and a nasty pap smear a couple of weeks ago.

The sonagram revealed numerous fibroids that I never knew I had. The nurse stopped counting at 10 but said there are many more. The largest ones are about the size of "kumquats" (?) and they are outside the uterus, in and on muscle.

The hystoscopy and colposcopy did not reveal anything abnormal, uterine tissue looked pink and healthy and even the cervix looked fine. Several tissue samples were taken but it will be 8 days before I get the results of pathology. Considering my bad pap, my doc seemed to be bothered by not finding anything apparent with the hystoscopy and colposcopy, like she would have been more relieved to have seen something that would have explained the bad pap.

While I await the biopsy reports, I do have a question and hope I don't sound too dumb. If the fibroids are not within the uterus, will a hysterectomy fix them? Can they come back if the uterus is removed? If the fibroids are in and on the muscle, how will the lack of a uterus solve that problem?

I know I should have asked my doc all these questions, but I was such a nervous wreck over all those tests, I just didn't have the presence of mind to know what to ask. Hopefully, some of you will know the answers.

Thanks for your time,

Chris
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  #2  
Unread 10-17-2004, 05:04 PM
Fibroids & Biopsies

Hello Chris, I left my fibroid uterus behind in January of this year. Since the fibroids arise from the uterus it is highly unlikely that they would recur after the uterus is removed. Think carefully before having a hyst for fibroids. Examine your options and get all of your questions answered.
Best of luck to you.
  #3  
Unread 10-18-2004, 03:49 PM
Fibroids & Biopsies

hello Chris,

I hesitate to reply to you because I don't want to raise your anxiety, however I do want to educate you on a very rare form of cancer called endometrial stromal sarcoma. I have a varient of that cancer. Stromal is the supportive muscle that holds the uterus up. This cancer is not detected by Pap, bx or ultrasound because it is in the muscle. I had a TAH and it was discovered after the surgery, the hysterectomy saved my life. The good news is, I am almost two years out and am currently dancing with NED (no evidence of disease). Your symptoms sound much like my symptoms, my OB was surprised by how "clean" my uterus, cervix looked. He was as surprised as I was to find cancer lurking in a fibroid in my uterine muscle. This is a highly treatable cancer if caught early. So, please don't worry, but I would definately find a GYN Oncologist for a second look. Better to be safe than sorry. Let me know how your pathology comes back.
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  #4  
Unread 10-18-2004, 05:54 PM
Fibroids & Biopsies

Who Me?, don't worry. A gyn-onc is definitely in my future. My regular gyn advised me that I should consult with one because of my bad pap. I expect once she gets the results of the biopsies next week, she'll recommend a gyn-onc get involved whether the biopsies are positive for cancer or not. She seemed very bothered that her visual inspection was not confirming the pap smear results and she's already planning to involve a private pathologist to read all results should the biopsies come back clean.

Lori, you haven't scared me. I'm actually pretty good when I know what I'm dealing with (or, in this case, what I may be dealing with). Like many women here, I just want the facts and then I can come up with a plan of action. The worst part is not having the facts. I've already told my doc and got her to agree that as soon as she knows anything she will tell me, no screwing around with a face-to-face -- just pick up the phone and let me know what's going on.

I will email you directly to ask some questions about your experience. I appreciate you taking the time to let me know about this disease.

Chris
  #5  
Unread 10-18-2004, 06:04 PM
Fibroids & Biopsies

Oops! Unfortunately, your email isn't available, Lori.

Would you mind letting me know what happened after the cancer was discovered with the hysterectomy? I'd like to know if you had to go through any treatments like chemo or radiation. Also what do you have to do for follow-up and how often?

When they removed the uterus, did they take out the muscle where the cancer was then or did they have to go back for it? Was your hyst a complete hyst? (Sorry, I can't see your post while I'm writing mine -- otherwise I'd probably know the answer to what type of hysterectomy you had.)

Also, how old were you? I'm 50 and because I've been on the pill forever, I haven't had any menopausal symptoms at all so if I have a hyst I'll be thrown into it full force. That's still better than cancer, but I was just wondering about your experience.

Thank you for taking the time to answer me. You can email me directly if you'd like.

Chris
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