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Surgery scheduled for 1/30/01.. Surgery scheduled for 1/30/01..

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Unread 01-18-2001, 10:04 PM
Surgery scheduled for 1/30/01..

I just found out on the Friday before New Years that I needed a TAH/BSO. I'm scheduled for the 30th. I'm a soon to be 43 year old princess (my birthday is this Tuesday). My doctor diagnosed me with complex endometrial hyperplasia with atypia along with endometrial adenocarcinoma, stage I. The cancer scares me worse than the hysterectomy but neither one is much fun. Does anyone out there have a diagnosis like mine and how was your surgery for you? How bad is the menopause afterward? I have an appointment with a oncologist on Monday to discuss the possiblity of doing a LAVH. I didn't think that was a possiblity with cancer, Anyone have the surgery done that way who had cancer?

Any input is appreciated.
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Unread 01-19-2001, 06:47 AM
Surgery scheduled for 1/30/01..

Hi Shari,

Happy almost birthday! I don't have personal experience with a LAVH as I had a TAH but I do know with the threat of cancer it does make the hyst a lot easier to deal with, at least it did for me!

As far as the menopause is concerned, I think alot depends on what type the cancer might be. Some are estrogen receptive so HRT is normally not immediately available, other types are not so HRT is an option. I don't know if the oncologist will be able to shed some light on what you might expect or if they have to wait for pathology. Mine is estrogen receptive so I'm unable to take HRT but considering the estrogen could make the cancer come back I much prefer the hot flashes

Possibly one of the other sisters will have a more similiar experience to share but in the meantime I wanted to let you know we are all here for you and wish you the best!

Take care,
Unread 01-19-2001, 07:59 AM
Surgery scheduled for 1/30/01..

Shari, I had the same diagnosis. Had an LAVH/BSO. The important thing with cancer is that they can see what's going on. With the lapriscope they can. Be sure your surgeon is skilled and comfortable with the procedure. Mine promised me that she wasn't married to the procedure and that if there was any problem, she'd go right into an abdominal. If it was abdominal, she said she'd have to do a vertical cut in case she had to take lymph nodes. They can take them with the LAVH also. They didn't take any of my lymph nodes.
I'm very happy mine was LAVH. Had very little pain, was walking right away. You still have to deal with being run down and tired. It's still major surgery, but I'm sure a big cut in your abdomen is worse.
Ask lots of questions so that you will be comfortable with your decision. Good luck.

Endometrial Cancer
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Unread 01-19-2001, 08:24 AM
Surgery scheduled for 1/30/01..

Hi Shari!
I have been given the same diagnosis, I am 43 years old and my surgery is scheduled for 02/01/01. My appointment with the oncologist is scheduled for this coming Thursday. I know just how you are feeling! The initial concept of having such major surgery was tough enough to swallow.....then the diagnosis of cancer on top of it!! However, we must stay focused on the positives.....although they may seem few and far between.

The fact that the cancer has been diagnosed prior to surgery is a big plus. It would be worse to wake up to recovery and such a diagnosis. At least now we can do our research and gather the appropriate medical information to make the best informed decisions possible. Also that the cancer will be dealt with immediately through surgery and has a very high "cure" rate is great news for both of us, not to mention the elimination of all those horrible symptoms that lead us to seek treatment in the first place!

I am planning to write down a series of questions prior to my appointment with the oncologist to make sure I cover all ground prior to surgery. My husband is also going with me to see the oncologist in order to provide emotional support and assist in absorbing the information that the oncologist will share with me. Two heads are always better than one in such situations because we have a greater emotional stake in this diagnosis that tends to "cloud" our thinking.
It is important to bring another person along to assist in sorting through the data. I hope you can arrange for someone to accompany you to your oncology appointment also.

My gynocologist has also suggested a LAVH which I plan to discuss further with both she and the oncologist prior to surgery.

Hang in there! Focus on the new feeling we will experience of freedom from the symptoms we are experiencing and the fact that they will "remove" the cancerous site from our bodies. The glass is very full and not empty by any means! Thank God for modern medicine and that we live in the best country in the world to address such medical issues and needs. Not to mention this wonderful site that we have as a fabulous resource and support network!!

Please keep us posted. I will be very interested in learning what your oncologist says and hearing about your experiences. I will do the same. Focus on your new celebration of 43 years of life!!! Happy Birthday!!!! No more periods is a fantastic birthday present! The gift of a healthy life is the best gift there is.....take care, relax, stay focused and celebrate with your family and friends!

I shall come back to this post later in hopes that some sisters who have become princesses under similar circumstances will share their stories and information with us. Remember we have been embraced by a healing circle of sisters!!!!

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