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  #1  
Unread 02-18-2005, 12:19 PM
PO bleeding

I saw my FP and a new GYN this week re: the PO bleeding. I have keep records and in the last 62 days, I have had spotting/bleeding on 44. My GYN that did the surgery keeps telling me, after 7 months, it will get less and less. Hmmm

The new gyn said it would not be a good idea to try and blindly cauterize the stump, too much risk of burning through to the colon. He said he did not think any type of freezing would make much of a difference. His recommendation is to have my cervix removed using LHV. :-( I want my cervix. Waaa I don't want to have anything else taken out of me! But I hate bleeding all the time!

I have the nasty vulvodynia thing and dampness seems to exacerbate that. So, the constant bleeding is making that even worse.

the worst news was that he said that they would start out using the lap etc. but if there are too many adhesions or they don't think they can safely get the cervix and stump out, they would have to go to an open procedure. Big *sob* I paid a load for my TT and I really don't want it all cut up again! (And that sounds so snobby, please trust I am not a vain person at all the TT is about the only cosmetic thing I've EVER done) I was so afraid of how my ab. hyst would heal with that big apron of excess skin hanging there! I think most of my -85 lbs. loss was from my belly area. I am/was an apple.

I really liked the new dr. and he was SO knowledgable on vulvodynia. He made me feel like I wasn't such a freak with all that vulva pain and burning after all. He didn't ask me too many questions cause who WANTS to go into all that sexual detail with someone you just met. But he gave me a running scenario of how the pain/fear/pain cycle works with it and I felt relieved. He also gave dh and I some very good suggestions on ways to cope with it.

He said "The only definitive fix to the continued bleeding is to remove the cervix" Scary. I made the decision for the hyst. with basically the same claim. So I'm kind of twitchy on that!
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  #2  
Unread 02-18-2005, 02:24 PM
PO bleeding

Wow, have to disagree with your gyn and I'm not a doctor so take it for what its worth. I've seen several sisters post here that they had success in stopping the mini periods with a freezing procedure. I'd press for that. Sure, perhaps its not definitive, but does that mean its not worth a try? Its your choice to make.

BTW, I hope you meant that you were uncomfortable discussing sexual details ...a gyn should not be uncomfortable at all (new patient or not) and should make you feel at ease. If the gyn is uncomfotable talking about sex, he/she sure made a strange career choice.

Be good to you and don't be pushed toward a step you aren't ready to take. Get more opinions, if that will help you decide.

Best wishes.
  #3  
Unread 02-18-2005, 02:53 PM
PO bleeding

Thanks Michelle. The new gyn was quite at ease giving a very detailed scenario about how the pain of vulvodynia leads to fear which leads to tension and at the worst actual muscle spasms in the pelvis. He likened it to a charlie horse in your vagina and intercourse feeling like a rug burn. I thought he must have had it himself once to describe it so acurately.

Then he gave me a recommendation to lock the bedroom door, dh and I get naked and do anything EXCEPT intercourse. He said sometimes breaking away from the fear of the pain in intercourse will help and it also is just good for the two of you. I did get a suggestion off a vulv. email group that I should tell dh that I have to be the one to initiate sex. It was getting so stressful for me that everytime he touched me I was afraid he'd want to have sex and it hurt SO bad every time! So I had started coming to bed after he was asleep and waking up early, not sleeping well anyway and sneaking out of bed before he woke up. That was making me feel so bad and him too!

He also wanted to know if I had refills for the lidocaine gel. The other gyn said I shouldn't use it, this guy said there is no harm in using it for sex, exercising, or when urinating is irriating too.

I am getting another opinion the end of March. I'm seeing a vulva pain specialist and he is also an OB GYN. I'll see if he has any ideas on the cuaterizing thing.

I'm just tired of making these big decisions. I thought I'd made the big one, and before I could even adjust to that, another thing comes up.

then there is my bladder to worry about too. It's oversized and won't empty. He said if after the hyst. I'm still unable to empty, I am most likely going to have to self-cath forever and stay on antibiotics forever too. :-(
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