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What do you do when the doc doesn't know? What do you do when the doc doesn't know?

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  #1  
Unread 12-31-2004, 01:10 PM
What do you do when the doc doesn't know?

Hi all,
I talked to my NP about the ultra sound and told her about the pain I was in.

She didn't know why I was in so much pain. The ultar sound didn't show anything wrong. The only thing is my overies were hard to see and she said that the doc that did the surgery might of cut off the blood supply to them, that would explain why I now need hrts.


She also said that my cervix should not be that sore.
That the blood supply was cut off to part of the cervix and instead of the my body removing the dead tissue it might be decaying which is causing the pain.


So she gave me pain meds and told me to call on monday. She is hoping the pain is from the ultra sound with all the moving around and pressing. But the pain was there before the ultra sound and since I stop taking the antibodaics the pain has incressed.
At least the pain meds are helping. I don't want more surgery.

The idea of my body parts decaying inside of me is scaring me. How sick can I get if this is the case?
what do they do for it?
I've been on anti bodies since before the surgery. I think I only missed one week for the last 11 weeks.
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  #2  
Unread 12-31-2004, 01:45 PM
What do you do when the doc doesn't know?

I think it's time to see another doctor and get another opinion. You should not have to suffer like you are.

  #3  
Unread 12-31-2004, 02:15 PM
What do you do when the doc doesn't know?

This is a second doctor and at least she has order some tests to try find the problem. Nothing show up on the test.
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  #4  
Unread 12-31-2004, 03:01 PM
What do you do when the doc doesn't know?

It still doesn't sound like you are happy with the lack of progress so far.

Even though this is the second doctor you have dealt with, you NEED to feel comfortable and happy with him/her. I wouldn't care how many doctors or specialists I ended up seeing, as long as I ended up with someone I felt was competent and made me feel like I was a priority and that I mattered!

The idea of something "decaying" in one's body is scary and really doesn't sound right. I would go for a third opinion...

Also, if the first scan didn't reveal how your ovaries looked, then I think another try is in order?

This may be something that will require some energy and investigative methods of your own. You need to take control of your health. Sometimes I feel like we are just a "number" on the doctor's chart as they roll you in and out of their offices like cattle.

My first step would be ... go see another gyno specialist.

Best wishes, good luck and let us know what you end up doing!

Above all, don't worry...use this situation to empower you! TAKE CONTROL!

Hugs,
Sarah
  #5  
Unread 12-31-2004, 03:16 PM
What do you do when the doc doesn't know?



Man, I'd worry too. To be told something like that and have no plan is too scary! A NP is not a doctor. Did you get an appointment with number 2 doctor or just the NP?

Try your GP also. Perhaps a referral to an internist might help eventhough it sure sounds like a GYN problem. I know starting over is like a 3 month wait period for new patients or second opinions. So.......waiting is not an option. Call back...insist on more testing and ask the same questions to the doctor.

I've had a fibroid die and a poylp die. Both caused pain but they remained whole but became hard. My body did not absord them nor did they decay so-to-speak. They did not make me ill.
Keep a daily log, take your temp daily,...and get on that phone!
If your pain is high and you can't get any relief....get to the ER
Please let us know how you are. I'm so sorry you are suffering with this.
Best wishes,
Maralyn
  #6  
Unread 12-31-2004, 06:40 PM
What do you do when the doc doesn't know?

((((((((((weezy))))))))) I am so sorry you are not getting answers. I wish I had words of comfort to say but I really am at a loss too. If it is the cervix dying off, I am guessing that would relatively easy to fix, just take it out. The ovaries are a different kettle of fish!

Know I am praying for you,and hoping you find an answer. There was a lady on here from BC who had issues and just kept plodding until she got her answers. Now she has not been back and I am worried sick about her...Hugs to you
Kat
  #7  
Unread 12-31-2004, 06:51 PM
What do you do when the doc doesn't know?

(((((weezy))))

I am so sorry that you are going through this. If indeed the blood supply was cut off to any part of your body including ovaries, they would indeed die and could very well rot or have necrosis is the medical word.
However, I do not like the attitude of this NP that you spoke with...I would speak withthe actual doctor as what she told you is not something that you just ignore...oh- can't see the ovaries, oh well------NO---you need to see them and see if something is wrong. If you have necrotizing organs inside, they can make you very sick at a certain point. I will be glad when you see your doc and I know you will too. I can't even believe that she mentioned he might have cut off the blood supply to your ovaries---if he did and now they have to be removed---that should be a free surgery in my opinion!
please let us know what the doc said and I hope you get the answers you need.
  #8  
Unread 01-01-2005, 02:32 AM
What do you do when the doc doesn't know?

Because all your testing...so far...has been inconclusive, sounds to me like she was guessing about the possibilities you mentioned, which is not a very professional thing for her to do in your presence, given how an untrained imagination...even a trained one!...could run wild with misperceptions after comments like that. Her lack of bedside manner does not necessarily mean that she's not a good clinician, though.

She told you to call on Monday. That tells me she will be making her next move based on any reports from you that things have not improved. And, she is more than likely taking the time to consult with colleagues to determine what should be done in the event you're still in pain. So, I think you should call her on Monday, as she requested, and go from there.

My thoughts shall be with you. Please let us know how it goes.
  #9  
Unread 01-01-2005, 09:08 AM
What do you do when the doc doesn't know?

Thanks for the insight. I talk to my NP over the phone and she had just receive the results from the ultra sound and my records from the doctor that did the surgery. Her comments were not rude but she was just running through what might be causing the pain. The doctor that did the surgery had no clue and didn't order any test to find out what the problem could be.

I know from my first visit that she is more then willing to talk to either of the doctors that she works with. I have confidents that she will ask and look for the problem.

Its the possibilities that would could be wrong that is scary.

marianwrn,
I started seeing the NP for bio identical hormone treatment.She is the only one in town that does it. I didn't know the pain and problems I was having I shouldn't be have. I thought it was part of the recovery process. My GYN that did the surgery just brushed them off, so I thought I was just over reacting and was just hoping I would heal.
Boy, how clueless we can be if we don't have others to help us though the process.
Thanks. I can't tell you how much help all of you have been.
  #10  
Unread 01-04-2005, 07:09 AM
What do you do when the doc doesn't know?

I saw the NP Monday and she changed her mind. My overies are working because some gland is produceing normal levels.

so she thinks my pain is from the cliama patch because that is the only thing that has changed and wants me to stop using it. The pain could be because I had lost my physical sence of touch after the surgery and it was restored after using the patch, so now I feel more. My pain could be just from healing. I may have a few stiches that are not desovled so they are causing pain. She did a cervixes swab to rule out other problems.

The ultra sound showed nothing wrong. what a switch from what she said thursday.

Since Dec 26 I have been wearing two cliama patches .0375 , so yesterday I removed one and was going to remove the other wed. Today I've got such a migraine, anxiety, pms, and I want to crawl out of my skin. I already blow up at my boys. I don't want to go back to feeling the way I did before I put on the second patch.
What do I do?
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