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Back under the knife again this Wed!!!! Back under the knife again this Wed!!!!

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  #1  
Unread 02-21-2005, 04:00 PM
Back under the knife again this Wed!!!!

Well It is official I have to have surgery in two days. I have to have pelvic fluid drained from my abdomen. They also think my left ovary has attached to my sigmoid colon ( could be the reason I am having problem going to restroom). I find all of this unusual because all of my pain and discomfort is on the right side. My gyn thinks the pain may be adhesions from all of my abdominal surgeries (this will be my 7th). I am very angry because I have been telling all of my medical team I did not feel well from the beginning and they saw the pelvic fluid when I was readmitted in the hospital 2 weeks post op so now here I am 7 weeks out and have to have another operation. Just as everything is healed!
Was it worth it? Absolutely NOT!!! I have replaced one pain with another and I am so sad. When I found out on Friday I had to have another surgery I truely believe I had a mental breakdown - I am so done with this. I read all the other post of the 6 weekers that feel so great and I am so jealous and I wonder why it is me that had to be the one with problems.....I feel I am letting my family down - I know my friends are sick of hearing me complain about this but it is all I can think about...I get no relief from it......It is always in the back of my mind and the pain is a constant reminder. I feel very alone. I just want it to all be over!
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  #2  
Unread 02-21-2005, 04:23 PM
Back under the knife again this Wed!!!!

you poor thing! My heart goes out to you. At this point just concentrate on one thing at a time. One day, one minute if you must. You will be better soon. Very frustrating to try to tell Dr. somrthing not right and they want to wait and see.Do not feel guilty about these health issues. We cannot control EVERYTHING. I know what you're talking about though. I have no children, and with TAH/RSO not going to. Some things are out of our hands. Keeps me humble. You will feel good one day. Focus on that! best to you and your family.Also don't assume your friends are sick of hearing you. Somrtimes it's just hard to see someone you care about suffering and there's nothing they can do to lighten your load.You're in my prayers. Speedy recovery!!
  #3  
Unread 02-21-2005, 04:31 PM
Back under the knife again this Wed!!!!

I am so sorry that this has happened to you! I pray that this time, will be the last time, and that it will make all the difference for you.

How did they see the pelvic fluid at the 2 week mark? (Unusual swelling?) And why in the world did they not address it at that time? I don't mean to be nosy; I am just a little confused.

I hope you have a picture perfect recovery this time. I am sure everyone here is behind you 100%!

You are in my thoughts. Good luck.
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  #4  
Unread 02-21-2005, 04:45 PM
Back under the knife again this Wed!!!!

News and Romani,

Thank you for your kind wishes.

To answer your questions Romani - They did 2 Ct scans on 2/14/05 and 2/15 when I was readmitted to the hospital 2 weeks post op. I was told I had C-diff (an infection of the colon) and it was believed I got this from the antibiotics I took after surgery.
I obtained my medical forms to take to my family doctor this past week because I was having problems going #2 so I thought the C-diff was back. She ordered another CT scan to determine what was wrong. I was then referred to a surgeon because fluid was still there. (I guess they were thinking it would evaporate???) We are not sure if I ever had C-diff or not because I guess the fluid can make your colon swell??? ( this is what I am being told not really sure) But to answer your question I have no ideal why no-one address the fluid issues then. I am very dishearted with my medical staff and at this point I do not have allot of faith in them but I feel I have no choice. I just want to feel better so I am allowing my original gyn to do the surgery to remove the fluid and I pray God will guide his hands so I can feel better.
  #5  
Unread 02-21-2005, 05:42 PM
Back under the knife again this Wed!!!!

So sorry to read about your post surgery outcome. I had the same problem but it has been resolved. I kept my pelvic drain until I was released from the hospital and the remaining fluid has been absorbed by tissue.

I will keep you in my prayers on Wednesday. Heal well and keep in touch with your sisters online.
  #6  
Unread 02-21-2005, 07:01 PM
Back under the knife again this Wed!!!!

I'm so sorry

I really hope this does it for you. You know that you can always come here to cry and no one will get sick of you! I'll be thinking of you.



Margot
  #7  
Unread 02-22-2005, 06:53 AM
Back under the knife again this Wed!!!!

2ofeach,

I am so sorry for what you are having to endure!

7 surgeries??

I've just had my 3rd-- LSH-BSO. And I am already thinking I'm forming adhesions, 6 weeks out of that one. One thing I am learning, from researching is the more you have surgery, the more you have adhesions, which cause more pain and problems, which makes you need more surgery, and so and and so on. Your fluid problem is unbelievable. can't believe they didn't get that the first time, etc.

Sounds like multiple adhesions is what is happening to you. There is a website for Adhesion Related Disorders, ARD, and you may want to consider trying to find a specialist that deals with adhesions, specifically, and that may use adhesion barriers, etc. when doing surgery. If not, unfortunately, if you continue to have surgery after surgery, you are only going to increase your pain and adhesions.

I only say that, because I am learning the same thing, earlier than you are.

If you have already had 7 surgeries, and this is where you are, something isn't working.

I'm a little angry, because the surgeon that did my hyst didn't really use any adhesion barriers, so I am sure I am going to have further problems, and he didn't bother to look at my gallbladder area, where I've had previous adhesions from gallbladder removal, and I'm already having pain from that, again.

However, I'm determined to stay away from any more surgery, if I can possibly help it. Unless I have a bowel blockage, or bowel problems from adhesions, I'm staying away from further surgery and I'm going to try to control any pain with pain management doctors and natural methods...if I can help it. If I have to have another surgery, I'm going to be very selective with my surgeon the next time, and find a specialist who uses adhesion barriers.

From what I am reading, if you continue to have repeat surgeries--even though yours sounds warranted, because previously they didn't know what they were doing--the adhesions and pain only get worse.

I just feel so bad for you, because it is a toll on your physically and emotionally, obviously.

Although you may not be in the space to take a look now, when you do get a chance, here is the Adhesions Organization website, which might be of help to you and others.

www.adhesions.org

My prayer for you, is that you find an expert physician that can take care of your issues once and for all. If I can help you locate one, let me know. It sounds like you need a specialist.

Good luck with this surgery, and my prayers are with you. You deserve some relief, finally.

Lisa
  #8  
Unread 02-22-2005, 09:57 AM
Back under the knife again this Wed!!!!

Lisa,

Thank you for your post.......It was very insightful. I did check out adhesions.org and I found the study with Celbrex very useful! I am going to request (demand) my surgeon give me a perscription for it becausei the study looks very promising! Again THANK YOU!!
  #9  
Unread 02-22-2005, 10:16 AM
So Sorry to Hear about New Surgery

It's been one week post-op for me, and ALREADY I'm having misgivings about having it done! I'm STILL all swollen "down there" (classic "swelly belly), and had constipation SO BAD that I had to chug citrate of magnesium just to go at ALL. That was VERY painful. I'm beginning to wonder if I had just let it alone (the cantaloupe-sized fibroid), I would have been better off? I have my first post-op visit with the doctor on Friday. My incision is STILL bleeding and draining. I weighed 127 when I went in, but now weigh 133 from all the swelling. Most of the pain is around the incision site and the bowels. I worry about adhesions and bowel blockages now, too.

SEVEN SURGERIES! You must be BEYOND crazy by now. I would seriously consider getting a third, fourth, and fifth opinion. Still, I know how frustrating it is, because the insurance companies rule everything the doctor does. She had to discharge me late Thursday night, against her better wishes, because my insurance wouldn't pay for a third night. She was VISIBLY ANGRY because I had to endure an hour-long drive back home. She made sure I was given Percocets before we stopped at the drug store to get more of them.

Still, I'm already peeing more freely. It's only been a week, so we'll see. I'm also angry at the anesthesologist for claiming I'd "wake up in no pain" after surgery thanks to his "morp-pak." NOT TRUE! I was in AGONY! The demerol they gave me was useless. It took my sister, an OB/GYN in Minnesota, to finally call them and convince them to put me on a 12-hour morphine drip to control the pain before the Percocets did any good at all.

Now I'm just complaining about myself. I have it EASY compared to you. You have to GO BACK THROUGH IT ALL OVER AGAIN! God bless you and I will be praying for you. God, please guide the hands of the doctors and remove this dear woman's pain once and for all!
  #10  
Unread 02-22-2005, 11:57 AM
Back under the knife again this Wed!!!!

2ofEach, I know too well what you are dealing with. I just had surgery #8 on Feb 7, 10 months after my hyst/bso. One year I had surgeries 4 within 4 months and an infection and a two week hospital stay. You are not alone. I will keep you in my prayers and let us know how you are doing.

Carrie
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