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Another surgery and feeling sorry for myself Another surgery and feeling sorry for myself

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  #1  
Unread 02-21-2005, 07:35 PM
Another surgery and feeling sorry for myself

Hi...

I had an LSH performed 9/04 by a doc that I'm guessing has hyperactive attention deficit disorder and a HUGE ego. He said I had a complex cyst on my ovary that needed to come out to rule out cancer, and, while we're in there, why don't we just take out your uterus because of them fibroids? They have a Di Vinci Robot at the hosp and he was itching to use it. He talked me into keeping my cervix even thought I'd had carcinoma in situ just 14 months before. If we'd done an LAVH he couldn't use the robot. I kept having to remind him of the CIS, even though he is the one who did the LEEP.

Turns out he misdiagnosed the cyst--it ruptured before they did surgery and it was a functional cyst, not a complex one. He left some old endo because he didn't think it was bothering me. And...I'm now on my 6th painful mini period. This was the best surgery he'd done so far and is running around showing the video to his colleagues.

I went back to my old wonderful doc who I stopped seeing when I moved 90 minutes away, 4 years ago. When I moved he warned me not to go to the particular hosp I went to in my new area unless I had one stitch I needed in my finger, because he thought that was about all they could handle. I thought he was being a little snobby at the time--he's the director of ob/gyn at a famous hosp and a professor at a prestigious medical school. When I went back to him he said "I told you so!"

Now, I've got another cyst (clearly functional, but large and causing pain) on my ovary, my other ovary cannot be located (we did 2 ultrasounds) and "mini" periods that last 6-12 days. He's really enjoying being my Knight in Shining Armor--called me 3 days in a row to see how I was feeling. But the pain increased so we decided to go for surgery.

In a way I'm really glad about it. I will feel much better after he's had a good look around in there. The other doc told me in recovery that my ovaries were stuck together and about the old endo, then forgot about it by my 2 week post op. And my diagnosis post-op said I had a cyst on each ovary, one complex the other corpus luteal. The corpus luteal cyst had ruptured and consequently no oophorectomy was performed. But he didn't address the complex cyst in the report at all! When confronted he said "Uhh...I guess you had a cyst on both ovaries and they were both functional and resolved (even though the pictures showed one ovary to be "pristine"--his word). I've been so confused and angry! Believe me, I confronted him many times on many issues, like why in the **** would you consider me a candidate to keep my cerivix?! He was defensive, talked in circles and then brightened and said "But if we have to take your cervix out we can use the robot!"

So, now I'm popping vicodin and waiting for my surgery date. Gee, next time I'll follow my gut and get second opinions *before* surgery. What a fiasco!

On the bright side, I know I'm going to get really good care this time and I'm back with the good doc (even if I do have to drive on 5 different highways to get to him!). And I'll be milking my princess status again. And my DH can redeem himself by making sure to be there when I'm in recovery this time! And, I'll be in the unique position of knowing whether keeping your cervix really does make a difference sexually.

Thanks for listening . It really helps to complain!



Margot
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  #2  
Unread 02-21-2005, 07:50 PM
Another surgery and feeling sorry for myself

Margot................you do wonder WTH these dr. are thinking! It's our body, not their experimental machinery we are worried about. I'm so sorry your having pain. I do know that a wonderful dr. is a true gem and worth a long drive.

I am also very interested in your outcome. I had SAH for fibroids. My gyno sold me on the supra-cervical with the pelvic floor support issue and sexual pleasure issue.

Well 6+ months later I'm STILL bleeding almost everyday, have had 9 uti's, sex is unbearably painful because of vulvodynia since surgery, my GP thinks it's the kind that is from pudendal nerve damage, thanks GYN! And I have a rectocele, so much for pelvic support.

I got a second opinion from a new dr. and he said he never does SAH and if Iwant the bleeding to stop the only way is to remove my cervix. I don't know what to do!

I have an appt. with a vulva pain specialist the end of March. He's also a GYN and said he will give me his opinion on removing the cervix.

Will you please share your outcome? Also, how are they going to remove yours? The guy I got the second opinion from said he would try and use a lap assisted removal but if there were too many adhesions he would have to go thru my abdomin again. THAT really made me sad. I had a TT at the same time.

Good luck to you and I hope you get all fixed up this time. My GYN was very specific that if I had ever had ANY kind of thing with my paps he would not leave the cervix. I can't believe your dr. did!
  #3  
Unread 02-21-2005, 08:36 PM
Another surgery and feeling sorry for myself

Tacy,

I'll be glad to share my outcome with you. I hope you finally get some relief. I remember you and you've been suffering for a long time, girlfriend!

My new/old doc said that he also does not do supracervicals unless the patient insists. He does not subscribe to the better sex/pelvic support theory either. And, he says that 5-10% of the time, whether cauterized or not, women end up with the mini period. *And* he said that caurterizing post surgery does not work: You can't burn the bottom of the cervix to stop bleeding that it coming from the top. I'd posted that question a few times and never got a response, 'cause it didn't make sense to me either.

He'll be repairing my urethra, too, so I can pee when I feel the urge instead of sitting there and pushing, and *not* pee when I sneeze and cough. This was something the first doc could have done. Right, so much for pelvix support! The fact that he left my cervix made my current doc hopping mad!

He's going to do everything lap...yay! I've had a c-section and then the LSH, so hopefully I don't have many adhesions. But I *am* wondering if my left ovary is stuck to something. I guess it could turn into an abdominal, but the doc doesn't think so. I guess you and I will be getting the fancy vaginal cuff!

I'm so sorry things have turned out so poorly for you. Let's keep in touch.



Margot
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  #4  
Unread 02-21-2005, 09:04 PM
Another surgery and feeling sorry for myself

Hi Margot and Tacy

I just read your posting and replys. I just want to wish both of you the best of luck with your surgeries. It sounds like this time it will be done correctly! Having good and trusting doctors make all the difference in the world.It sounds like your dr. had too big of a ego for his own good. It will catch up with him one day.

I go for my four week post op tomorrow. I have a small cystocele now, so I am afraid my gyn may find it has gotten larger.

Good luck both of you and I'll keep you in my prayers.

s

Peggy
  #5  
Unread 02-21-2005, 09:25 PM
Another surgery and feeling sorry for myself

Thanks, Peggy!

Good luck tomorrow. I hope this is it for you!



Margot
  #6  
Unread 02-22-2005, 04:29 AM
Another surgery and feeling sorry for myself

Well....I'll just get in line!!

I'm a wee bit over 4 months and I've got what was termed
" herniated urethra"....a mini cyctocele you'd say as the bladder hasn't fell.....yet!!

Confuses me and 2 Dr's as to why this happened....but it did.

My repair will be done with mesh and as an outpatient as I don't wait till it gets worse and makes a bigger mess!!

Gravity *****!!!
  #7  
Unread 02-22-2005, 05:40 AM
Another surgery and feeling sorry for myself

Should we re-name this thread? Sorry saps :-)

Waa I want someone to fix my pee problem before I submit to anymore surgery I am going to have answers with that!

The darn bladder just will not empty! One uro. said it's atonic, the gyn says noWAY, another uro says looks fine to me, The best dr. I have on my team is my GP. He actually called my gyno the day of my last appt. with him. He said the gyn was defensive that he was saying he had done something wrong. I just want to quit bleeding. I don't think he did anything wrong.

I can get behind some of the theroies of leaving in the cervix. My sex life is so bad now I'm terrified of making that worse. It's difficult to figure out what is urethral pain, uti pain, vulvodynia pain, chronic irritation from a constant light blood flow.

this a.m. I'm feeling so lousy I'm worried this uti that has not gone away in a month with two different drug therapies has advanced to a kidney infection.

Something seems messed up with my bladder when even when I self-cath it trickles out slowly and I have to strain to get it to empty. Straining is so not good for the rectocele. My diet has been poor from feeling so crummy.

Well wasn't this a pleasant morning sob story. I'm sorry. And I'm sorry the new sisters reading this. Please realize most people get along great. A few don't and we keep posting looking for answers and support or we'd be going postal out here in the real world where everyone has long forgotten about our surgeries.

Margot where will you be having your surgery? Do you have to stay overnight? AND my biggest concern, is insurance going to cover this? I can just see my insurance saying hey we paid for the hyst. this isn't out trouble!
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