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CA 125 meaning CA 125 meaning

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Unread 11-12-2004, 10:40 PM
CA 125 meaning

I am in the pre-opt phase of my hyst which is scheduled for Dec 3rd. I posted something in the pre-op site but thought this area would have more information for me. In Sept. I was given a CA 125 test and my number (as told to me by my Gyn) was 79. She said normal was 35 (I think). A couple of weeks later she gave me the test again and now it was 120, she made an appt for me with a Gyn/Oncologist. With all my other symptons (ovarian mass, fibroids, cysts) he recommended a hyst, which I had no problem with since I've been having heavy bleedings and severe cramps from my first day of my period (9 yrs) to now (51 yrs), except for the years I was on the pill and having my two boys. So I'll be happy when this is all done (I think). He said there's a low chance of ovarian cancer, but there is a chance.

I was reading the CA 125 numbers from others that posted to this site and their numbers are so low (2.1, 3, etc.) which makes my numbers seem quite high

Does anyone think my numbers in the range that would indicate definite cancer and maybe my dr. is just trying to minimize it until he's sure during surgery?

Any information about the CA 125 test and other symptons that would indicate ovarian cancer, would be much appreciated.
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Unread 11-13-2004, 12:14 AM
CA 125 meaning

Hi Dee Dee,
There is no way to know for sure untill you have surgery what is going on.
I was told the same thing as you... a possiblity. BUT that <in my doctor's opinion> he's seen it go either way.

You'll find that there are some women here who had low ca125's and other's much higher.
So no one can really predict... with certainty.

I know this is a scary place to be for you right now... I am truly sorry you are having to do the "wait thing" till surgery. It truly was torture for me to have to wait.

You have come to the right place... the woman here will blow you away with the support, compassion, and wisdom they will give.

Best to you,
xo Donna
Unread 11-13-2004, 04:38 AM
CA 125 meaning

Lady Dee Dee
Welcome to Cancer Concerns. The CA125 test is a not perfect test for ovarian cancer but it is the only cancer marker available at present. The level can be elevated durring menses, any inflamations, fibrioids, and a host of other reasons. The test is more reliable after diagnosis of ovarian cancer to track recurrances. That id why your doctor wisely said there is a chance of cancer.

You are very wise to have a gyn/onc perform the surgery. They are the experts in gynecological surgery and statistically give you the best chance if you indeed do have cancer. But ovarian cancer can only be diagnosed by surgical biopsy. So no one will know for sure until then.

Please continue to ask questions and visit this board. Many of us have been in your shoes and understand how hard it is to wait.

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Unread 11-13-2004, 04:52 AM
CA 125 meaning

Hi DD,

My CA-125 had dropped so low DURING treatment, which means that the chemotherapy was doing it's job. That's what CA-125's are most useful for, to help determine if the treatment is working for you. After surgery, but before my first chemo treatment, my ca-125 was 33. After 1 treatment, it dropped down to 9.7...a good indication that the treatment was working for me. Now that we know how low it went during treatment, we'll watch it every 3 months to see if it STAYS low, meaning that the cancer is not active. If a 'rising trend' develops, then we'll have to re-evaluate my situation because that could indicate that the cancer has recurred.

Best of luck to you. I'm glad a gyn/onco is on your team, just in case. Keep us posted, and continue to question...the ladies here are amazing.

Unread 11-13-2004, 07:02 AM
CA 125 meaning

Hi Lady,

You have been given lots of wonderful truthful information.

I am very glad to hear that an oncologist/gynecologist will be performing your surgery. They are the only true experts in this field and unfortunately the true results come during and after the surgery.

Hang in there.
Unread 11-14-2004, 04:33 AM
CA 125 meaning

Hi Lady Dee Dee,
I echo the ladies responses so far. Good that you have an onc/gyn, and you won't know for sure until after surgery. There can be other reason for the CA-125 to be up.
Best wishes for your surgery to go well.
I'll pray for you.
Unread 11-14-2004, 12:24 PM
CA 125 meaning

Dee Dee,

I just wanted to let you know that my thoughts and prayers are with you. Waiting is the PITS but hopefully you will get some good news after your surgery. We'll be here to support you either way.

Let us know how it goes.

Unread 11-14-2004, 04:32 PM
CA 125 meaning

Mine was 88 when they decided to do the surgery. Even though my doctor said the same thing yours did that she doubted there was any cancer (small cyst on one ovary and large fibroid) she had her partner a gyn/onc at the surgery with her to look at everything they took out and I was fine.

It freaked me out too believe me, but it turned out to just be the fibroid. So try to think positive


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