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I think the adhesion monster may be back :( I think the adhesion monster may be back :(

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  #1  
Unread 11-01-2004, 05:46 PM
I think the adhesion monster may be back :(

I had my LAVH in February, 200. I kept both ovaries at that time. I had more surgery this June to remove my right ovary, an ovarian mass, and adhesions that were attached to my bladder, bowel, and colon. About a month ago I noticed I was having pain again on my right side again. The pain has gradually gotten worse. I saw my doctor today - they did a CT scan which indicates my appendix and other organs look fine. They are suspecting the return of adhesions. {{{sigh}}} The only way to positively diagnosis this would be to have more surgery. Is more surgery even worth it? How do you live with the chronic pain? I don't know if I should be angry, sad, or frustrated - maybe all of them. I also recently found out I need to have a 4th mammogram on my right breast to check on some microcalcifications that are being monitored. I think my body is falling apart. I am so discouraged. I cringe just thinking about seeing any more doctors.

Has anyone had more surgery to remove adhesions? If I choose not to have more surgery what kinds of pain management has anyone tried. I hate to think this is what my daily life will be like.

:cry:
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  #2  
Unread 11-01-2004, 06:21 PM
I think the adhesion monster may be back :(

I am sorry you have these things going on. I was wondering some of the same things about adhesions as you were. I had alot of adhesions, scar tissue and endo when I had my hysterectomy, in the beginning I did fine but now I am starting to have cramping and GI problems that my doc is not sure about and adhesions is something my doc mentioned may be the culprit, and I don't even want to think about more surgery. I know what you mean about it being sad and frustrating. I hope you feel better soon and you can get some relief.
  #3  
Unread 11-02-2004, 08:31 AM
I think the adhesion monster may be back :(

Unfortunately, I know all too well about the chronic pain monster. I did have adhesion surgery back in Jan 04, however I am facing yet another surgery to clean out my abdomen. Surgery means adhesions, it's a never ending battle.

((HUGS)) I know this must be frightening for you. If you want to talk, email me. I will hold your hand through this.

Laura
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  #4  
Unread 11-02-2004, 10:30 AM
I think the adhesion monster may be back :(

(((LynnMary))))

I am so sorry to hear that you are at this point.

Don't really have any answers. I think we all have to decide what our goals are and then map out a plan with our doc(s) on how to get there. But I do have s

Personally, I don't want any further surgeries. I have had a tough few weeks of pain and decided to try upping my zoloft dose (w/doc's blessing) and see if cutting down on the stress/anxiety factor would help with the pain. I also have a small supply of darvocet when the pain won't respond to anything else or is especially acute. Sometimes it hits so hard and fast that a darvocet is the only thing worth trying.

So, although I am not exactly in your shoes, I understand the frustration and confusion that you are probably feeling.

Take care and let us know how we can help!
  #5  
Unread 11-02-2004, 10:55 AM
No answers but I feel your pain

I, too, suffer from chronic pelvic pain because of extensive adhesions. Now my remaining right ovary has cysts.

In August, I had one cyst, 2cm. Today, my follow up ultrasound shows one 2cm cyst, one 1.8cm cyst and several small cysts.

I don't know what to do. I am on Femring for hormone replacement. My doc always leaves me feeling minimalized and un-listened to.

I feel like a bag of broken. Where to go for help?

As a veteran of 9 previous surgeries, I worry about any other surgery because the adhesions always come back. Can I just live with the pain? Will the cysts resolve themselves? Do I let the current doc do the surgery when I feel so unheard?

Sigh. When does this get easier?
  #6  
Unread 11-02-2004, 11:28 AM
I think the adhesion monster may be back :(

I'm right there with all of you. I'm 8 weeks post-op and my dr thinks I have adhesions already (I do too). This *****. I've prided myself on going as long as possible in between surgeries for endo and adhesions. My current dr couldn't believe I had made it 4 years, but I get soooo sick of having surgery on a regular basis. This TAH-BSO was supposed to be my last, but I am in more pain now than I was pre-op. There's no way I will have another surgery so soon. Just wanted to let you know you're not alone. I'm just going to push through it and get back to my life, including whatever exercise I want to. My dr had told me to still take it easy, but I figure the adhesions are already there, so I'm not putting my life on hold anymore. I'm just so frustrated...
Mb
  #7  
Unread 11-03-2004, 02:56 AM
I think the adhesion monster may be back :(

Hi Lynn,
I'm so sorry your pain is returning - that stinks.

I've told you about my ovary pain....well, I honestly don't know if I have any adhesions or not, but I suspect I do, just because of what I've been reading and what I feel.

I've found that what has helped me a lot is to have done a series of exercise routines that very very slowly helped me develop abdominal muscles.
Now, I know you are thinking that the last thing you want to do is exercise those abs... so let me explain a bit.

I worked with the physiotherapist at my gym, explained what my problem was and my pains and she had me start on exercises that focussed on the muscles right at the base of my rib cage - of course some of the lower ones got worked too, but we really focussed on the higher ones.

over the last 6 months or so I've been learning to hold my muscles certain ways when I move, and to move differently when I do things like sweep or mop the floor.
One area I haven't been able to help is bending (like for cleaning the tub) --- or picking up heavy things. --- I can't carry a heavy bag for more than a couple of minutes, or I feel the strain.

but overall I have noticed a significant improvment. From having pain every day it has changed to having some pain once in a while.

I don't know if this will help you, but since it made such a difference to me, I wanted to suggest it.

  #8  
Unread 11-03-2004, 06:41 AM
I think the adhesion monster may be back :(

lynnmaryvl---

lots of hugs your way...and if you look at my sig, I have been in the same boat. 4 weeks after adhesion surgery and the pain is back stronger than ever. I am going today @ 1pm to a GYN specialist to see what to do. I am like you, I have had 3 surgeries in a year and I don't want anymore. This last adhesion surgery failed me and only gave me relief for 4 weeks. My doc had to do it open because of 4 previous belly button incisions and the history of the extent and type of adhesions I have had in the past. I am back on antidepressant, and feeling very frustrated, don't know if I will be able to go back to work or will I be disabled with the pain. The percs that my doc gave me aren't even taking the edge off this pain and I almost ended up in the ER last night, but I suffered through. My quality of life at this point *****. I have to have DH or DD help me bathe again because it hurts so bad. I can't drive again, nothing.
  #9  
Unread 11-03-2004, 09:15 AM
Adhesions Back?

As Michelle stated, everyone who deals with the adhesion monstor has to decide their own road. It can certainly be frustrating, no doubt. But in the end, statistics tell us that more surgery creates more adhesions, period. At this point, there are no barriers that have been proven to significantly reduce the recurrence of adhesions and many studies show that once our bodies begin that "overhealing" process of creating adhesions, they become more severe with each surgery. I think we often tend to opt for more surgeries hoping that this time will be the one that takes care of the problem, only to be disappointed that they feel worse than they ever did before. As long as I have good days, I am also taking the route of no more surgeries. When and if I ever do opt for surgery again, it will be with someone who understands the formation of adhesions and specifically works with adhesion prevention techniques in the OR. Unfortunately, there aren't that many of those surgeons out there. Hugs to you.
  #10  
Unread 11-03-2004, 11:06 AM
I think the adhesion monster may be back :(

Panda, your path is the path I am planning on taking. Since I posted a couple of days ago, I have plunged back into exercising the way I feel I need to. I've done very little exercising for 8 weeks now. Monday I walked for 3 miles followed by 30 minutes of hand weights and gentle lunges. Tuesday was an hour of Tae Bo followed by a pretty vigorous step workout. For some reason my adhesion pain feels soooo much better now. Not sure if it's because I'm getting blood to my organs or what. The rest of my body is sore, but that will pass. I hope this lasts & I hope the rest of you start to feel better soon too.
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