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adhesions, adhesions adhesions, adhesions

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  #1  
Unread 02-23-2005, 08:48 PM
adhesions, adhesions

Help!
I've had three surgeries to have adhesions removed and tried the films. After the cesarean birth of my fourth child (all of my deliveries were c-section), the doctor spent one and one-half hours cutting away adhesions and this was after it took him an hour of cutting to be able to reach my uterus to get my daughter out. I had a hysterectomy in 2001, for prolapsed uterus and they told me this would also help with the adhesions. Guess what? The pain is back and just as bad, if not worse than ever. I would willingly go through this again to have my children but it would be real nice to be able to enjoy them without being in constant pain and being careful of turning too fast and feeling that ripping pain. I can feel the adhesions behind my incision scar, they run hip to hip and feel like the circumference of a rolling pin. My tummy is supersensitive to the touch and how do you explain to little ones that Mommy is doubled over in pain because they wanted a hug and their head pressed into my belly? My Dr suggested to me a few years ago that I would just have to schedule surgery every two years to have them removed as I am just pre-disposed. For obvious reasons, I'd rather not. Has anyone found anything to relieve the pain even a little? It is a major interference in day to day life. I would appreciate any suggestions!
skspat
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  #2  
Unread 02-24-2005, 01:24 AM
adhesions, adhesions

Hi,
I'm so sorry that your going through all that pain. I have been lucky to not have had to experience that monster. I do know how had it is to raise your kids in pain and I truly feel for you. I can only hope you find so relief soon. Here's a (((((HUG))))) just for you!
  #3  
Unread 02-24-2005, 07:49 AM
adhesions, adhesions

Hi! I'm sorry that you are in so much pain! Adhesions are so awful! I can completely understand where you are coming from! My last surgery for adhesions was in August of 2004 and I started having pain again in December. (They were back that quick ) I debated on what to do and finally decided that I was going to have to have surgery AGAIN because the pain had intensified very quickly - so I was afraid that my bladder had been involved this time. (it had been in the past) So I called my doctor and she basically told me that we were not going to do any more surgery. Unless I started having very specific symptoms indicating that there were issues with my bowels or bladder, my adhesions were mine to keep. You could have knocked me over with a feather. That woman had seen me naked almost as many times as my husband!!! But then she said something that I was really skeptical of - she suggested that I go to a Pain Management Specialist. I've heard of people seeing them for back pain, but never for CPP or adhesions. So I grudgingly agreed to go. I guess I'll say, I'm glad I went. The PM doc was great. She has helped me get my pain under control - I don't have to roll into a defensive ball every time my five year old comes running towards me! (I know how it feels when they bump into your belly and you feel like someone is going to have to scrape you off the ceiling!!) So I guess what I'm getting at, if you aren't interested in constant surgery - and you already know that you will always have adhesions to deal with - as will I. (Aren't we SUCH LUCKY LADIES!!!??? ) Perhaps you would want to speak with a pain management doctor? Try that route? As my PM told me, "the adhesions can not be cured - but the pain can be treated. And that will greatly improve your quality of life."

I hope this helps a little bit!!! Good luck to you!

Take care!
Cortney
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  #4  
Unread 02-24-2005, 10:18 AM
adhesions, adhesions

I am also a sufferer of the adhesion monster and have my first appt with a chronic pelvic pain specialist tomorrow. The last surgery I had, they used the Seprafilm and in 4 weeks the pain was back and worse than before----it is always worse each time. Surgery is not an option per my doc and by me unless things get really bad and I start having symptoms of bowel obstruction or problem with my bladder. When I had them mostly removed last time, it involved my bladder, large colon, small intestines, rectum and vaginal cuff. You need pain management, talk to your GYN, surgeon, or GP about it and hopefully they can find someone to help you. I actually had to call every pain clinic in the phone book and ask "do you have any experience in chronic pelvic pain?" I got a lot of no's until one nurse suggested the doc I am seeing tomorrow---that is her specialty along with pain during pregnancy. I am excited and scared at the same time, but know that I have to go---but I also know that if she can't help me, I will call from here to California to find someone that will. I am unable to work because of the pain--I never returned after my last surgery. I just wanted you to know that there are some of us out here that understand exactly where you are coming from. Please let us know what you find out.
  #5  
Unread 02-24-2005, 10:33 AM
adhesions, adhesions

Thanks for all of your support!
My husband thinks I'm out and out nuts at this point. I guess its one of those things where if he has never experienced it he can't understand it. What do you mean by pain mangement Drs? I live sort of in the sticks and that term is not something I am familiar with. I have found that for the absolute worst of the pain, a combination of darvocet and flexirol helps alot, but then I am absolutely useless to work, drive or play. And the Doctors don't want to prescribe this often because to be honest I think they think I'm nuts. To quote a thread I read last night- like I would make this up. I have an appointment Mon. to discuss HRT with my Doc. It has been over two years since my surgery and none of the doctors I have seen have ever suggested getting my levels tested, because, I assume, I kept one ovary. My sis had a hyster less than a year ago and she has been tested repeatedly. When I found this site and started to do research, I couldn't believe how eerie it was to read the symptoms everyone describes- it could be me. So I'm taking the bull by the horns and demanding the help I need to be me again. I remember the me that had boundless energy, slept at night, and loved life- I want me back!
skspat
  #6  
Unread 02-24-2005, 10:56 AM
adhesions, adhesions

A pain management doctor is an anesthesiologist who helps patients manage chronic pain. Normally, you would have a primary care doctor refer you such as a GP or Gyn ... whoever has been trying to help you with your condition that is causing the chronic pain.

From what I understand, your symptoms will be evaluated and you will be placed on routine pain control medicine. You will sign a contract that says you will not take any pain relievers that are not prescribed by that PM and that you will adhere very strictly to orders.

Some of our sisters have found quick relief and others struggle to find that right combination of treatments for the pain.

Best wishes to you on finding a pain free life!!!

  #7  
Unread 02-24-2005, 11:01 AM
adhesions, adhesions

Michelle,
Thanks so much for the info. I will discuss this with Doc at Monday's appt.
skspat
  #8  
Unread 02-24-2005, 01:02 PM
adhesions, adhesions

Yes, Michelle is right - my PM doc put me on two types of meds. Neither one of them are narcotics. It makes it nice, because I do not feel like I am "high" or unable to function! I am relatively pain free and able to play and do things that I haven't been able to do in a long time. She gave me an option of several things to try...and if they did not work, was willing to try other things. Her goal was ultimate pain control. And she was willing to do whatever it took to acheive that goal. I did have to sign a contract with her that I would not take anything other than what she was giving me without her consent - this prevents any interference in her treatment, particularly if she is giving me narcotics. That was something I could deal with. I highly encourage you to explore this option. I never would have thought that this was a possibility before a month ago....I really hope you can find a good clinic in your area! Do you have a sizable hospital in your area? If so, you probably have a Pain Management Clinic. Good luck and let us know how it goes!

Cortney
  #9  
Unread 02-24-2005, 01:31 PM
adhesions, adhesions

Great- story of my life!
courtney,
I read your PM and was excited to see that you are taking a drug that is not a narcotic and it was helping you. I can't take the Lodine because I can not take NSAIDs...but I looked up Topamax in my drug book.....and low and behold...it has sulfa base and I am highly allergic to Sulfa! I had to be hospitalized the last time I took it when we found my allergy to it
I am so glad you have found something that is working for you. How often do you go to see your PM doc?
Can you tell I am nervous about tomorrow?..LOL
  #10  
Unread 02-24-2005, 01:44 PM
adhesions, adhesions

Of course! It always seems to work that way! But hopefully something will work for you! I just had my second appointment with the PM yesterday. And then I go back to see her in three months. And from there I go every three months, unless I need to see her more often. She also suggests alternatives to meds. I don't know how much you believe in things like this, but she gave me a catalog that sold other products in it and she highly recommended that I purchase a certain magnet. She said that it had worked really well for other patients. I don't know about that, but apparently it has worked for some people.

I really hope you have a positive experience with your PM. Please let me know how it goes! I'll be thinking of you!

Cortney
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