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living with adhesions living with adhesions

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  #1  
Unread 01-07-2005, 05:40 PM
is laparoscopy the only way to diagnose adhesions?

hello sisters--

since about week 5 i have had a dull, achey, pulling sensation in my lower right side. i ignored it (TRIED TO) and brushed it off to healing pains. in the beginning it would come and go, but it was mostly there. last week it started to get REAL bad. I spent new year's eve in bed (and the whole remainder of the weekend), trying to nurse it, and this last wednesday i was doubled over in pain.

i had an appointment for next monday b/c on top of it, i found out right before christmas that my insurance was terminating its contract with my dr's medical group--so I figured I better have it looked at. but, then when it got soooo bad this week, i changed my appt. for today.

he gave me an internal exam--no ultra sound. he ruled out an ovarian cyst and said it MIGHT be adhesions. he said the only way to know for sure would be to do a laparospcopy and look and then scrape it if it's adhesions.

he said he did not recommend doing it and that i should live with it. he said sometimes it goes away on its own, but that often times if you go back in, you create even MORE scar tissue.

so now i feel like i have something--- that i don't know FOR SURE what it is, that's causing pain and i am being told to live with it. what if it doesn't go away? and how much pain am i suppose to live with? and, for how long?

do any of you know if laparoscopy is the ONLY way to tell if you have adhesions? even though this does not sound like something i want to live with...at least i'd like to know for sure what it is and what to call it.

mindi
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  #2  
Unread 01-07-2005, 06:35 PM
living with adhesions

Hi

I have been having thumping and gurgling sensations along with abdominal pain every since my hyst 8 months ago. My gyn ordered a cat scan thinking maybe my bowels were stuck down by adhesions. I had adhesions on my bladder and uterus when he did the hyst. He cleaned it up as good as he could. the cat scan showed nothing, but he still felt I had adhesions. He sent me to a post abdominal pain surgeon who specializes in adhesion removal. He thought the same thing and said adhesions do not show up on tests. He did a lapro, but only found a lot of scar tissue on my abdominal wall. but no adhesions sticking anything down. He said the scar tissue can cause pain and it may for now on. Luckily, I have been diagnosed with a rectocele and enterocele, which involves the bowels and probably causing these weird sensations.
A lapro would be your only way to know for sure if you have adhesions. The surgeon was going to use a spray barrier, which he said will not allow adhesions to grow back. He is a specialist in the field and also teaches and does research on adhesions, so I think he knows what he was talking about.
I hope you get answers soon. You don't deserve to live in pain.

Peggy
  #3  
Unread 01-07-2005, 06:39 PM
living with adhesions

Mindi,

Sorry to hear about the problems. 12 years ago after the birth of my daughter I developed a massive infection and developed adhesions. I was in and out of surgery for two years for about a dozen times. Almost all my surgries started as laparoscopies and ended up as laparotomies.

The pain you feel sounds like adhesions, and the timing seems right, too. See how you feel, they can get worse or can get "better', (at least less painful), but, you may need another surgery. be aware if you have one that it may end up that you'll have to be opened up as I was.

I know it sounds corny, but go with your gut, You know how you feel. I had to keep having surgeries as the adhesions caused a great deal of blockage. Fortunately the last surgery lasted for about ten years or so, and my surgeon for my hyst knew my history and took all precautions to keep it from happening again. Lots of anti-inflamatories and Cipro.

One suggestion, but not a guarantee. My natural med MD has me taking VitalZyme as a way to keep from getting adhesions. I don't know if it'll work and the supplement is expensive, but for me it's worth a try. It seems to work for some.

God bless, you. I hope you don't need more surgery. Adhesions are such a big pain!
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  #4  
Unread 01-08-2005, 01:31 AM
living with adhesions

peggy amd beverly--thanks so much for the info. i was wondering if there was something that i could take for this. i will check the homeopathic drug store tomorrow.

mindi
  #5  
Unread 01-08-2005, 05:28 AM
living with adhesions

Mindi,

I failed to mention that my doctor has me taking 3 pills, 3 times a day.

beverly
  #6  
Unread 01-08-2005, 06:27 AM
living with adhesions

Hi Mindi,

Yes, I know about adhesions. I had two surgeries where the uro/gyn cut out lots of scar tissue that grew in the wrong places around my bladder. The last time he said scar tissue will always come back but he sewed me up in a way that it would grow where it would not affect bladder function. I also have the Physical Therpist working on my internal adheasions they are like solid hard places and you have to press on them to break them apart. It is very uncomfortable but a few days later it gets better. I have been seeing a chiropractor for a few weeks now and I am amazed that I am so much better. My pelvis was really skued <sp?> and it's a wonder that I healed as well as I did. This has been a wonderful place of support for me.

Good luck,
Marla
  #7  
Unread 01-08-2005, 06:58 AM
living with adhesions

yes, the only way to diagnose adhesions is by a lap, they will not show up on any xray. How could he say you don't have cysts if he didn't do an ultrasound?
There are lots of sisters that are dealing with adhesion pain and some of us are in pain management because of it. I even had a barrier placed to prevent them from attaching again,but that failed me and it has failed others but worked for others too.
You shouldn't just have to live with it---like I said before, you need to see another doc and get thehelp you need.

Marla,

I have no idea how you can stand the massage, I can't even get through an exam without crying hysterically.
  #8  
Unread 01-08-2005, 08:01 AM
living with adhesions

((((Mindy))))) I agree that it's time for a second opinion: nobody should have to learn to live with the pain.... at least, not without first trying for a solution.

While I've never delt with the adhesion monster, I know that it's very hard to diagnose them, as they don't show up on ultrasound and may not even show on MRI's. A lap is usually the only way to diagnose them. However, this turns into a vicious circle, since additional surgery can result in additional adhesions: adhesions are actually scar tissues that do not heal properly and attach themselves to organs, resulting in pain.

Here's a link to our Adhesion Resources Library where you'll find links to valuable websites.

Sending lots of ((((hugs))))) your way. Please keep us posted.
  #9  
Unread 01-08-2005, 08:13 AM
living with adhesions



I had my hysterectomy 3 years ago; I had my right ovary and adhesions removed 7 months ago.

The only way to positively diagnosis adhesiosn is by laparoscopic surgery.

Having more surgery can cause more adhesions.

I recently tried pelvic massage therapy in an attempt to break up adhesions - it has not worked. I will most likely be having more suregry to remove the adhesions and put some barriers in place.

There are some great Adhesion Resources I suggest you check out.

s
  #10  
Unread 01-08-2005, 08:39 AM
living with adhesions

They are miserable, indeed. I keep hoping and praying that I don't get any this time. At least, not any that will need surgery. Ultimately the only thing I can do is trust in the Lord. He sent me to the best physician and surgeon in the area (and both are men of great faith and pray for their patients!) so now I do what I can, and I pray -- a lot. As much as surgery doesn't scare me -- I really don't want more of it, and I don't want more adhesions.
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