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Has anyone had this happen? Has anyone had this happen?

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Unread 01-06-2001, 09:32 PM
Has anyone had this happen?

Does anyone know of anybody this has happened to? I had a radical abdominal hyst 2 years ago. When I went for my PAP test 18 months later, it came back showing mild dysplasia. I had a colposcopy done, and my doctor found nothing there, yet he still wanted me to come back 4 months later for a repeat PAP. Ever since, I've been stressing out terribly. The same questions keep going over and over in my mind: What is more reliable? The PAP, or the colpo? And if truly there was nothing he missed, then why on earth does he still want me to come back in 4 months, instead of a year? I'm very confused and very upset and don't know what to do or think. I've heard a lot about false negative results on a PAP, but with the new Thin Prep PAP smears, how could it be possible for a false positve? Before my hyst, I had mild dysplasia on my cervix, along with other problems, like fibroid tumors with endo and an ovarian cyst, which turned out benign.

I've researched so much and keep coming up with nothing. Anybody had this happen or know of anybody that this has happened to? I'm really curious to find out, because I can't believe that the PAP was wrong and I'm worried that my doctor missed something. In other words, what is more reliable, the PAP, or the colpo? Anyone know? I will appreciate any feedback. I was due to have the repeat PAP done the 3rd of this month, but I postponed it indefinitely, because I had to have emergency surgery done on my left eye 2 days before Christmas and still recovering from that, because of a retinal tear; and the thought of something as mildly invasive as a PAP - just forget it for now! And then who knows, more surgery (maybe?) - most probably laser, if something does come up this time. Could it be that the PAP picked something up, but because the lesion was so small that it couldn't yet be seen with the colposcope? I know that dysplasia is not cancer, but boy what a pain in the you know where - and what a major disappointment, after going through so much pain getting rid of everything that I thought was diseased and now it's on the last organ I still own - the vaginal wall. What's next? What's left? I'm learning by reading some of these threads that this scourge could be endless. I'm 49 years old. Sorry for ranting, but if anyone can offer some encouragement or advice, I will be most appreciateive.

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Unread 01-07-2001, 08:14 AM
Has anyone had this happen?

I have also heard that you can't rely on the paps too much either. Have you questioned your doc about this new type of pap? I am wondering what the chances of a false positive would be? It is possible that he wanted a second pap to see if the first one was incorrect.Considering that your doc didn't see anything, I would venture to say that he feels pretty confident, but is being on the safe side by having you return in 4 months. Has this doc been in tune with things in the past, or is there question in his opinions? Please let us know how this turns out.
I can't imagine how much stress you are under with your eye surgery and gyn problems. I will keep you in my prayers! I hope that things begin to come together for you really soon! Take care, and please, if you are really worried...call and speak to your doctor! He is the best one to tell you what exactly is in question.
Unread 01-15-2001, 01:21 AM
Has anyone had this happen?

Hi Alexa, I had my hyster on Aug. 28 last year for CIN3 or severe dysplasia. I have to have paps done about every 3 months. I had my first pap done about 6 weeks ago and there were still cells there in the vaginal wall, my gyno did a colposcopy and biopsy to find out more information. I have to have laser done to get rid of the cells which are definately not cancerous but will progress to cancer if left untreated. I was angry when my results came back positive as I thought that I had been through all that pain of the op for nothing. I also stressed about losing my vagina. I think a pap is done first and then a colposcopy if any more info is needed. Once you have had dysplasia you need to have regular paps done , usually every 3 months in the first year. I hope this helps you and please email me if you wish xx

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