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did anyone have hysterectomy for fibroids did anyone have hysterectomy for fibroids

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  #21  
Unread 12-20-2004, 11:24 AM
did anyone have hysterectomy for fibroids

jaaj
Maybe I'm just strange. I don't like the idea of replacing one problem with multi new problems. That is what I feel I have done with a hysterectomery.
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  #22  
Unread 12-20-2004, 11:41 AM
did anyone have hysterectomy for fibroids

missc's thread read "did anyone have hysterectomy for fibroids". I am contributing my experience and feelings to the topic of the thread.
  #23  
Unread 12-20-2004, 01:17 PM
thanks to you all

You all are so great with your honesty and feelings.It is good to know I am not alone.I do realize that for some it is a must.It just honkerblonkes me off that doctors don't listen to anything you have to say and do what they want.I could never be a doctor if all I cared about was my wallet.Not all are like that but a lot of them are and it is ashame.
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  #24  
Unread 12-20-2004, 01:43 PM
My 2 cents

I also had fibroids. I had never even heard of them before. I was like...I have what??? I did do my research. I did not choose alternatives..because of my age. I had never heard anything good about menopause. Although, with my surgery. I was put into surgical menopause. I guess I am one of the lucky ones. I am happy. I don't think I was mis-informed. My son is 21. My child bearing days are over. I now have my quality of life back. I hope and pray for all future sisters that life will be good to them and their suffering be over. Good luck to you all and Merry Christmas!! Sincerely, Sunshine 48
  #25  
Unread 12-20-2004, 07:51 PM
given time to think

I think you are exactly right, it isn't always emergency surgery with fibroids. It would be great if ALL the gyn's would tell us all the options, then tell us to research (guide us to Hystersisters ) and call them back in two or three months after we have had time to think about it very carefully.

I actually had two gyn's and one GP that did that. They all told me all of the options, kinds of surgery and that I could wait as long as I needed to-maybe if I waited long enough menopause would take over the job.

They all could learn from that. They even all asked me if I was planning on having any more children and I was in my 50's with a 24 year old tubal ligation in place.

I appreciated being treated like an adult, like a partner in the process, and being told all the possible side effects from all the options.

Turns out I had 8 golf ball sized fibroids, with the enlarged uterus, but the biggest problem that happened by waiting was that everything prolapsed.

When we don't feel like we are active partners in the process it would be normal to feel robbed.

Here's to more woman power for all-and knowing our bodies well enough to make the best decisions we can.
  #26  
Unread 12-20-2004, 08:34 PM
did anyone have hysterectomy for fibroids

I agree that the experiences mentionned in this thread should serve to remind each and everyone of us of the importance of doing our research before agreeing to any surgery.

I feel I'm fortunate in this way: my fibroid was first diagnosed in December 1998 but I only had my hyst in December 2000. Those two years were spent, in great part, educating myself about my options where the fibroid was concerned and in coming to terms with the fact that a hyst was most likely looming in my future.

Even though I first starting having problems in late March 1997, it was only in September 1998, when the bleeding had been compounded with unbelievable mood swings, unexplained weight gain (I'd gained over 30 lbs in 3 months, without doing anything to warrant this), joint pains, pains in my right hip and absolutely no libido. Tests, after tests, including blood work and a transvaginal ultrasound, didn't reveal anything.

My GYN decided to try a course of progesterone, in the hopes of tricking my system back to a normal menstrual system. I ended up in the ER... and having an emergency D&C with a hysteroscopy. That's when the fibroid, that was then very small, was diagnosed.

At that time, I was given two choices: do nothing and hope that I'd be going into menopause soon and that the menopause would bring a reduction of the symptoms.. or a hysterectomy. Of course, since I was then 42, my OB/GYN did tell me that menopause could be a long way off...

Since, back then, I was not in a position to take 6 weeks off of work to take time for hyst recovery, I opted to do nothing. Every summer, I'd revisit this decision and, some days, things were so bad that I would give serious thought to going ahead with the hyst. But I didn't have payed sick leave back then and we couldn't rely on DH's salary. So I waited. And I did research. And all of the research concurred that a hyst was the only definitive way of dealing with a fibroids. This was corroborated by my MIL who'd had a fibroid removed only to end up with a hyst a year later: the fibroids grew back, with a vengence!!!

When, at the end of the summer of 2000, I felt a bulge at the entrance of my vagina, that turned out to be a rectocele, we knew that the time for a hyst had finally come. The rectocele was result of the combination of delivering two large babies vaginally and carrying the now huge fibroid around for 4 years.

Even though, originally, I was to have a TAH and we'd decided to remove my ovaries, in the end, I ended up having a TVH and we decided to keep both of my ovaries, should they be found to be healthy. The change in plan came because I'd been reading and posting, a lot, on Hyster Sisters and had seen that others were having TVH's for fibroids and that our ovaries did a lot more for us that I'd assumed.

By the time I had my hyst, my fibroid had grown to be the size of a 5 month pregnancy, was causing a lot of pain, was causing mood swings and had totally destroyed my libido. Even though, by then, UAE's were becoming more and more popular, I was not ready to try an alternative that had only been performed once in my area. And I figured that, with the rectocele, the hyst was the only solution.

Since I was comfortable with my decision and it was MY decision, taken on my doctor's advice, I was also feeling confident when I went into the OR. I have no regrets, despite having some unforeseen complications.

I think that it's very important to be comfortable with your doctor, to be comfortable with your decision and, ultimately, to know that you've done the right thing for you. That's why second opinions are so important. I did have one, when I saw a GP when I felt the bulge at the entrance of the vagina. He diagnosed the rectocele and, when he felt the huge fibroid, corroborated the need for a hyst. Knowing this brought another level of comfort.

I think that a follow up with your doctor, (((missc)))), might be a good idea: it would be a way of clearing why the hyst was recommended in such a earnest and why other options were not attempted. It may help shed some light on just why things happened the way they did.
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