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I am so mad!! I am so mad!!

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  #1  
Unread 01-06-2005, 03:16 PM
I am so mad!!

As many of you know I have chronic pelvic pain and have been receiving pain medication for it and have made an appt to see a pain specialist, but the appt is in Feb.
Well, today my GYN office called that office to see if they could get me in sooner and she called me back and said that they couldn't. So I asked about getting my breakthrough med refilled (I am not out of my MS Contin until 1/16) so she went to talk to the NP, doc is out of town and I talked to the NP yesterday and she is the one who suggested calling the other office. She came back onthe phone and I was told that the office would no longer be prescribing me any pain medication and that I needed to make an appt with this other doc and maybe can get it sooner.
So as you can probably guess I am sitting here in tears because I will be out of the breakthrough meds tonight and even with those i have a lot of pain, it just kind of takes the edge off.
I don't want to see another doc, the doc I have the appt with , this is her specialty!!!
I am just so ticked off right now I don't know what to do and I am scared. I am scared to wake up in the morning and face the day cause I know what it is going to be like---absolute misery and I won't be able to get out of my recliner. I started crying on the phone to this lady and asked her what am I supposed to do ...even if I could get an appt with this other doc who says when it will be, i will still be going without the meds I need. I told her I guess I will be at the ER everyday for pain control and she said if you feel you have to do that, then do it.
I hate complaining here, I haven't done much of it and I am sorry that I am going off and making this long, but I am just ticked, mad, scared and afraid. And to go to the ER I need to have my GP's okay so I have to go through all of that by calling her tomorrow etc.

:hair:

I just don't know what to do from here, I am usually so good with advice but I am blinded by fury right now and can't see straight.
Thanks.
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  #2  
Unread 01-06-2005, 03:43 PM
I am so mad!!

Oh, Marian.... I am so sorry. I find it unfathomable that your doc would refuse to prescribe you meds until the PM takes over. It just strikes me as cruel.

NPs do not have the ability to prescribe narcotics. I am sure you were aware of that. That is probably part of the issue. The other part might be a misunderstanding or miscommunication between your doctor and the NP. Besides, how can the NP decide that you won't be getting refills from their office anymore. Isn't that up to the doctor to decide? If that were the case, the doctor should have informed you of that and explained the reasoning.

Instead of calling your GP to ask for ER permission, why not call and explain your medication dilemma and see if the GP can help you until a PM can get you in. Could be that the GP can expedite your PM appt. Worth a try.

Call today. Remember to stay ahead of the pain.

  #3  
Unread 01-06-2005, 03:44 PM
I'm so sorry you're going through this

I wish I could make it better for you. I know first hand the agony and anxiety of trying to be heard and believed about your pain level. It took an act of congress to get a very low dose pain med for me until I found the right doctor. When the right doctor got involved, it actually made me cry when he listened and helped me. I had become accustomed to being brushed off and left alone and in pain. Kindness was my undoing!

I hope you can find a doctor who will hear you and more importantly, HELP you! Know that you are not alone.
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  #4  
Unread 01-06-2005, 03:54 PM
I am so mad!!

Michelle,

I have gotten a refill on this med from the NP when doc was out of town before, she has pads with his sig and she just fills it out...mabye when she updated him when he returned he told her no more for me, but you are right, they should have told me sooner. I don't know if my GP will get involved because of the medication I am on, she is funny about prescribing them, but I will give it a try...Her office closed @ 4:30 today, so I have to wait til 8;30am tomorrow to call.
Thanks for responding, I am just so scared and I feel like my hands are tied. What happens when I run out of the MS Contin and start going through withdrawls? That is my fear more than being in pain is going through that.

jarja--thank you for you kind words...the thing is I had to wait to get the right doc that would listen to me and he gave me what I needed to get through the day and now i am faced with nothing for over a month.
  #5  
Unread 01-06-2005, 04:34 PM
I am so mad!!

(((Marian)))
I hope that your gp will come thru for you. While I have never run out of my meds, I have come dangerously close. It is very very scarey. When my pain doc shut down, I didn't know what I was going to do and my gp, who is always willing to help, wouldn't write a script for the duragesic. Luckily my general surgeon came thru until I was able to find a doc to work with me.

I will keep you in my ers Marian.

and here's an extra
  #6  
Unread 01-06-2005, 05:12 PM
I am so mad!!

Thank you Kim for your prayers, I truly believe I am going to need them tomorrow. I am going to call my GP and see if I can get in tomorrow and sit down and talk with her, if she won't help me, maybe she knows someone who will, her office is in a small community and maybe she knows of someone who can help until I see this other doc. I just have this bad feeling she won't and then I will just ask her for the referrel to the ER, maybe then she will realize what I am dealing with. I am scared to death!
  #7  
Unread 01-06-2005, 05:55 PM
I am so mad!!

I'm so sorry Marian.
It can be so frustrating to be in a catch-22 situation.
Maybe if you try and talk to your GP he/she will understand, and write a new script with enough to get you through until your other appointment.

Many prayers and gentle s for you.

Essie
  #8  
Unread 01-06-2005, 06:23 PM
I am so mad!!

Unthinkable! Aren't these the doctors who have managed your pain meds up until now? If so, it isn't just the right thing to do, but it is their RESPONSIBILITY to manage the medications that THEY are managing you on, if for no other reason (not that pain isn't a darn good reason) than to avoid withdrawal symptoms! That's just irresponsible, certainly much more irresponsible than their perceived danger of prescribing more medication ESPECIALLY if they didn't warn you about this in time to get you into a pain management specialist...they need to take care of you until then. There's a law that says that they have to manage your pain or refer you to someone who will, and I'm sure that would include continuity of care. If I ran out of Prozac and the doctor didn't want to manage my depression anymore, they couldn't just stop writing for it...the withdrawal effects are miserable. They would probably have to find me another doctor to immediately hand me off to to have continuity of care. As you know, doctors have a lot of pull with other doctor's offices. If your doctor called and really stressed that you needed to be seen by pain management, there are good chances that they would get you in immediately. If not, the doctor would realize that it is not your choice not to go. A good doctor who no longer wants to manage your pain would then cut you off if you didn't make your appointment or something, but if you are making a real effort to go to pain management, they should be responsible for the treatment they started until you can find someone else.

I've heard pain management is a good thing. My insurance didn't cover it until this year, and now only if "medically necessary." What the heck does that mean??? Don't go for fun? Okay, I won't! And I work for the hospital where the pain service is, and we can't use it. They can try all different things, and they have experience in the pain part...if a surgeon can't cut something open and fix it, their work is done in their minds. I've heard good things about TENS units, possible neurontin use for neuropathic pain, judicious use of narcotics, and they are licensed to prescribed narcotics all day...I don't think they are scrutinized as heavily as doctors who generally just prescribe two weeks post op and then they're done. Unfortunately we don't all heal that way.

Big hugs and a BIG GROANNNNNN right along with you. Write and let us know how your tomorrow goes.

The only word of encouragement I can really offer is that I've found that the doctors have good days and bad. I've gotten a really bad reception from them one day, cried all day in pain and frustration, and then as a last-ditch effort I call them the next day, and they are happy to help. Maybe things will be better in the morning.

Try and get some sleep tonight, though...tomorrow will take care of itself.
  #9  
Unread 01-06-2005, 06:31 PM
I am so mad!!

The first thing to do is to call the PM office and get on the "cancellation" list. Every doc's office likes to have pts they can call at the last minute. You may need to call every couple days to stay in their minds.

I am so sorry that your docs are not being sympathetic to your needs. Perhaps if you ask for an appointment and see them in person they will yield a bit. I know from my husband's experience that (he is a primary care doc) is that it is one thing to be asked for a narcotic over the phone and another for someone to discuss this in person. You should also ask your GP who will be responsible for your care until the PM appointment - I can tell you that while I sure do understand why you would start calling all those docs - it doesn't do your case any good. But your GP is responsible for your care.

Is sounds to me like the NP is being told not to renew - an NP doesn't make that decision by herself - it sounds to me like she's being asked to say no for the doctor - another reason to get an appointment.

When is your PM appointment?

Dorrie
  #10  
Unread 01-06-2005, 08:03 PM
I am so mad!!

((((Marian))))) I am so sorry you're having such a hard time

I agree with ((((Dorrie))))) that the first step to take is to get on the PM doctor's cancellation list. When you call them, let them know in how much pain you're in and that your "regular" doctor will no longer prescribe the meds: this may weigh in your favor.

One thing I've learned is the importance of calling the doctor's office often: not only does this keep you in their memory, they also usually note when there's been a call back, signalling the urgency of the request.

I would also make sure that you talk to your doctor, the next time you call the office: you can insist that you talk to him instead of the NP. Furthermore, do give your GP a try: who knows, she may relent on her normal policies regarding these meds

sending lots of s your way. I do hope that all goes well for you.
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