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ovary removal 4 yrs after TAH ovary removal 4 yrs after TAH

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  #1  
Unread 03-03-2005, 05:20 PM
ovary removal 4 yrs after TAH

I had TAH 4 yrs ago, kept both ovaries. Went to Dr 2 yrs later, severe pain lower right side, had tests - determined I had mass of cysts on ovary. He said it could also be adhesions and that it if got unbearable he would most likely have to remove the ovary...well....it got much worse. Pain so bad I have to get in fetal position and it takes my breath away. I am scheduled to have right ovary removed on 4/8/05. He said he will check left and whole abdominal area for adhesions and if he sees anything else he will have to cut me as he did for TAH, but won't know until he starts laprascopy. Does anyone know if cysts would only cause the pain at certain times of the month? This used to be the case but it has become more frequent which makes me afraid there is scar tissue and I will haev to be cut. On the same subject..I am having a barium enema Tuesday to prep for this surgery, sounds horrible, anyone had that experience? ANy words of advice would be greatly appreciated! Sorry this is so long.... thank you again.
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  #2  
Unread 03-03-2005, 08:26 PM
ovary removal 4 yrs after TAH

Oh (((((sweetie)))) I'm so sorry you're having such a rough time of it right now

I have no experience with ovarian cysts, but know there are others who do. I'm sure they'll be along, soon, to share some insight on the issue.

I did want to send some gentle s your way and to wish you the best of luck with your upcoming surgery.
  #3  
Unread 03-03-2005, 09:09 PM
ovary removal 4 yrs after TAH

if its hormone triggered for eg an endo cyst i dont see why not .. im really sorry you have ot bear up with all this .
My ovary was blown up and stuck to a gut .Im just glad both are gone now

mei
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  #4  
Unread 03-04-2005, 01:04 AM
ovary removal 4 yrs after TAH

Hi LeslieB,
I truly feel your pain and am sorry to hear your going through it too. Before I had mine removed with my TAH, I had cycst many times. It was always on my right ovary. I could tell I was getting one when my normal period pain got worse every month. When the pain became an all the time, can't get out of bed thing, I had to have the cysts removed. I waited to long twice and the cyst burst. Thats the worst pain I ever felt. I was driving with my brother to work the first time one burst and I passed out! My brother had to grab the sterring wheel. He pull the car over and to me to the E.R. I'm so glad your Dr. is taking you seriously and going to help you. You'll feel so much better after they are gone. It is common from what I here to have cysts, but when they cause pain you need help. Both times they burst on me, I had a dr. that didn't belive me about the amount of pain and was told it's normal to have cysts. At the time of my TAH I did have 3 little ones that didn't cause me pain. Good luck and keep us posted.
  #5  
Unread 03-04-2005, 03:33 AM
ovary removal 4 yrs after TAH

I had a TAH almost two years ago. I know exactly the pain your talking about. I've had very large cysts on my right ovary that burst, and knocked me on the floor litterally, ouch! My DR did a laporascopy last month to remove the ovary and adhesions but found it to be too extensive for her to do at that time because my small and large intestines are stuck to the ovary. She told me she was going to have to do a laparotomy in order to clean it up. She thinks the cysts rupturing is what caused everthing to stick together. I'm not so sure, because I new I wasn't healing right about 3 days after surgery. The cysts started giving me problems a couple monthe later.
When I went back for my two week check, I told her I wanted this done with a Laporoscopy and Seprafilm. The risk for more adhesions are greater with a Laporotomy, and Seprafilm is a barrier used to help reduce adhesion formation. I feel truly blessed because she found me a surgeon who can do this. The less invasive the surgery the better. So I'm praying that my bowels won't be punctured while the surgeon removes the adhesions, and ovary. There are adhesions on my left side also but I don't feel them and they aren't causing me any problems, so they are being left alone.
I've never done a barium enema but will have to for my upcoming surgery so you can let me know what that is all about. LOL. It can't possibly be worse that ovarian cycts.

Michelle
  #6  
Unread 03-04-2005, 07:26 AM
ovary removal 4 yrs after TAH

LeslieB,

I'm sorry to hear about your pain. Boy can I understand! Reading your message is like reading my own experience. (And based on my experience, the pain I experienced was monthly, during when my ovaries would ovulate.)

I had a radical TAH in June 2000. My ovaries were transposed (moved out towards my hips) in the event I needed radiation. Exactly one month to the day after my TAH, I had a sharp, shooting pain in my right side, like someone was driving a knife into me. It was awful. (Ironically, my 2nd opinion doc said he would remove my ovaries because of cyst risks, but my doc wanted to keep them because I was 29 at the time.)

My doctor explained to me that the ovaries are still trying to do their "job". They're going to continue functioning and produce a follicle / egg each month. The only problem is, that egg had no where to go (to the uterus). So it was like having new road construction down there with no detour signs... my ovaries were so confused. The pain was so bad I was laid out on the couch for at least one day, popping pain meds like candy.

After 4 years, the pain became so bad that I couldn't stand up straight, drive... I was worthless. (Some months I was fine, others not so fine.) An ultrasound showed the cyst, so large you couldn't see the ovary. I had the RSO on 8/10/04 and my doc found the tube was filled with fluid and inflamed. I also have significant adhesions (my doc says they're like concrete). Turns out my right ovary and cyst were the size of a child's football. No wonder I was in pain! HA!

Fast forward two months and the left side all of a sudden started giving me trouble. Out of the 4 years of pain on the right side, I maybe had 3 to 5 episodes with the left. Now that she was all alone, she must have felt neglected, so she decided to join the party and get nasty. The ultrasound showed another cyst. I had the LSO on 2/11/05 to remove the ovary and the cyst this time the size of a grapefruit.

Sometimes I wish I could have had enemas to prep for my surgery. For 4 out of my 5 surgeries, I've had to drink GoLytley the night before to clean out the plumbing. Good Lord, it's awful, and I'm sure right up there with an enema. Hang in there sister!

Best of luck to you!!!

  #7  
Unread 03-04-2005, 08:58 AM
Re: ovary removal 4 yrs after TAH

  Quote:
Originally posted by LeslieB
On the same subject..I am having a barium enema Tuesday to prep for this surgery, sounds horrible, anyone had that experience? ANy words of advice would be greatly appreciated! Sorry this is so long.... thank you again.
First of all, let me say that I am sorry that you are having to go through this and makes me glad that I decided to let my ovaries go.
A barium enema is used for diagnostic purposes (xray)...I have never heard of it used as a "prep" for surgery. The reason being, is that the barium will not clean you out---actually barium usually has a hard time leaving the colon because it can turn into a cement like consistancy. Are you sure they said barium enema? Did they mention taking xrays? What they do is stick an enema tube through the rectum and inject barium into your large intestine and take xrays to look for obstructions or polyps or masses in the colon.
  #8  
Unread 03-04-2005, 09:22 AM
ovary removal 4 yrs after TAH

Before my TAH/BSO I had two ruptured ovarian cyst (worst pain ever experienced), I also had one grapefruit sized cyst removed, and many that came up and went away on their own. Yes, all this was painful and troublesome, but the WORST thing that has ever happened to me in my life was having my ovaries removed. My life has been a living hell since the oophorectomy. No one ever told me the ovaries are endocrine organs and effect so many other aspects of our health. Problems I've had to deal with since the oophorectomy include, bowel, bladder, skin, insomnia, emotional blunting, cognitive problems, memory, hair loss, osteopenia, dental, autoimmune, two strokes and heart problems. Oh, and total loss of libido. ALL of these problems were caused by the oophorectomy. If I had it do all over again, there is no way I would give up my ovaries. I would go to a reproductive endocrinologist for a complete workup instead of an OB/GYN, (One that specializes in polycystic ovary syndrome.)

Of course, if I really had it all to do over again, I wouldn't have had a hysterectomy either; if for no other reason than that they tend to do just this; mess up the ovaries and eventually cause them to fail. I'm so sorry you are suffering so much now. This is a very hard decision but I just felt like I needed to tell you what can happen if you give them up because no one told me and I really resent not being given ALL the information before I submitted to surgery. Every woman deserves to make her decisions based on all information available; that's the only way it can truly be an informed decision.


Best wishes,
  #9  
Unread 03-04-2005, 10:08 AM
ovary removal 4 yrs after TAH

Hi, Leslie -
Cysts can cause pain, and sometimes that can be at ovulation times - I had cysts off and on for many years. Sometimes cysts rupture and go away on their own - that could cause pain during that process; others just come and go silently and you may never even know there was a cyst. It's pretty variable.

A related problem with ovaries/cysts - the pedicle (part that attaches to you inside) can get twisted, and that can lead to really severe pain (I had that). If there is a large cyst, the weight pulls the ovary down and that can lead to the twisting. It can also lead to blood supply to ovary being impaired and various other problems.

So there are several things that could be causing your pain, not necessarily adhesions.

And barium enema - a diagnostic tool as another poster mentioned. It's not a pleasant experience, and you do have to use some laxatives and a regular enema first to get cleaned out. When the barium goes in it will cause cramping, gas pain feelings. I had one 35 years ago and didn't know enough to request sedation, but now I think you could request some sedation for the procedure. You can have sedation for colonoscopy and flexible sigmoidoscopies now, so I suspect you could have it for a barium enema also. I had sedation for both flex. sig. and colonoscopy and didn't feel a thing.

Another diagnostic tool that you might have is an abdominal CT with contrast. You drink a couple quarts of something like barium, have an IV with a contrast solution, and they do a CT scan. It's icky stuff to drink, but the procedure is not painful and even as big a chicken as me didn't require sedation for it. I had that last fall since my MD was looking for GI problems to explain the bloating and pain I had, and that's what showed the ovarian masses that led to my TAH/BSO.

None of these are fun - but to find the cause of and get rid of the pain makes it doable.

Hope this helps - and btw - I don't regret having a hysterectomy, but it was sure something I never thought would happen to me - I'm still in shock over that! I was already post-menopause and I already had osteoporosis, so not any significant problems because of ovary removal.

and do ask about having sedation for the various procedures - it really helps!
  #10  
Unread 03-04-2005, 10:32 AM
ovary removal 4 yrs after TAH

Marian
Ha, and I thought I was so smart! I just assumed a barium enema was the enema you got as a prep for surgery. My DR said I would do a liquid diet before the surgery and I just assumed an enema the night before. So if I have to I guess it would be Fleet! I'm learning all kinds of stuff since having this surgery

Michelle
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