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Unread 01-09-2005, 02:19 PM

To hystersisters, I want to thank you as someone who has done a lot of reading but no writing up to this point. I had a hysterectomy in June followed by a complication of a prolapsed fallopian tube with surgery in October. Now I am facing surgery for a vesovaginal fistula which thanks to your website I was able to diagnose myself as my dr. just kept putting me on antibiotics for the bladder infections. I am to see a urologist this week and get officially diagnosed and suspect I will be having surgery soon. Would love to be a support to others and I continue to seek the support of all of you. Thanks! rlm3
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Unread 01-09-2005, 06:06 PM

Hi ((rlm3)),
I'm glad you decided to post Also that you were able to get a diagnosis of what was going on with you

Good Luck with your upcoming surgery and recovery..I pray all goes smoothly with both! I do hope you will keep us posted on how things are going with it.

I also wanted to say HysterSisters is such a wonderful place because of woman such as yourself that wish to reach out to share & support others...Thank you

Unread 01-10-2005, 12:47 PM

glad to see you writing. i had the same experience. thanks to Hystersisters, i was able to tell my GYN what the problem was.

It's not fun facing another surgery, but just look up all the inf on here about it. My "fista-versary" will be Feb. 9th--and i'm doing fine almost a year out.

Take good care, if i can help answer questions in any way, just holler.

Fluffy Lemur
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Unread 01-12-2005, 03:24 AM

Hi rlm,

It's no fun to be facing more surgery but I am glad to hear you have finally been diagnosed and are in good hands.

I had a vaginal repair and then an abdominal repair and it is hard to believe, but it will be my fistula-versary in March. What a long road it is, but I have made lifelong friends through this site and it was my lifeline.

Good luck to you,
Unread 01-12-2005, 08:47 PM

HI, RLM...

Another fistula sister checking in. I am glad you are seeing a urologist for your fistula. I did not trust my gyne to fix it, as she had never seen one in her 25 years of practice. Even after going to an experienced uro, it took him 2 tries to get it fixed right.

It has been 3 weeks since my last uro appointment. I have seen him every week or 2 since last June. As he told me, he hoped to be a bad memory in the near future!

If you have any questions, please feel free to PM or e-mail. Having a fistula is a scary experience, and the sisters on this site really helped me through the last year. (Thanks, Sisters!)

s to you, RLM...
Unread 01-13-2005, 06:35 AM


Sending a big to you. I to diagnosed myself? It is amazing how we all have to take things into our own hands. Please come here for ANYTHING! It is truly what kept me sane.

Let me know how you are doing or if you need anything at all.

Unread 01-13-2005, 07:05 AM

Hi RLM - As an experienced vescovaginal patient (3 surgeries) I am glad to hear you are seeing an urologist. That is the way to go. My last surgery was Nov. 5 and it finally worked. I still have a drip or two, but it is not a fistula, it is a weak muscle around my uretha. I can live with a drop or two per day compared to the nightmares I have experienced since April of 2003.

This site is a terrific support group and I was so relieved to find it after my 2nd surgery.

Good luck to you and keep on posting, we are listening.

Unread 01-13-2005, 08:10 PM

WOW! So nice to get your replies of support. I had to cancel my urology appt. today due to insurance problems (we have had to switch insurance in the middle of all this and I don't want a pre-existing to complicate getting the new insurance) and have it rescheduled for Feb. 3rd. Needless to say I had a temper tantrum and cried for about an hour as I so desperately want this taken care of. I pray I'm not complicating the problem by waiting. My gyn. ordered more antibiotics to take daily to keep the infections at bay- can't seem to go without them for more than 2 days without getting one. It's amazing what you can find to do to keep the leaks at a minimum. For those of you still dealing with this- go to the bathroom a lot!, don't wear tight jeans, drink to stay hydrated but not too much, sleep in a position that doesn't cause you to leak (for me it is on my side, if I sleep on my back I wet the bed), and stay away from caffiene. Thanks for the support, I look forward to more responses and chats with you all. rlm3
Unread 01-14-2005, 09:12 AM

My fistula was repaired on Oct. 28th and I'm confident that the surgeon did a wonderful job. He is a uro/onc so cancer surgery is his specialty. I told him that I wanted abdominal surgery because I knew from this website that it was usually more successful and he agreed. Get the best doctor and you'll be a step ahead.

My other suggestion for this problem is use DEPENDS at night! I fought it but after using them for a while, putting one on was like having a security blanket. I used the highest absorbency and slept like a baby! Good luck.
Unread 01-15-2005, 01:49 PM

Glad to hear you are recupering and doing so well. I was starting to think the same think about the abdominal surgery too as I can't bear to think about having to prolong this situation with recurring surgeries. If you work, did you have to take much time off work? I contract therapy services to schools and am independent so taking time off when school is in session is a big problem for me. Thanks! Becky

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