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ovary removal 4 yrs after TAH ovary removal 4 yrs after TAH

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  #11  
Unread 03-04-2005, 01:08 PM
To BSO or Not to BSO

Can I ever relate to this thread. Its such a tough decision ... do I keep them and keep the problems they are causing, or have a BSO and deal with those problems?

The endo specialist says the endo has invaded my ovaries and they are severely malfunctioning and I will feel so much better once I have the BSO and we have me on a steady dose of hormones. He says no two days are alike for me and that is causing system wide problems.

I am trying Yasmin continuously right now and my face is breaking out, I am nauseated every time my stomach gets empty. Still having some pain and I am exhausted by the time the kids go to bed (8:30). I'm having what feels like sugar crashes, but no sugar. Some brief blurring of vision. I had a flushing feeling yesterday, became really dizzy and thought I might faint. The first 4 weeks went well. This week 5 has made me question why I am delaying surgery.

I have learned so much from my dear sisters. If I have the BSO, I will be on as much hormone replacement as necessary until I feel like me, but I will start on low dose and take only what I need. I will ask for bio identical and not be afraid to ask for individual dosing. We have a componding pharmacy here. I see no reason why I should settle for standard dosing, if its not working. And, being a horse lover ... no Premarin for me. All this will be agreed to in advance (probably in writing).

Still, the girls are mine and I have been stubbornly hanging on to them thinking things could be so much worse. And now I am at that point where I am thinking .... could they really be WORSE?

May God watch over and bless us all during this difficult time of decision and waiting.

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  #12  
Unread 03-04-2005, 04:16 PM
ovary removal 4 yrs after TAH

  Quote:
Originally posted by missdaisy
Marian
Ha, and I thought I was so smart! I just assumed a barium enema was the enema you got as a prep for surgery. My DR said I would do a liquid diet before the surgery and I just assumed an enema the night before. So if I have to I guess it would be Fleet! I'm learning all kinds of stuff since having this surgery

Michelle
LOL..no problem...I am sure many think okay enema--its going to clean me out, but unfortunately with this kind of enema you need something to help clean the barium out after you are done. I have never had it done, but taken care of patients before and after---no fun from what they tell me..lol
Yeah, Fleets enema night before surgery...I had to do it for all 3 of mine and liquids the day before.
Michelle---its a shame that you have to learn all of this cause you have to go through all of this huh?
  #13  
Unread 03-04-2005, 05:23 PM
group answer to my post :)

Thought it would be easier to just answer and thank everyone all at once. I was mistaken about the barium enema, it isn't being used to "prep" me for surgery (saving the fleet for that), I guess he wants to check for any other problems before the surgery. I guess I wanted someone to tell me what my chances are that I will have to be cut, but I know no one can do that. I'm not up to all of the abbreviations yet, but for those of you who have had your ovaries removed, was it laprascopy or full wide open cutting surgery? That I think is what I'm most afraid of. Just wish there was a way to know before that day if I do have adhesions or simply a bad ovary. Thanks everyone, you have all been so helpful! And I WILL ask for sedation for the nasty barium test. Thank you again and God Bless.
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  #14  
Unread 03-05-2005, 09:24 PM
ovary removal 4 yrs after TAH

I feel your pain!!! I must ask you first, have you ever taken the kemo therapy drug called: Mexetraxate? It was given to me for an extopic pregnancy as an alternative to removing the tube. Anyway, I like yourself have recently undergone surgery due to cysts. I was hospitalized for an emergency syrgery due to the rupture of the left ovary. Upon exploration they discovered everything was consumed by cysts and after a six hour procedure I came out of sergery with 6.8cm of a right ovary and part of my uturis. I told that the cause was an overproduction of estrogen but now just five short months later the cysts have returned and next thursday I am scheduled for a full hysterectomy. I have gone for several different opinions to rule out things like Polysystic Ovarian Disease, done a lot of homework but can never gotten a straight answer. I am a healthy young woman who has never been hopsitalized a day in my life and am now all of a sudden having these life altering problems.
  #15  
Unread 03-06-2005, 12:10 AM
ovary removal 4 yrs after TAH

Blanka, You said, " I have gone for several different opinions to rule out things like Polysystic Ovarian Disease, done a lot of homework but can never gotten a straight answer."

If this is still your same situation, I hope you will hold off on this surgery until you DO have ALL the answers to your questions. As you know, this is serious, life-altering surgery and if your doctors cannot explain, in detail, to you your diagnosis, treatment options and all long term consequences, I would hold out for a doctor who can.

Best wishes,
  #16  
Unread 03-06-2005, 10:40 AM
ovary removal 4 yrs after TAH

  Quote:
Originally posted by Lucille in CA
Blanka, You said, " I have gone for several different opinions to rule out things like Polysystic Ovarian Disease, done a lot of homework but can never gotten a straight answer."

If this is still your same situation, I hope you will hold off on this surgery until you DO have ALL the answers to your questions. As you know, this is serious, life-altering surgery and if your doctors cannot explain, in detail, to you your diagnosis, treatment options and all long term consequences, I would hold out for a doctor who can.

Best wishes,
I TOTALLY AGREE!!! If your current doc can not give you a diagnosis or explain what your problem is, I certainly would not agree to let him perform surgery and remove everything.
I would most definately get a second opinion. If this doc is your second opinion, then get a third.
Having a hyst is definately a life-changing surgery and should not be done just because they can't find anything concrete. I would definately want a straight answer before going through this major surgery.
  #17  
Unread 03-08-2005, 01:07 PM
ovary removal 4 yrs after TAH

Miss Daisy (and all)
you asked me to let you know how bad the barium enema was...it wasnt nearly as bad as I expected! The prep for it and the anticipation was way worse. Not that I would volunteer for another, but it really wasnt that bad. The internal sonogram on the other hand was terrible, seems my bad ovary didnt want to be seen! After 1/2 hr internal and 1/2 hr external she was able to find it, waaaay up in the belly button area. She did see some minor cysts but was very concerned that she had such trouble finding it, when at the last test about 1 yr ago it was where it was supposed to be. This leads her to believe my problem is not cysts but adhesions pulling up on the ovary. So it sounds like yes, he will have to cut me to remove it, atleast in my opinion. She also said anytime she has such a hard time finding the bugger its due to adhesions blocking the view. Anyone have experience with this? I'm preparing for the worst with surgery on 4/8, but hoping for the best. I so do not want to be cut again! Now I also have to decide do I want to leave the other ovary for now? And risk this again? Isnt it true the more times you are cut the better the chance for adhesions? I really thought this would be over with once I had a hysy....never thought I would have to be here again. Although you all are great and this is the best place ever for support and answers!
  #18  
Unread 03-08-2005, 04:11 PM
ovary removal 4 yrs after TAH

Leslie,
I was glad to hear the enema wasn't too awful (as if any kind were actually fun). I just got back from the Dr a little while ago, she said I will be scheduled for surgery at the beginning of April. We will be surgery buddies! They're doing mine through a laporascopy. I don't know if you read anything about Celebrex here or not I think there was a thread a few weeks ago. Anyway some scientists doing research on mice found that the ones given Celebrex didn't form adhesions. I found the full article on the International Adhesion Society web site. I showed it to my Dr and she wrote me a prescription! I hope it works as well for me as it did the mice . I just thought I'd let you know in case you wanted to read on it and ask your Dr about it.
As for the ovaries, their removing the right one that's tangled with the intestines, I'm keeping the left one. It has never given me problems. If it gives me problems later I'll deal with it then. I feel our ovaries play too important a roll in our systems. Medical menopause isn't a problem I want to deal with. And then there's the whole hormone issue. I watched my mother-in-law suffer through breast cancer and treatments for two years. She's OK now, but the Dr's said it was caused from the HRT she was taking.
I know a lot of ladies take it without any problems. I guess anything we do is a gamble, it isn't one size fits all.
I'll let you know the exact date of my surgery as soon as I find out.

Michelle
  #19  
Unread 03-08-2005, 09:35 PM
ovary removal 4 yrs after TAH

Michelle,

What about just freeing the ovary from adhesions and putting in back in place? I don't know if that can be done but a good place to ask would be at www.alternativesurgery.com.

Best wishes,
  #20  
Unread 03-09-2005, 03:56 AM
ovary removal 4 yrs after TAH

Lucille,
My ovary is in the correct place, it's the intestines that are pulled down and adhered to it. I sneezed while I was laying in bed last night and it felt like things were tearing inside, ouch! I'm going to let the surgeon take the right ovary, it gets cysts continually. And when they rupture......the pain is undescribable!
I've never heard of freezing it. Is it like reverse cauterization? I will definitley check out the site in your post.

Michelle
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