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Stage 4 endo and are you on hormones?? Stage 4 endo and are you on hormones??

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  #1  
Unread 01-07-2005, 05:25 PM
Stage 4 endo and are you on hormones??

Hi all,
I had Stage 4 Endo. and Dr. put me on hormones (.6 orthoest). I'm doing very well and feel good, not having menopausal symptoms or anything else. Wondering how many of you are in this position too?? What should I be alert for just in case?

Virginia
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  #2  
Unread 01-07-2005, 05:58 PM
Stage 4 endo and are you on hormones??

HI,
I'm not on hormones, although, my doctor did give me some patches to use if I wanted with a very low does of estrogen. I haven't been having any trouble with the menopausal side effects yet. I am experiencing what I would call "warm" flashes, but I'm always cold and live where it's freezing outside so they feel fine right now.

It's my understanding that to kill off the endo and to keep the adhesions from regrowth of endo. that you shouldn't take hormones. My doctor did say that (once I'm released from post op care) that she would like to see me every other year to keep an eye on things for me.

Because of what I've read I've decided not use HRT's. I've also read that you need to be careful of soy as well. Apparently a build of soy Isoflavens can mimic estrodial.

I'm looking into seeing a holistic physician who specializes in hormone and immunity issues. I've heard that the proper diet can do wonders with preventing both the effects of menopause and endo.

I'm not sure if there is any way to make sure the endo doesn't come back. It's one disease that stills needs lots of research done it. I think doctors may have varying views based on their experiences and what is known so far.

Good Luck to you!!
  #3  
Unread 01-08-2005, 08:19 AM
Stage 4 endo and are you on hormones??

I had stage 4 endo. My Dr. has recommended that I stay off HRT for 6 months. So far so good. The only symptoms I'm having are mild night sweats and warm rushes. I had a mild headache for 2 weeks, but that dissappeared a couple of days ago. I've had no symptoms that were unbearable...just uncomfortable.
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  #4  
Unread 01-08-2005, 02:18 PM
Stage 4 endo and are you on hormones??

Hi,
I've been a lurker since Jan. 2004. Had my surgery Feb. 11, 2004
I had a TAH/BSO for stage 4 endo on uterus, ovaries, tubes, and bladder. I have not taken any HRT (I'm 35 years old). My hot flashes are not too bad, but the cold flashes are crazy. I am taking a few vitamins ( multi, c, b-complex, co-q-10, calcium, magnesium, omega-3, and l-arginine). The l-arginine I read about in The Menopause Diet by Larrain Gillespie. She said it can help with the hot flashes, and I have noticed a difference not in the quantity of flashes, but I don't seem to get as hot. I am also taking 800 i.u. of Vitamin E, even with the bad news about it. I'm not sure if it's the E, or l-arginine, or a combination, but my mood is very even, and I just feel better when I take it.

Kathie
  #5  
Unread 01-08-2005, 02:50 PM
Stage 4 endo and are you on hormones??

Hi Virginia,

I had endo on the ovary, tube and uterus stage 1 or 2, not sure. I'm on a very low dose 0.075 Vivelle-Dot. I don't believe I'm having any symptoms at least I have no complaints. My doctor and I weighed the pros and cons and she felt cold turkey surgical menopause would be cruel. On the other hand, I was not a stage IV. She said I have a 3% chance of endo growing back. I may have it and not know it or I might have pain from it again.

It is true....most doctors seem to take away the estrogen for at least 6 months until all chances of left over endo is gone. You're in a tight spot with stage IV and being in your early 40s.

Let's hope all endo will stay away.
Maralyn
  #6  
Unread 01-08-2005, 11:10 PM
Stage 4 endo and are you on hormones??

Hi! I, too, have stage 4 endo, it was everywhere. My DR had me wait for 6 months before trying HRT. I have been on Activella since mid-September 2004, and so far I am doing great. I really don't want the endo to come back, but the bone scan I had 2 months post-op showed osteopenia. We are hoping the HRT will stop the bone loss, and I have added in weight-bearing exercise to my schedule. Good luck to all of us!
Paula
  #7  
Unread 01-08-2005, 11:25 PM
Stage 4 endo and are you on hormones??

be careful with hormones estrogen feeds endo if theres any left behind it can come back, its best to wait about 6 months after hyst to use hormones so that any mirco endo can die off good luck i hope you have a full quick recovery
  #8  
Unread 01-10-2005, 05:44 PM
Stage 4 endo and are you on hormones??

Hi,
I had stage 4 endo and my dr. put the vivelle dot 0.1mg before I woke up. We had discussed it before the surgery and he felt surgical menopause is a more extreme thing to deal with then the small % chance of my endo coming back. I am 38 years old, who knows what is right, but I am thankful to not have to go into instant surgical menopause, since my mother had a horrible menopause and it was natural, so I can only imagine and prefer not to...
tina
  #9  
Unread 01-10-2005, 06:46 PM
Stage 4 endo and are you on hormones??

Hi,
I've had stage IV Endo forever. I had my surgery Dec.1. My MD advised the same as Eubbie's -- no HRT for 6 months.

I have very mild flashes, 2-3 per day-- but it feels pretty good in January in Massachusetts!

If you are concerned, talk it over with your MD. There are so many things that need to go into this decision (age at hyst, family history of heart disease, cancers, etc.) Your MD will surely have done lots of research in this area. If you feel you need a second opinion, get one to be sure.

Maybe we should have a mesage board for Hot Flashers?
(Glad you won't be joining us for now!)

HUGS,
Eileen
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