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Hurting again!! I can't take this anymore.. Hurting again!! I can't take this anymore..

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  #11  
Unread 01-06-2005, 05:51 PM
Hurting again!! I can't take this anymore..

Welcome to the "my endo is back after a hyst" club... there are many members. You really need to have an excision if you can find a doctor proficient in doing excisions. The problem with having a hyst for endo is only about 5% of women who have endo actually have it only on their reproductive organs. That means 95% of us with endo a hyst will not work for.
The only way to get rid of endo is to have it all cut out. Sometimes like in my case, and possibly yours the adhesions are too bad to see all the endo and remove it.
I am sorry this is ahpping to you, but I am right there beside you. Year before last I had 4 surgeries in 5 months. So, I know all too well how you are feeling.
The diareah may be caused from bowel endo, I know I get taht as well sometimes.
I am living on percoset, until my next surgery. Just know you are no alone, as there are many others who are fighting this beast.

Carrie
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  #12  
Unread 01-07-2005, 09:48 AM
Hurting again!! I can't take this anymore..

add another one to the club!!!

I had hyst in jul of 2003, in april of 2004 i had remaining ovary removed because of multiple endometrioma cysts.

now 9 months later i am having pain again, its either more endo or adhesions. its not too bad yet so i am not doing anything about it at this time as i have lots going on at home right now.

the stats are that 4-5% of women with endo will have it return after hyst and its hard being induced into surgical menopause and not be able to take anything for the meno symptoms.

both times when i was in surgery i had adhesions and endo so bad that all my stuff was stuck together in there, on the bladder and on the colon/bowels, i still suffer with ibs symptoms now and know its not ibs, its the endo/adhesions.

you are not alone and i wish you the best, i wish all of us the best!!!!



jody
  #13  
Unread 01-07-2005, 10:18 AM
Hurting again!! I can't take this anymore..

  Quote:
Originally posted by jrothhaar
add another one to the club!!!

the stats are that 4-5% of women with endo will have it return
Actually it is far higher! Since in only about 5% of women is it actually confined to the reproductive organs. With excision surgery done by a specialist, return rate is about 20%. Far lower than the return rate with a hyst. The "cure" rate with a hyst is actually very low 20-30% or less.
http://www.drcook.com/adca4.html

Carrie
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  #14  
Unread 01-20-2005, 12:57 PM
Hurting again!! I can't take this anymore..

I had my hyst 2/20/03 and another surgery 6/03 and another 8/03 due to a lump above my incision. The drs had no clue what to do so the surgery in june 03 she removed a large mass of endo and in aug she decided that my body wasn't healing correctly so they opened me up (they wanted me to heal from the inside out instead of from outside in) and I (well since my mom's a nurse she did this for me) had to clean it everyday and keep it pack w/ gauze until it healed. It took about 3 or 4 months to heal completely. Last summer the lump reappeared and I thought is was an incisional hernia - it wasn't. Now the lump is back and I had a CT SCAN yesterday and the only thing my dr said was that it's inflamed and gave me Cipro(antibiotic) and told me to take that and ibuprofen for inflamation.
If the pain keeps on or gets worse I'm getting a 2nd opinion, I'm sick of this stuff too and feel for you.

It's soooooo nice to know that there are others in the "endo after hysterectomy club" too!!!!! It's VERY COMFORTING knowing you're not alone!!!!
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