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Nerve Blocks - Rx for pelvic pain?!? Nerve Blocks - Rx for pelvic pain?!?

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  #1  
Unread 02-08-2005, 08:49 PM
Nerve Blocks - Rx for pelvic pain?!?

Finally, a Dr. who would listen. He has narrowed my problem down to either an entrapped nerve (first I've ever heard of this) or a hernia (or two). So, first off, he has recommended I try a series of nerve blocks. I had my first one yesterday and it wasn't nearly as bad as I imagined (and I'm a total wus when it comes to needles). I haven't had any immediate relief like he said some people have; but, then again, he said I should give it a good 10-11 days to see if I have relief, and scale it. If I don't have greater than 30% relief, he wants to go in laparoscopically and look for an inguinal or groin hernia. If I do have relief, he wants to give me 2 more nerve blocks (each 2 weeks apart) and re-evaluate 2 more weeks after the final block.

He has also started me on a low dose of neurontin (which I know nothing about) and Elavil (which I know little about). The neurontin makes me feel like I'm on some sort of spaced-out-high; but, I can still function normally...I'm just more chilled-out which I probably needed to be.

Anyway, has anyone else been through anything similar to this? Did you have good results or any results?

Look forward to your responses...

Thx,
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  #2  
Unread 02-09-2005, 05:51 AM
Nerve Blocks - Rx for pelvic pain?!?

Hi Lulu,
Did your Dr. mention which nerve he thought was entrapped?
I have had all of the nerve blocks and the "pudendal" nerve surgery, all caused from my hysterectomy in April of 03.
The nerve blocks are normally done as a diagnostic tool.
If u get relief, it normally means that the nerve is involved.
Neurotin is a rx that is given for seizures and has been known to help with nerve pain. It plays havoc with your memory, so be careful while taking it.
I was at the point where my son would come in the room, I couldn't remember his name!! Same goes with dates, numbers, etc. Also, knowing what you want to say, but unable to come up with the words to do so....
As for the elavil, it works great for me to help me sleep.
Drugs work different on everyone, as I am taking 1/2 of the lowest dose available, and it totally knocks me out for 8-10 hours at a time!
Trust me when I say this,
You do NOT want to have the pudendal nerve entrapped! It is the most painful thing I have ever had to go through in my life. If it weren't for the pain pills that I take everyday, I think I would be in a loony bin by now
Good luck, and I hope things work out for you.
Tay/Kathi
  #3  
Unread 02-09-2005, 09:17 PM
Nerve Blocks - Rx for pelvic pain?!?

Hi...I am in a similar situation...I had radiation therapy {if you can call it therapy} for cervical/uterinecancer. As a result, I have severe nerve damage in my pelvic area. My doctor recomended a series of nerve blocks to see if it would help with my pain and I had my first one last week. I had some initial relief for about one day and then the pain came back with vengence. He seems to think I should stick it out and have some more treatments, but I am not so sure about it helping. I'm freaked out about needles too and my experience wasn't horrible, but it wasn't any fun either. I don't know what the next step if any should be...but I sure would like some pain relief.
exhausted and scared
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  #4  
Unread 02-11-2005, 11:41 AM
Nerve Blocks - Rx for pelvic pain?!?

My situation is similar, although not identical to you sisters. I had an SI joint injection as well as several trigger point injections on Jan. 7th. Was really sore for a few days, then had a few good days and then WHAM! Pain beyond pain. Turned out I had a pretty bad kidney infection so, I don't know how much of the pain was that and how much was other things. I do know that now (after getting rid of the infection) I am in as much pain as before the injections. I have been dx with SI joint dysfunction, CMP, and severe adhesions (which I had surgery for in Oct.) Don't know exactly what is causing the pain, but I do know that it is REALLY getting me down.

As far as meds go, I was on Elavil for over 2 years (anywhere from 10 mg to 100 mg) and it helped, but I had a big problem with weight gain so recently weined off of it and upped my Zoloft from 50 mg to 100 mg (with doc's guidance -- just not my PM doc). I take Lortab 5 mg 4x daily and Soma 3x daily. I have an appointment on the 21st and am will definitely be asking for a adjustments as this isn't doing the trick.

So, while I don't have any answers for you all, I do have plenty of empathy and .
  #5  
Unread 02-11-2005, 12:57 PM
Nerve Blocks - Rx for pelvic pain?!?

The thought of trigger point injections totally freaks me out since my pain is all over my pelvic area, not just one spot. I also take Elavil 75mg at night mainly for sleep but GP said it can help with chronic pain---I don't see a diff except that it makes me sleepy...so maybe the time I am sleeping is my decreased pain time
I am not a big fan of needles either, but I am willing to try almost anything (notice I said almost) to stop this pain, or at least be able to function even at the lowest level of existence with it. I don't believe I have any nerve entrapment because my pain is the exact same thing before each adhesion removal. I guess I will find out on the 25th. The only thing I am scared off is that there will be nothing she can do for me, or she won' t change my meds or increase them and then I am in worse shape than before I went to her.
  #6  
Unread 02-11-2005, 06:48 PM
Nerve Blocks - Rx for pelvic pain?!?

Dear Marian
I sure can empathize with your pain, and am sooooo sorry! I just had my second nerve block today in two places...I didn't get any immediate relief as the doc had hoped, but maybe over the next few days I will notice some difference. I am skeptical tho. I am also on elavil (20 mg's) along with a myriad of other narcotics that are pretty heavy duty..namely fentanyl patches, neurontin(9oomg's) oxyconton (280mg's) , methadone and percoset for break-thru pain (which really works). These are all pretty intimidating narcotics and I have huge issues with using almost any of these, but when the pain is so bad I have found that one will do almost anything to relieve it. I certainly never imagined myself in this position, but I'm not giving up hope that there's someone or something out there that can help me...and you too!
I'm going to see a very credible specialist at Stanford on Monday, so I am crossing my fingers that he will come up with something
or at the very least validate that there is something else going on with me besides the nerve damage...namely adhesions in my pelvic area that can be removed (maybe with a laporoscopy?). I hope you too can find some relief for your pain. I know first hand how debilitating and frustrating living this way can be. Don't give up hope for help. And see about some percoset in the meantime.
Good luck and many hugs..................Bec
  #7  
Unread 02-12-2005, 09:52 AM
Nerve Blocks - Rx for pelvic pain?!?

Bec,

Thank you so much for responding to me
I thought I was on a lot of meds, but I think you beat me. I take MS Contin 45mg twice a day and 4 percocets a day. I am starting to get anxious about this appt. as it gets closer and have noticed it is affecting me physically. If it gets too bad, i will have to go to GP to get something for it. I talked with my mom about it and she is going to my appt. with me. DH just started new job, so he can't take off yet. I just want someone else there that will stand up for me and validate everything I say. I just want to be able to go get groceries without crying, that is not asking too much I don't think. Have you noticed any difference since the injections? My pain does not feel like nerve pain, so I am wondering if she will even give me injections if I don't have nerve pain. Mine is more of a crampy, pulling, tearing kind of pain...it is kind of hard to describe actually, but there is no burning type of pain and I have had relief from the surgeries no matter how little, but I don't want anymore surgery and they wouldn't do it anyway unless I was obstructed.
  #8  
Unread 02-18-2005, 12:33 PM
hi

Hey,
I took up to 3000 mgs of neurontin with no effect whatsoever--good nor bad. As for elavil and other tricyclic anti-depressants, they can actually be good painkillers. If nothing else, they help make you sleepy!

After Neurontin failed, I switched to Topamax, which has been wonderful--it actually took away a portion of my pain completely. Not all of it, I still have a lot of pain--but it has been amazing. It has also been helpful with my depression issues. I take 400mg right now. The only problem is that it is causing me to have some major hair loss--but it is apparently a very rare side-effect. And I don't want to stop taking it, but I may have to. : (

As for the blocks, I have been doing some heavy research and asking a lot of physicians their opinions about them, and I have been starting to feel very negative about them---it just doesn't seem worth it it me to go through the whole thing to get--what, a few DAYS worth of pain relief? Or even HOURS, some said?? And the consensus seemed to think that with the diffuse kind of pain I have, that it wouldn't be likely to even work in the first place. Just seems to be a lot of risk and a lot of physical trauma for a tint bit, or no, return. Just my two cents.
  #9  
Unread 02-18-2005, 02:04 PM
Nerve Blocks - Rx for pelvic pain?!?

That is exactly what I was thinking ((uterless))
My pain is over the entire part of my lower abd and pelvis, not just in a few places, so I wouldn't think I would be a candidite for it anyway and I dont' have the nerve pain. I have also noticed from other sisters who have posted here, that it really doesn' t work but for maybe a day or two---to me that is not worth it.....Say i do it...2 days, feeling pretty good, and then BAM here goes that same old pain again, others have reported when it comes back it is worse.
I don't have any problem doing anything if it is goingto help with mypain, including taking narcotics.....I hate that it has come to that, but without them, I am bed ridden--and I refuse to let that happen to me again.
  #10  
Unread 02-18-2005, 04:33 PM
Nerve Blocks - Rx for pelvic pain?!?

I had some injections a few years ago, and while the relief didn't last long I was very grateful for that relief. I actually looked forward to those injections. When I would go back to the doctor, he would say "do you want to try another injection?" I would immediately say "YES"! I guess it's all in your perspective. I didn't see any harm in doing them, and even though the relief was short lived, for a few days I did have some relief! I did treasure those few days.

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