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Pain Since Our Hysterectomies Pain Since Our Hysterectomies

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  #1  
Unread 12-12-2004, 09:46 PM
Pain Since Our Hysterectomies

Countless times I have read from hysterectomy patients on this website that they suffer from some type of pain since there surgery. It absolutely outrages me that the majority of Doctors (not all of them) tell us that our aftermath pain has nothing to do with our hysterectomies. We leave their offices suffering from pain (with no relief) and feeling so defeated.

I so wish I had the funding to conduct a study on pain, post hysterectomy, and have the medical evidence that proves we are right and that the pain is real and is due to hormonal shifts in our bodies. So that those of us who suffer from pain could feel like we are not crazy, neurotic, issolated and left to suffer. And, we could finally get some relief immediately and not be inaccurately labled.

Can you tell I am having one of those painful days myself. I just want all of you women to know, those of you that suffer from pain since your hysterectomy, that you are not alone. I am 34 years old and now have severe chronic pain in my joints and muscles and have to take strong pain medication as a result. I have had to go through countless Doctors who all believe I am a hypochondriac or neurotic and have labled me a "drug seeker" until I found an educated and compassionist Pain Specialist who now helps me manage my chronic pain. Prior to my endometriosis and hysterectomy, I was healthy as a horse and not on one single medication other than the birth control pill.

But, I will forever be labeled a "drug seeker" in many hospital charts because I went to the emergency rooms bawling my eyes out asking for pain relief after my hysterectomy. I feel so bad for the woman who share in my suffering and I want you to know that you are NOT alone.

If you suffer from chronic pain since your hsyterectomy, or even before that, go to a Pain Specialist who specializes in pain and stop wasting your time on a OBGYN or Internest. Honestly, they do not specialize in pain and do NOT have the latest research on pain and how to manage it.

Obviously this is my own personal recommendation, many of you may disagree; we are all allowed to our own opinions. But this is what I have found that works for me. I have found that a Pain Specialist has been the answer to help me learn how to manage my multi-facted pain that has risen since my hysterectomy.

Best wishes to you all!
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  #2  
Unread 12-13-2004, 02:10 AM
Pain Since Our Hysterectomies

Sounds like you could have fibromyalgia. I have this and I believe it was started by having a c-section 6 years ago. Fibromyalgia frequently starts after some sort of body trauma, like surgery or a car accident. Read up on it and see if you have the tender points, then you need to see a rheumatologist, not a gynaecologist!!
HTH
Kate
  #3  
Unread 12-13-2004, 06:13 AM
Pain Since Our Hysterectomies

Here is another possibility - you may be suffering a side effect from a Cipro or Cipro-related antibiotic given to you during surgery.

I had a severe reaction to Leviquin a few months prior to my surgery. I made sure to tell my surgeon about it. He told me it was a good thing that I did, since they routinely give you an antibiotic in your IV during surgery, and Cipro is the drug of choice. I received Penicillin instead.
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  #4  
Unread 12-13-2004, 06:33 AM
Wow thanks

Thanks for telling us about that chronic pain in your joints afterwards, and then about the possibility of fibromyalgia.

I think I remember reading in the Hormone articles too that one symptom for too little or too much is joint pain.

My DH has had chronic joint pain-and he didn't have a hysterectomy ! He found a lot of relief from vitamin and mineral supplements that his doctor recommended.

I have had a lot more joint pain since my surgery, and I recently added testosterone cream to the mix (for other reasons). It seems to be helping the joint pain-at least I am not waking up all through the night because everything hurts.

We really have to be persistent and find the right docs to listen. Some will never change their views-they think they know our bodies without even listening to us.

Here's to more healing-and dealing with the aftermath of our surgeries!
  #5  
Unread 12-13-2004, 07:38 AM
Pain Since Our Hysterectomies

Templezoo
Thank you for posting this. Your words could have been written by me. We are the same age, and seem to be experiencing a similar thing.

I too have severe pain on a daily basis. You may have seen some of my posts, or my journal. I've been to doc after doc, and nobody seems to know what is wrong with me. I suffer deep muscle pain, some joint pain, cognitive problems (I don't remember things very well) and disabling fatigue. I was in pain prior to my hyst as well, but my gyn figured it was all related to the endo and adenomyosis.

I now am waiting for an appt with a Physical medicine doc....who specializes in Fibromyalgia and Chronic Myofascial pain. These are likely what I am suffering from,a s I have most of the symptoms.

I do know what it is like to not be heard. I too am looked at as a "drug seeker", even though I only take what is necessary to dull the pain enough for me to work. I'm now on Percocet, but am finding it is losing its effectiveness.

I do hope that I can also be referred to a pain management specialist. I'm willing to try anything at this point, just to have a couple of pain free hours.

Hang in there....and pm if you're looking to chat.

s
Tam
  #6  
Unread 12-13-2004, 11:43 AM
Pain Since Our Hysterectomies

I am happy to hear that I am not going crazy (although sad that we have to go through this pain). Every and I mean every joint in my body hurts so bad. I had my TVH in May and lapro for adhesion in Oct and have been in so much pain ever since. Not to mention the left sided pain that I still have even after removal of the adhesions (colon attached to the bowel, now problems found during lap with my colon). I have gone to the doctors about the joint pain and was told it was just muscle spasms. How muscle spasms can cause my hands to swell and my knuckles to turn bright red is beyond me (and that is just one noticable symptom). I am so sick and tired of doctors ignoring me or not taking me seriously. I am going to a Gastro dr in January about my colon maybe he can give me some answers. I haven't really worked since just before my hyst and financially things are really tight but how can I work when I can just barely make it out of bed in the morning.
Thanks for letting me vent.
Big group hug for all of us out there that are suffering!!

goldensmom
TVH (kept both ovaries) May 26, 2004
  #7  
Unread 12-13-2004, 01:09 PM
Pain Since Our Hysterectomies

I believe it all goes back to the ovaries. They are IMPORTANT organs in the endocrine system yet the gynecologist are routinely tossing them without ever knowing their total function in our overall health. Even for women who had problems before hysterectomy, it's my belief that much of the pain comes from endocrine imbalance. The endocrine system produces the chemicals (hormones) that run every single part of our body and without these chemicals we would die. The main endocrine organs are the pituitary, thyroid, adrenal, pineal (kidneys) and OVARIES/testes.

In the first year and a half after my TAH/BSO I had no hormone therapy at all and I nearly died. Besides all the problems this caused, I was also wracked with pain and like most women, got the "psycho" label. Finally, I saw a top reproductive endocrinologist who said, "Of course you need hormones!" After my very first treatment I got much relief which just convinces me that this is all hormone (chemical) related.

Remember, when I say "hormones" it doesn't just mean estrogen. The ovaries produce many hormones and it is a MYTH that the ovaries cease to function at menopause. They continue to produce chemicals (hormones) until we die, no matter how old.

The NHT (natural hormone therapy) that seems to help my pain the most are the testosterone and DHEA.

Think about it... fibromyalgia is mainly a "women's" disease and what do men have more of than women? Testosterone. Keeping in mind that women make testosterone too but that the levels of testosterone in women are rarely checked and then, it's usually done with a blood test which is NOT accurate at all. Ask to have your testosterone checked in your SALIVA, not blood.

Also, believe it or not, Cod Liver Oil tablets. Plain old cod liver oil, not the fish oil mixes. This has been PROVEN to reduce inflammation. If your pain is caused by inflammation you should feel some relief within a few weeks. 85% of the patients in the research study on Cod Liver Oil showed a marked improvement in the inflammation markers in their blood within 3 weeks. Nearly all the patients reported feeling better. (We don't hear about this treatment because there is no money in Cod Liver Oil for the drug companies.)

I have many factors for my various pain (nerve damage too) but occasionally I will forget or run out of my NHT or Cod Liver Oil tablets and when I do, the pain levels always rise. It's working for me and I hope that this might bring some relief to some of you also.

Gentle hugs to all,
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