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I need advice....recurring endo I need advice....recurring endo

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Unread 12-03-2004, 01:51 PM
I need advice....recurring endo

S Endo_chic...

I am so sorry you are going through this...As you have heard from the other ((((sisters)))) there are many of us suffering from Endo / pain post hyst.

I had everything removed in Nov / 00 and I am still suffering from severe ab pain. Approx 8 months after I had the hyst., I had a lap done and quite a bit of active Endo was found. My doc at the time removed as much as she could but had to leave quite a bit behind.

I have been on and off of different forms of HRT throughout all of this...And I can honestly say that I feel better without it. I do worry about bone health, so I am hoping to meet with someone who can work with me on Bio-identical hrt (for some strange reason, where I live there aren't too many specialists in this field).

Please do continue to seek out the answers to your pain. I know the tests and exams are so very painful...But I am praying that the docs will be able to help you.

I have nerve damage in my ab and have been hesitant to have anymore ops, but am thinking that it is time. I have found an excellent Gyn., but unlucky for me - she went on maternity leave a couple of months after our meeting. So I guess I'll be looking at surgery in the spring or summer - depending on her schedule etc. My bladder is also prolapsed, so I'm not sure what will be done (if anything) about that - as it is not severe. I've been in pain management, so putting of surgery has been easier for me then other sisters...

Sadly, there are still many 'unknowns' about Endo - it is truly a monster. Here I am without any ovaries, and yet I still have it. My docs think that perhaps I may have an Ovarian Remnant - so that could explain it...But at the time of my last op when they found Endo - they didn't see one Who knows?!

Sorry to go on and on...It's just that your post hit home for me, and I wanted to let you know that there is another sister out in cyberspace that cares...

Please keep us updated...
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Unread 12-04-2004, 06:43 PM
I need advice....recurring endo

Just wonderimg what you may have found out.
I am praying for you.
Unread 12-05-2004, 04:37 PM
I went for my ultrasound......

Hello sisters,

I went for my ultrasound on Friday & the technician told me that my ovary is enlarged. I actually saw it on the screen and was like "OMG!"

I don't know what size you would call it, but it is bigger than normal!!

I was also told that the texture of your ovary should all be the same, but mine is not. Some of it showed up as grey, some white & I had a spot of black on there as well.

I was told that the black is probably a chocolate cyst that is either starting to form or that was bigger and reptured.

I am not sure how long it will take for me to hear from my doctor, but I am sure it will be in the next few days and I'm trying to prepare myself for the cold hard fact that I am probably facing aother surgery.

My biggest fear is that they have always said that I am too young to have my ovary removed, but surely they will remove it this time!!??!!??

Has anyone else experienced this or know anyone who has??

Thanks so much & I will let you know what I find out from the doctor.

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Unread 12-05-2004, 06:14 PM
I need advice....recurring endo

EndoChic, I am sorry about all of this. You will see women on this site who have had both ovaries removed at a young age, even younger than you. I guess age to have them removed is really relative. If your quality of life improves if they are taken, who is to say you are too young? I will be looking for your update.
Big Hugs and blessings,
Unread 12-07-2004, 09:48 AM
I need advice....recurring endo

i have been there and done that but am 7 yrs older than you.

i will send you an email after lunch and tell you my story, also you need to do research, even after everything is out, endo can still come back!!!

Unread 12-10-2004, 10:16 PM
I heard from my doctor about my results

My doctor called today & said that the spot on my ovary is a cyst. He wants me to wait 6-8 weeks and then have the sonograms done again, to see if the cyst will go away on its own.

Do these things normally go away by themselves??

I'll keep you posted.
Unread 12-11-2004, 05:06 PM
I need advice....recurring endo

Hi again, it depends on the kind of cyst. If It is an endometrioma ("chocolate" or blood filled) cyst, no it won't. If it is a cyclic, fluid filled cyst it very well could.
Unread 12-13-2004, 06:18 AM
I need advice....recurring endo

As Carrie posted if it is a normal functional or cyclical cyst, it might and should go away.

If it is a non functional, solid or endometrioma cyst, then it will not. I had a large on my ultrasound, in 3 weeks time it went down a centimeter only to reveal more behind it.

He is wise to order another test in a few weeks to monitor it.

Please keep us posted, I know from my own experience how painful they can be, especially if they rupture!!!!



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