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what if hyster didn't resolve the problem????Help me, sisters. what if hyster didn't resolve the problem????Help me, sisters.

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  #11  
Unread 01-03-2005, 04:44 PM
Monthly cramps and lower back pain 15 months after TAH/BSO!!!

Reading all these at least tells me that I'm not crazy, but I haven't seen anyone specifically saying they have pain on a montly cycle after having ovaries out.

I had a TAH/BSO (EVERYTHING OUT) 15 months ago, and one of my main symptoms before was lower back pain. I still have the lower back pain (if anything, it's gotten worse) and pelvic pain (not EXACTLY like cramps, but similar - more of a pulling/stretching feel), like clockwork, every month!

My chiropractor (NOT MY OB/GYN) actually told me that endo can linger, and I have found many stories here and on other sites to agree with that. I'm not sure what the next step is, but I'm thinking a laparascopy may be in order?

Any info/help would be MUCH appreciated!!

TAH/BSO 10/22/2003 - fibroids, endo, and adenomyosis - caused lower back pain, bladder and bowel problems (latter two are "fixed").
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  #12  
Unread 01-03-2005, 06:00 PM
feel the same way

i feel the same way as you. it will be a year ub february for me i had everything out. get the backaches like you and the cramps.i hope you feel better soon. i heard endo can come back also. let mw know how you make out. ..ladyk
  #13  
Unread 01-03-2005, 06:04 PM
what if hyster didn't resolve the problem????Help me, sisters.

ladyk and others,
What has been determined to be the cause of your continued pain? I'm scared and almost depressed to think that I might just be in pain forever. So if any of you can share your experiences and what became your diagnosis for the pain, I would sure appreciate it.

Thanks!
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  #14  
Unread 01-03-2005, 06:24 PM
what if hyster didn't resolve the problem????Help me, sisters.

happy you may have scar tissue and adhesions thats what was making me hurt also estrogen feeds endo so by having your ovaries that can make your endo come back

im wishing i let them take my ovaries now plus i always get a cyst on the right side i do have reliefe now i was fine for a few months after surgery then began to hurt so keep an eye on your pain if you hurt daily then you should have your dr do a lap to look inside and see whats wrong...hang in there

i hope you feel better soon
  #15  
Unread 01-03-2005, 06:26 PM
what if hyster didn't resolve the problem????Help me, sisters.

Hi All,

I just want to reinforce what PrairieLakeLady said - that there are many, many, many possibilites for what is causing your pain. I have been having bladder spasms since my TAH BSO in August. My spasms feel like cramps when I'm not urinating and like a vise squezing my bladder when I am - they are no fun. I'm on meds which are helping - so that's good. My Uro did a cystoscopy and said my bladder is physically normal everything right where it should be and nothing there that shouldn't be - also very good! So - his diagnosis - my bladder is inflammed from the surgery. More good news - the inflammation will go away - he claims it can't stay inflammed forever! I hope he's right! Right now I'm on a wait and see!!

So - please hang in there, talk to your Dr. and remember we're here for you!

  #16  
Unread 01-03-2005, 06:38 PM
what if hyster didn't resolve the problem????Help me, sisters.

That was so great to hear (the part about it going away eventually)!!! My doctor has also suspected that my bladder is inflamed from surgery, which was causing my bladder-infection-like symptoms, especially seeing that I had a Burch bladder suspension at the time of my hyster. Detrol and other bladder antispasmotic medications didn't help at all. It seems like it is a long way out (three months) for that inflammation not to be gone. I also have lots of urinary symptoms besides the pain, too, including frequency and urgency, which I didn't have before the surgery. What kind of medication did your doctor put you on for these problems? Did your GYN do the cystoscopy, or did they refer you to urology? Were you asleep for the cystoscopy? I don't think that would be all that pleasant to be awake for. Did your doctor suspect interstitial cystitis at all, or just residual inflammation from surgery? Are you in pain now; if so, how are you managing that?

Sorry about all these questions...I'm getting desperate!
  #17  
Unread 01-03-2005, 07:45 PM
what if hyster didn't resolve the problem????Help me, sisters.

Happygo,

I don't mind answering questions - so ask away!

I'm on Detrol LA 4mg - twice a day (that is twice the normal dosage - which causes the insurance company to question it every time). For a while I was also taking Urised - the combination seemed to really help! I stopped taking the Urised last Wednesday. I developed what I (and my Uro) assume to be a uti which started on Friday - the holiday, of course. I had a refill on Levaquin from an earlier (Thanksgiving) uti so I started taking it and it's helped. Periodically - my uro has me try and reduce the meds. which is why I stopped taking the Urised. My spasms have been OK since, except for the increase because of the uti (It's never easy).

I have been seeing a Urologist since Sept. He did the in office cystoscopy. I did not take meds for this - it wasn't too bad. There was a slight pain when he inserted the scope but I've been through worse at the GYN (that sono-hystogram (I think) where they put saline in your uterus during an ultra sound - I could hardly get dressed after that one). The pain of the cystoscopy was minor and quick - with very little after effect. The whole thing took about 5 minutes and it was over.

He didn't do the cystoscopy until Dec because he was so sure it was inflammation and that it would get better. He says inflammation is usually gone with 3- 6 months post op - so anytime now! Actually - we discussed not doing the scope even the day he did it - he has always thought my spasms were due to inflammation but now he's ruled out any physical bladder problems!

My spasms have reduced in intensity to the point that it's more annoying than actually painful as long as I take the meds. So far I have not been successful in reducing the Detrol LA. The Detrol LA did not by itself ever get the spasm intensity reduced - it took both drugs together to get where I am today.

When I first went to the Uro I had frequency and nocturia (sp?), the frequency is much, much better. Depending on when I stop drinking - I only get up once to go during the night - now that's an improvement! I did not have any bladder problems before the surgery - this is all surgery related! But - the rest of my life is so muhc better - I'm still glad I had the TAH!!!

I'm sorry -you're having such problems!! I hope some of my experience helps you! If you have any other questions - just ask!! If you haven't already you should see a Urologist!

Take Care of yourself - Let me know how you're doing!
  #18  
Unread 01-06-2005, 12:23 PM
what if hyster didn't resolve the problem????Help me, sisters.

Well, I went to the doctor yesterday for my final follow up for my TAH/Burch suspension. I was just to the point that I didn't want to even tell him about the problems I was having. I just want to stop having something wrong with me all the time, and I'm quite frankly sick of going to the doctor! I just feel like I'm complaining all the time. Anyway, my husband was home yesterday and made me promise that I would mention it to him. I hadn't even told him that I was considering not mentioning the pain and symptoms to the doctor, but somehow he picked up on it.

Anyway, because the Detrol didn't really do much for me, he pulled some samples of Sanctura out for me, which I guess is brand spanking new. I haven't taken them yet, as there is a possibility of drowsiness with them (don't know why) and I had to take my daughter to school this morning, but I'm starting them this afternoon. He gave me two weeks worth of them (which is good, because my insurance has gotten really stingy with all but generic medications...I'm sure you all know how that is), and if that works, great. We will decide what to do from there, i.e. continue on the meds and assume that it is inflammation from the surgery. On the other hand, at three months out, the inflammation should be settling down, not getting worse, so if this new bladder medicine isn't working in two weeks, he will send me to urology to have cystoscopy. My hopes are that the medicine works. If not, I'm not sure what I'm going to do. I always thought that I had a well-defined problem that surgery would cure. Man, was I dumb! I just never considered the possibility that hyster wouldn't solve the problem. I don't know why.

I'm to the point where I'm starting to feel really depressed (I have depression anyway, but it's generally well-managed on my current medicine). I'm seeing that if it is a chronic problem like interstitial cystitis that is going to cause pain, it's going to be hard to get anyone to treat it (the pain), and that scares me a lot.

I will be 30 in eight weeks, and my goal was to have a healthy, surgery-free fourth decade of life. We'll see!

Thanks for listening and for answering my questions.
  #19  
Unread 01-25-2005, 05:48 PM
what if hyster didn't resolve the problem????Help me, sisters.

Hi all,

Wanted to post a follow-up, for whatever it's worth. My regular doc ordered an ultrasound, which, no surprise, didn't show anything. Now, she's ordering a CT scan, which probably won't either. Still have lower back pain, pretty much constantly, and pelvic pain and shooting pain down my left leg, starting at the pelvis (right where my left ovary was!).

My OB/GYN swears she "got everything," and has been no help at all. She had suggested lowering my estrogen patch dose, and we are trying that. BUT, I have seen lots of posts about endo "coming back" after hyster, especially when taking estrogen, but I don't really feel like mine came back, as much as it never went away. My lower back pain was my original symptom. But, this pelvic pain and leg pain is new post-op (a little different than cramps were).

I am trying to find out how to go about FINDING AN ENDO SPECIALIST, so if anyone can shed any light on that, I would appreciate it!

15 months post-op - TAH/BSO (everything out!)
  #20  
Unread 01-25-2005, 06:23 PM
what if hyster didn't resolve the problem????Help me, sisters.

sounds to me that you either do have endo or some scar tissue in there that can cause alot of pain
you should do a laproscope
thats the only way to see whats going on in there....

id stop estroge since that just makes endo worse, i wish you luck im still in pain im going to try a special combination of herbs that a women used that helped her if im not better by summer im just going to get rid of theses ovaries im tired of suffering i want to get on with life....i wish you all the best

heres what helped my friend with pain

evening primrose oil 2Xday

vitamin e 3Xday

and flaxseed oil 1 tabelspoon a day

I figure its worth a try i have nothing to lose but the pain
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