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I don't know where to start.... I don't know where to start....

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Unread 12-29-2004, 09:26 AM
I don't know where to start....

Hi Sisters,
Guess i'll start with TAH/BSO Sept. 10, 2004. I am sooooooo sad, I still can't wear my regular clothes, cross my legs, cuz of the pain I have at and around my pubic area and groin !! Went to dr. and he doesn't understand why I'm having the pain there cuz he said that none of my surgery was done in that area...Even when I went for 6 week check-up this is the area that I said was bothering me...he said give it time. Well, it is now 16 weeks and I still have pain...My dr. is now having me go to a "pain clinic" I have went once and they gave me these trigger point injection...yep right at the point of my pain...but they only work for 2-24 hours...they are saying that if they can get these nerves to "reset" quit firing/calm down/whatever that it should help...but so far it hasn't...only had a few hours of relief ! ! ! But I guess I have to give this dr. more time to work this out. I am just soooooooooo depressed and sad most all the time and this is totally not me...all I do is cry and the holidays really sucked ! I have posted b4 about this area of pain cuz it is out of the normal area of pain for most...By the way I did try to wear jeans, only had them on for 4 hours and did I pay, after that I had a solid week of sharp shooting pain, radiating from that spot. At this point I wish I didn't have this surgery, I feel that the pain I was having from the fibros/cysts/endo/ando were not as bad as this pain is. I try telling myself that things could be worse, but its so hard when I have felt this way for 110 days of this crazy pain ! ! ! Heres hoping that someone has been where I am and can give me some hope cuz they were able to get this issue fixed.

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Unread 12-29-2004, 09:51 AM
I don't know where to start....


Have you tried any other pain relief methods?

I'm not an expert, but very educated.....

What about alternative medicine?

Are you open to acupuncture??

You may want to research you options.

I had excruciating pain in my leg/hip about 1 week into recovery.

I had acupuncture last week and it really helped A LOT.

Just some food for thought for you. I am very sorry that you are in pain.
Please take care-keep us posted.

Marcia (my own opinions)
Unread 12-29-2004, 10:11 AM
I don't know where to start....

Has anyone thought of checking out your bladder? That could be where the pain is coming from.
I do pray that you find relief soon and just know that you are in the right place for comfort and support.
We are here for you 24/7, I just wish that there was something I could really do for you.
Maybe go to your GP and have him/her take a lookie instead of the GYN..get a different perspective...just a thought, but maybe worth looking into.
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Unread 12-29-2004, 10:11 AM
I don't know where to start....

Did they give you a diagnosis of what this pain is? Will it go away with the treatments? Where do they give you the shots?

My heart goes out to you because I am in a similar situation. Been in pain sincy hyst on 9/7/04. Lots of drs, lots of tests.

I pray that this treatment will help the pain go away. I will keep you in my prayers.
Unread 12-29-2004, 10:57 AM
I don't know where to start....


I have heard of others in the Road Less Travel talk about trigger point injections and from what I remeber from there post they said it can take a while before they help. That when you first start it may only help for a short period of time, but as you keep having it done it starts helping for a longer period of time. (I don't have any experiance with them, that's just what I have read.)

I also agree with checking your bladder & going to GP... When my GYN gave up on me last year 4 months post op while I was still in pain, I went to my GP who got me the help I needed.

Sending lots of Hugs & Prayers your way...

Unread 12-29-2004, 11:03 AM
I don't know where to start....

I am really sorry that you are feeling this pain. The only things I can offer are:

1. You need to be assertive and even "demanding" when dealing with doctors and medical people about pain, etc. About eight years ago, I kept having cramps and pain and bleeding. My doctor, on several office visits, insisted that I was just "entering" menopause, and this was causing the problems. Finally, I sat down in her office and I said, "Look, I have a serious problem (other than menopause) and we need to find a solution for it." I basically refused to "go away" when she was just trying to blow me off. It turned out to be uterine polyps, and the pain would never have stopped without surgery. You may need to see a specialist or another doctor, but stick to your guns. Don't let them give up until your pain is gone.

2. Pain, by itself, is not the problem. The problem is whatever is causing the pain. Getting rid of the pain, by itself, is not the solution. You need to get resolve the problem that is causing the pain.

3. Pain is hardly ever "just in your head", though we are often told this, as women. Where there is pain, there is usually a physical problem.

Unread 12-30-2004, 11:41 PM
I don't know where to start....

Zoo - I totally empathize. I am in much more pain now than I was before the surgery. My doctor has said he has no idea why and I don't feel like going to a million different doctors here so I'm going to the Mayo Clinic to see if they will search out and find my problem or problems. It may be that pain management, acupuncture, or hypnosis is the answer, but I want to make sure before I go that route. There is a Mayo Clinic in Minnesota - I'm not too good at distances in the midwest, but maybe that's not too far from you? B.
Unread 12-31-2004, 07:36 AM
I don't know where to start....

Hi Zoo,
Something triggered in me when i read this. Ask your doctor about swelling hitting those nerves... My GP explained to me how the nerves run, and I will try to explain...The nerves for the pelvis run along the uterus. So it is good you have sensation because sometimes these nerves can be severed and then you dont feel anything. However, that being said, if there is a clot, or swelling pressing on these nerves, it can cause hypersensitivity in the nerve paths and that could be causing your pain. I wish I could tell you how to fix it. In my case it was my clitoris, and I was put on Vagifem and told that DH has to just keep using this portion of my body to desensitize it.

Did you see your GP or your Gyn? Apparently Gyns are notorious for brushing problems under the carpet and not admitting that anything like that could have happened. At least thats what I was told, and to be honest, mine is pretty good at that!! So ask about either swellling hitting those nerve pathways, or blood clots that just might be pushing on them...You never know.

Unread 01-01-2005, 07:15 AM
I don't know where to start....

Did you have any bladder repair with your hyster ? I did and the dr told me that the pain I was having was from them pulling my bladder up and back in to a different place. I suffered alot with the pain in my groin and my gyn didn't know why I was in so much pain so when I went to the urologist that did my bladder surgery with my hyster told me what was going on and told me that all the swelling was causing my pain from the lifting of my bladder hope you feel better real soon .

Linda 46 yr old TAH/bso with bladder susp fibroids adeno ovarion cysts on both ovaries excessive bleeding
Unread 01-01-2005, 09:39 AM
I don't know where to start....

All of you sisters, you are just wonderful...Ok this is where I am at...I didn't have bladder repair, Dr. did say that if he had done that, that could explain pain there, from possibly putting a clamp there...but no repair. I went to this pain Dr. again thursday and this time he gave me a shots of steriods at the point of my pain and gave me this patches of lidocane 5% to put on the area of pain. This Dr. is still thinking that the pain is more of a surface pain...not something deep with-in...like under my pubic bone. I am a thin person too, so there isn't much between pubic bone and surface, so the nerve endings that are there don't have much cushion between outer and inner. (if that makes sense)He is also having me take gabitril 4% which is a drug that is suppose to help with nerves re-set/make them send the "right" message. Pain dr. thinks that if he can get this nerve(s) to chill/calm/reset this is what is causing my pain. Today it does feel different, pain is still there but it is different...better?!?!? kinda. So, this does give me hope...this pain dr. is one of the best from what other people have told me. I thank you all from the bottom of my heart ! ! ! for your advice, thoughts and prayers...and I will not stop trying till I get rid of this pain ! ! Maybe this will be a truely "Happy New Year" THANK YOU ALL AGAIN...I truely feel blessed to have all the sisters here ! ! !

Be safe and take care,

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