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Could this be Fibro???? Could this be Fibro????

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Unread 01-27-2005, 07:49 PM
Could this be Fibro????

As always, I'm grasping for an explanation regarding the pains I keep having... and, of course, these spurts of questions always start when I'm having a flare-up

This last flare-up has had me wondering if, maybe, instead of the arthritis the doctors suspected at first, I may be dealing with fibro After all, none of the tests came back positive and there was no sign of inflamation. I do seem to have a very slight evidence of my fingers being crooked... but there is no swelling.

However, when the flare-ups happen, I do tend to "hurt all over", mainly my arms, legs, back and neck. And, while some of the pain seems to be in my bones, most of it is accompanied by generalized muscle weakness.

Does this sound like fibro... or am I barking at the wrong tree again
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Unread 01-28-2005, 09:51 AM
Could this be Fibro????

I am so sorry your pain has been flaring again...I do hope it lets up soon
Ever since you first shared your symptoms here, I've always wondered as well if you were also suffering from FMS.
Has your Dr ever mentioned the possibility?? Do you see a Rheumatologists? If not, I strongly suggest that you do. They are more versed in this condition and its dx.

Do your flares seem to be related to lack of sleep and/or stress? That is when I suffer mine the most. FMS is tied into a lack of REM sleep, the stage when our body *rejuvenates* itself.

If you haven't already, I would suggest that you do some reading on this condition to help grasp a better understanding of it. Our Resources here contain some excellent info
Many of those links are what helped me discover so much of what is going on with this and ways to help gain some relief from the flares...

I hope this isn't what is going on with you my friend but it would help explain so much of what you experience with these flares...
Good Luck in finding some answers & most of all some relief ((Dany)) My thoughts will be with you...please keep us posted on how things are going....(((hugs)))
Unread 01-28-2005, 09:56 AM
Could this be Fibro????

You know every now and then I hurt all over..almost flu like symptoms....I know that one of the tests they do to diagnose fibro is to put pressure on certain areas of your body and if they cause pain, that is a postivie dx.
It is worth getting checked out Dany, for sure. I pray that it is not fibro and they can help you through your flare ups.
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Unread 01-28-2005, 10:10 AM
Could this be Fibro????

dany im thinking it might helpt o see a Rheumatologist

menopause if you are in ti can cause some muscle weakness and aches .. but not being a Dr I dare njot make a judgement

I just hope you get some relief and soon

Unread 01-28-2005, 10:56 AM
I too am a FMS sufferer

Hi Dany,

I have suffered from FMS for 11 yrs now. The first time I was diagnosed was three months after my first son was born. I was only 19 and honestly didn't give it much thought. It was a relatively new diagnosis and there wasn't much known about what all it entails. After I started having more severe problems, including pelvic pains, I began doing some more research and found FMS has been known to cause pelvic pain, depression, bowel difficulties, arthritic symptoms, and even loss of muscle control...

I have since been diagnosed by two more drs leading me to believe finally that I can trust this diagnosis. I have began some therapy for my FMS with my pain dr. I have also been keeping a journal to keep track of my flare ups and hopefully figure out what causes them. I have found out that cold damp weather is horrible for me, also cold water (like pools, or lakes). I have suffered as you probably know with back problems since I was 15 and I only wish I would have found out about this disease then. I had my first back surgery at 16 to remove a tumor, well low and behold I have since found out that FMs is capable of falsely causing the same symptoms I had then...

Please do ask your drs to examine you for FMS. The exam should include many different pressure points (13 I believe), also some past history with pain and other problems would be helpful... Drs today are really beginning to take notice to this debilitating disease.

If you need to talk or want some sites thAT I have found PM me.

Take care

maybe I will begin putting my FMS journal online as well Maybe it will help one of my sisters...
Unread 01-28-2005, 06:12 PM
Could this be Fibro????

Thanks for the input s. I know that I have a lot of reading to do, but think it may be worth it.

((((Sheri))))): I will check the Resources on FMS as I know you have had a lot of input in this area BTW, yes, my flare ups do tend to occurs when I'm tired or stressed or when the weather is too cold or too hot. And, in this area, humidity is always an issue. As far as lack of sleep goes: I've always sufferred from chronic insomnia and it's been getting worse since I've started menopause, about a year ago. I've been having mitigated success through using magnesium and Valerian Root. And, since I've learned to suppress dreams when, as a child, I kept having recurring nightmares that would further exercerbate my insomnia, I know that I don't get much of the "quality" REM sleep: I wake up instead!!!!

((((Marian)))): Aches all over that feel like a really bad bout of the flu describes these pains to a "T"!!!

(((Mei)))): Thanks for the ((((hugs)))).

(((Jen)))) Thanks for sharing so much of your experience. Sounds like you've been having a hard time of it

As far as seen a Rheumatologist goes, I did get a referral to one, a few years back, but he only looked at my ankles and prescribed Celebrex as needed, and that was it. I've since learned that he doesn't have a very good reputation... hence the appointment within a month of referral!!!

I will try and get an appointment with my GP, which could take as much as 3 weeks!!! Should be enough time for me schedule that appointment in my busy week and to educate myself about Fibro.

Thanks for the input and the (((hugs))).
Unread 01-29-2005, 09:44 AM
Could this be Fibro????


I'm so sorry to hear about your pain mon ami

As ((((((Sheri)))))) mentioned, I too always wondered / thought you may have FMS (been following your story over the years). It is tough to get a dx...But if you are able to see a good Rheumy, it shouldn't be a problem.

My Rheumy diagnosed me on my first visit - she checked all of the pressure points. The CFS dx came a while later. One thing I love about my doc is that if I am in a really bad flare she will squeeze me in. Her assistant is amazing and always makes sure of this when I call. You see sometimes docs have a hard time putting a name on something if you are not symptomatic. I have FMS symptoms pretty much 24/7 but there are definitely times when it is much worse. It appears that I have some arthritis in both of my feet, and at times I need the assistance of a cane - not even 40 - but 'we gotta do what we gotta do'...Right?!

I haven't looked at the FMS symptoms in a long time, but the feeling of getting the flu is one for sure. I remember before I was dx I kept going to see my GP with sore glands, aches & pains etc but he could never find anything wrong. It wasn't until my joints started to ache everyday, that I demanded to get a referral to see a Rheumy. My GP thought I was nuts (at the time) and I don't think he is one that puts a lot of stock in FMS/CFS...But he has changed his tune now. Luckily he sent me to a wonderful Doc, and she has helped me in many areas of my health.

Sorry to go on and on here my dear...Please keep us up to date. Even though I don't post as often as I used to, I do come here and to see how everyone is doing....

Sending you many Loving S
Unread 01-29-2005, 09:59 AM
Could this be Fibro????

Hi ((Judy)), my friend..I miss you

I wanted to share the dx criteria for FMS...its been awhile for me also in reading up on it.
Patients must have experienced body-wide pain for 3 months and have 11 out of 18 trigger points. Because it carries the same symptoms of other conditions; Lupus, RA; these must first be ruled out. Here is a site from our Resources that has some good info & shows the trigger points as well:

Despite the condition's frequency, the diagnosis is often missed. Patients with fibromyalgia usually ache all over, sleep poorly, are stiff on waking, and are tired all day. They are prone to headaches, memory and concentration problems, dizziness, numbness and tingling, itching, fluid retention, crampy abdominal or pelvic pain and diarrhea, and several other symptoms.
I hope this helped

Unread 01-29-2005, 04:26 PM
Could this be Fibro????

((((Judy)))) Hi mon amie, it's been too long since your last visit I do wish that you would be doing better, though I remember how great your Rheumy is... if I'm not mistaken, I may have referred a co-worker and dear friend who's also on full-time disability due to the severity of her symptoms. If only TO wasn't so far away....

((((Sheri)))) I'll be sure to check that web-site you quoted: just the little paragraph shows that identify to just about all the symptoms!!! The only symptom mentionned I don't have is pelvic pain!!!

I'll have to print the information from this thread and really study it!!!

Oh, and ((((Judy)))), you're soooo right: it's soooo hard to get an effective dx when you're not having a flare-up!!!
Unread 01-31-2005, 10:48 AM
Could this be Fibro????

((((((Dany)))))) & ((((((Sheri)))))) Sending lots of to you both. I don't post as often...but I do come by to 'see' how my sisters are doing, almost daily.

After reading my post to you again today, I realized it didn't make a great deal of sense Sorry lol!

Dany, it does sound to me that you could have FMS. I wish you could come and see my Rheumy. My dh is seeing her too (for arthritis) and I sent a friend of my sisters as well (her problems are almost the same as mine).

When you do get your referral be sure to ask for a doc who is up on FM. I was lucky with mine...But have heard horror stories from others.

When I was talking about going to see my doc when I'm 'symptomatic'...I don't think I made a huge amount of sense lol! My Rheumy checks me regularly for a few different illnesses so I try to see her when things are really bad. If you end up with a good Rheumy (I'm praying) you should be able to get a Fibro dx in your first few visits. He/She may want to rule out a few other things first though...

Please keep us up to date ((((Dany))))

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