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In need of opinions In need of opinions

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Unread 12-28-2000, 03:22 PM
In need of opinions

Hi Ladies,
Today was my pre-op for surgery on Wednesday, January 3. I am currently scheduled for a TAH with bladder repair. While I was talking to the doctor I told him that if there are any problems with the ovaries that I would like them to be taken out. He suggested I think about having them out anyway due to endometriosis. He said that the ovaries continue to produce endo even after the hyst and may cause problems to my other organs. My concern is, should I have them taken out and deal with the HRT now and not have to worry about any more endo or should I leave them in and possibly have to have another surgery to have them removed in the future? Any information any of you have would be greatly appreciated. If anyone has had endo and kept their ovaries, have you had any problems? Please let me know.
Thank you in advance!!!!
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Unread 12-28-2000, 03:44 PM
In need of opinions

It's strange how different doctors have different opinions. I am having a TAH in February for fibroids/endo/heavy bleeding. I had a laparoscopy in Sept that revealed moderately severe endo w/adhesions which was treated with laser. My ovaries were free of endo so my gyn is going to leave them in (since I'm 41 and years from menopause). He says that he has had good luck with leaving in clean ovaries with endo patients and that endo can decide to return even in menopausal women or in women who have had their ovaries taken and not taken HRT. But the odds are more in my favor of having a good result, so I'm keeping mine.

If your doc takes your ovaries and you start HRT, it's the same thing as having your ovaries to produce estrogen (though artifical is never as perfect as the real thing), so if he's using that logic for taking your ovaries to help avoid future endo, he'll have to keep you off HRT as well.

And.. ovaries don't produce endo. There is debate about what actually causes it, but the most popular belief is that it's caused by retrograde menstruation that doesn't get absorbed properly by some women, resulting in endo implants. So it the uterus is gone, then no retrograde menstruation, so no new endo. However, since some women can have reoccurances many years after stopping menstruation, either naturally or surgically, we know that that explanation is not perfect.

As I've replied to other posts who have the same problems as me, there are no guarantees, you have to make the decision that is best for you. There are trade-offs on keeping versus getting rid of your ovaries now. Neither is a perfect or risk-free choice.

Unread 12-28-2000, 03:53 PM
my opinion

My opinion neither great nor small is that you keep your ovaries. They took my left one in 96 (at the age of 21) and most of my right one at the same time. I did fine until August of 99 and the dumb tumors returned sending me for surgery yet again. I finally lost the battle and my right ovary (what was left) in May 2000. The HRT is hit and miss and right now that seems to be going smooth. It doesn't sound like your having problems with your ovaries just endo. I think I would really think it over and truly decide if you want to loose your ovaries when they sound fairly healthy. If mine didn't cause all my problems I would have kept em. Good luck and may God give you the strength and courage to make the decision suited best for you. Your in my thoughts and prayers.

Peace and Hugs
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Unread 12-28-2000, 03:53 PM
In need of opinions

I saw a post on the post-op board today from a punctured princess who left just a piece of one ovary. She's a few weeks post-op. That little piece of ovary has developed a nasty cyst and now she has to have it completely worked up and probably removed. She's pretty upset about the whole thing.

Personally, aside from a cyst on one of my ovaries which comes and goes so it's not malignant, I'm opting for saying goodbye to the little buggers. I'm 46, they have served me well with 2 children, now grown, they give me pain and they'll probably stop working soon after the surgery anyway. I'll be going the HRT route and do expect a time of adjustment but I'm pretty well decided on this. My doc recommends it also.

This is an individual decision. There are those who said goodbye ovaries and are happy with their decision and there are those who kept them and are happy. Check out the hormone jungle and the post-op message boards. You'll get a lot of first hand experience there.

Wishing you an uneventful surgery and pampered recovery.
Unread 12-28-2000, 05:58 PM
to keep ovaries or not

I'm scheduled for a hyst. on jan.24th and they will be taking my cervix due to pre-cancer that showed up. He said he would leave my ovaries b/c I'm only 30. My concern is the cancer cells coming back possibly ovarian. Anyone with the same concern or information?
Unread 12-28-2000, 08:11 PM
In need of opinions

It is true that every doctor is different in their opinions about keeping or leaving ovaries when it comes to endo. Find yourself a doctor who is a SPECIALIST in treating endo. Docs who deal with this on a everyday basis have more experience and tend to be well educated in the treatment not the cure. If you have a doctor who tells you endo is curable, you need to move on to another. Endo can be controlled not cured, that is why it can come back. The removal of the ovaries in a woman with endo is done to CONTROL the amount of estrogen that our bodies get. At our age our bodies are producing alot of estrogen and it promotes the growth of endo. So the doctors like to remove the ovaries, keep you off estrogen for a period of time to let the microscopic endo die, and then reintroduce estrogen in a small enough amount as to not promote endo growth. At the same time they are giving us the normal amount of progesterone that our body would make. Progesterone suppresses the growth of endo.
Something else to think about is the increased risk of certain cancers in women who have endo. The cancers are, OVARIAN (thats one good reason alone to get rid of them) Breast, non hodgkins lymphoma, and melanoma's. Cant remember the exact stats but it was about 12% higher on one and even went as high as 16% on another. This has been studied and been found to be conclusive that we are at a higher risk than the population.
Its a hard decision to make. Study and find out what options you feel comfortable with.
If its any consulation, I am 32 and had ovaries out. I feel great. No mood swings or acting crazy. I do have some night sweats occasionally and sometimes I get warm. My doctor could not guarantee anything before surgery concerning how my body would react but he said that usually you can gauge how you will do by looking at your mother. Its usually hereditary. In my case it was. The only thing my mom had when she went through menopause was night sweats. In 6 to 9 months I will be able to take care of that when I start my hormones. Actually I'm afraid to start hormones. I'm feeling really good and dont want to mess it up.LOL
Anyway, just my little peice of advice for you to ponder, hope it helps. Best of luck

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