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I was just diagnosed with Endometrial Cancer I was just diagnosed with Endometrial Cancer

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  #1  
Unread 11-29-2004, 05:50 PM
I was just diagnosed with Endometrial Cancer

My family doctor called me today and said that my biopsy was positive and that I have endometrial cancer. She made an appointment for me with a gynecologist for next week. She said it was an early diagnosis and I most likely would need an abdominal hysterectomy but no radiation or other treatment.

So far I have only told my husband. Tonight I will call my daughter and my sister.

Is it routine to only see a regular gynecologist for this and not an oncologist? My doctor said that an oncologist would only be called it if treatment beyond the hysterectomy is required. I don't know anything about this.
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  #2  
Unread 11-29-2004, 06:10 PM
I was in your place

Almost 2 years now. I got the same call. My gyn called and told me my biopsy results came back as adenocarcinoma, endometrial type, grade 1. She felt that my results were pretty conclusive as early (grade 1) and that the area in the uterus she biopsied was high up. She said she would be happy to refer me to a gyn/onc or, I could have her do the surgery with the gyn/onc on standby. I elected to do that. As it turned out, it was staged as 1a, grade 1. The gyn/onc was there if need be. I think now that I know what all the others have found out, I'd go to the gyn/onc to start with. For me, I think it was ok that I did it the way I did. I had a total hyst with a vertical incision. All the washings came back negative and the surrounding area was checked very well for any possible cancers. I have since visited a gyn/onc for followup. I just felt more comfortable with someone who knew what to watch for. My followup is pretty simple. I go every 6 months now. Everyone is pretty comfortable with the plan and I feel lucky to have come away as easy as I did. The surgery wasn't a cake walk, but it's certainly doable and if that is all that it took, cool. You'll hear from others, but I think with the cancer dx. I'd say be safe and smart and go to the gyn/onc. That way, when they do the surgery, you get the best and you won't have to worry about having to go back in later if the final path shows something they weren't expecting. I hope that you have the same great outcome that I've had. We got lucky!
  #3  
Unread 11-29-2004, 07:11 PM
I was just diagnosed with Endometrial Cancer

Danaka,
Endometrial cancer is highly curable but I would skip the gynocologist and go to a gynocological oncologist. He is the expert in pelvic cancer surgeries. He will know what to look for, what to sample, what should be biopsied, etc. If you know that you have cancer, or even suspect it, go with the expert in gynocological cancer surgery, a gynocological oncologist.

Hugs and comfort,
Janie
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  #4  
Unread 11-29-2004, 07:37 PM
I was just diagnosed with Endometrial Cancer

Josie,

sorry to hear of your diagnosis but glad to hear they think they caught it early.

I'd have to agree with the others....better to have a gynecological oncologist do the surgery. They know exactly what to look for and exactly how to get the most amount of anything malignant out. After going thru a debulking TAH/BSO this June I can't imagine anyone BUT my gyn/onco doing it!

Good luck to you, keep us posted!

K9
  #5  
Unread 11-29-2004, 08:04 PM
I was just diagnosed with Endometrial Cancer

Insist on at least a consult with an onc/gyn....I agree...skip the time it will take to visit with the gyn....I would also want an onc/gyn to do the surgery or at the very least assist in case lymphnode samplings need to be taken. I was dx. with an early stage 1a endometrial ca..no further treatment needed....just frequent check ups.The growth was high up in the uterus, encapsulated, totally superficial with no uterine invasion....I was so grateful to my gyn who insisted that I see an onc/gyn and have him do the surgery.....Lymphnode sampling and washings are very very important for the safety net and to get an accurate staging......I dont think reg. gyn's do lymphnode sampling. My gyn also scheduled a ct scan, chest xrays, colonoscopy, blood work all within two days of my d and c.....I saw the onc/gyn 5 days later and had my hyst the following Saturday. It all moved very quickly. If you have any questions please feel free to ask.....
But please consider seeing an onc/gyn.....
  #6  
Unread 11-30-2004, 04:06 AM
I was just diagnosed with Endometrial Cancer

Hi Danaka,

Welcome to Hystersisters but sorry for the reason you are here. I too got the call from my Gyn just about this time last year that my biopsy too was positive. My Gyn had already consulted who was to be my GynOnc before he even called me, and they had already planned and scheduled my pre op testing which is part of the staging process and my surgery. How it went for me, my Gyn and his partner did my surgery, but my GynOnc and the pathologist came in during the procedure and provided their expertise. I was pretty comfortable with this process, since I had my surgery at Womens and Infants Hospital which is a specialty teaching ObGyn hospital with an exceptional oncology dept, and all my MDs were in agreement with this plan. My post op care is alternating visits with my Gyn and GynOnc every 3 months for two years, then every 6 months for the next two, then hopefully I will progress to yearly. I personally think at the minimum, you should have some input from a GynOnc before your surgery to make sure no stone is left unturned before you head into and out of the operating room.

Wish you much success with your journey with this disease, and if I can be of any help along the way don't hesitate to ask.
  #7  
Unread 11-30-2004, 05:50 AM
I was just diagnosed with Endometrial Cancer

If I were taking my car in for major repairs I would want the mechanic with the most expertise so that the job was done right the first time and I didn't have unexpected problems with the car down the road.

Why would I do anything less when my life and well-being were at stake? If you know you have a gynecologic cancer, why would you choose to have someone operate on you who does not have several extra years of specialized training in treating women with gynecologic cancers? Cancer specialists deal with cancer on a daily basis and have seen and dealt with just about any scenario that might develop during surgery. Gynecologists deal with many other issues and in addition to lacking specialized training, lack the level of experience of gyn-oncs in this area as well.

I was diagnosed with endometrial cancer in April 1999. I had a gynecologic oncologist perform my surgery (not merely on call, but the one doing the operation). As it turns out, it wasn't until I was on the operating table that my gyn-onc determined that my cancer was much more advanced than pre-surgical testing indicated. As a result, I needed more extensive surgery and he got the job done right the first time.

Need I say anything more?

Good luck and good health to you,

MoeKay
  #8  
Unread 11-30-2004, 06:06 AM
I was just diagnosed with Endometrial Cancer

Danaka: I agree with all the other ladies here -- go to a gyn/onc! They are the specialists and have had much more experience.

I was diagnosed just over a year ago with what looked like a very early endometrial cancer during a hysteroscopy. My gyn, however, immediately referred me and 2 days later I was in the office of the gyn/onc and a week later had my surgery. I knew I was in the hands of someone with lots of experience and that made a big difference. I was comfortable to know that if something unexpected showed up, he would have the expertise to do the job right the first time. No one should have to have an additional surgery to get done what should have been done the first time. If you do just a little bit of reading here you will see several ladies who have had to have a second surgery shortly after the first because of a wrong choice of who did the first surgery.

If it is indeed such an early cancer, the surgery is the treatment with followup every 3 months. As others, my gyn and my gyn/onc alternate seeing me just to make sure that I get the best followup. Even at that stage, the gyn/onc has the best experience in detecting early stages of recurrences. And believe it or not, the sense of touch is very important there -- the most effective screen is the pelvic exam and the gyn/onc has the most experience there too. You want to make sure that you have that kind of experience on your side.

Don't consider it's an insult to your gyn to go to a gyn/onc. It's your life that is important.

Linda
  #9  
Unread 11-30-2004, 07:24 AM
I was just diagnosed with Endometrial Cancer

Dear Danaka,

My regular gyn. is the one who initially discovered my cancer. He ran all the tests consulted with several pathologists including ones at MD Anderson in Houston. He also consulted with a gyn/onc that he knows at UTMB in Galveston. After each one of these consults, my gyn discussed with me everything. He is also the one that told me that it is best to get a second opinion from a gyn/onc....just in case. My reg. gyn said that he does maybe one RAH per year and a gyn/onc does many, many more per year. Within a week of diagnosis, I had an appointment with a gyn/onc. After RAH/BSO it was determined to be endocervical adenocarcinoma, stage 1b.

I guess what I am trying to say is.....please get a second opinion from a gyn/onc and it would really be better if a gyn/onc does the surgery. Only in surgery can they really know what the staging of the cancer is.

Hugs,

Karen
  #10  
Unread 11-30-2004, 11:16 AM
Gyn vs. Gyn/Onc

My gyn wanted to do the surgery with an oncologist standing by in the operating room. I chose to go and get another opinion from a gyn/onc. I ultimately chose to do it with the gyn/onc, which did not please the gyn, who felt that she could do it.

Tough! I had to do the best for me, and I do not regret my decision. I have to look for a new gyn, but that's a small price to be paid for better health care.

Adele
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