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Severe pelvic pain Severe pelvic pain

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  #11  
Unread 03-06-2005, 06:06 PM
Severe pelvic pain

  Quote:
There are a few things that popped up in my mind while reading your post. Endo, ovarian remnant syndrome, adhesions, intercistial cystitis (sp).

Sam

Marian said pretty much exactly what I was thinking!!! We both have had the "Pleasure" of living with adhesions - and know what that monster is like...and I have had cysts continue even after my hyster/BSO. Did you ever have a problem with cysts rupturing? The breakthrough pain concerns me...if you are taking that much pain meds, and still not on top of it, then something's up. I'm glad to hear that you are calling the doctor first thing! I hope you'll let us know what is going on!

Take care, and I hope you are feeling better soon!

Cortney
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  #12  
Unread 03-06-2005, 06:20 PM
Severe pelvic pain

Cortney:

Yes, I did have problems with cysts rupturing before i had the hysterectomy. Back in '97 I had one burst that put me in the hospital. Why do you ask? This may sound niave but how would ovarian cysts affect me now? Marian mentioned something about ovarian remanent syndrome??
  #13  
Unread 03-07-2005, 07:16 AM
Severe pelvic pain

Samm,
You can go to the search engines (Yahoo, MSN, etc) and type in Ovarian Remnant Syndrome and it will give you all kinds of information about it. Basically - there are very tiny (tissue) pieces of ovarian tissue left in your pelvis - and in some lucky people it's just enough for cysts to continue to grow from. My doctor says that I do not have ORS. However, I continue to have cysts grow and rupture - three years post surgery. They (the cysts) form on my adhesions and anything else they can attach themselves to. The explanation given to me is that there is just enough of my ovarian tissue left in the pelvis that the adhesions are using - and mine is already predisposed to cysts (I had Polycystic Ovaries), so it will continue to produces cysts. They (the docs) explained it like having bubble gum and blowing a bubble inside my pelvis - once the bubble popped, some of the gum would stick to other tissue and some "MIGHT" survive. Odd thing is - This is basically the verbatim defintion of ovarian remnant syndrome. But what do I know???

So tell me - how did your chat with your doctor go???

Cortney
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  #14  
Unread 03-07-2005, 07:35 AM
Severe pelvic pain

Cortney:

I called and he was not in so I made an appointment with another available doctor. I really like my regular Doc but I don't want to wait. Here is what I am thinking -

I want them to perform the following tests:

1. Blood workup to see if my body is producing any hormones that are indicative of ovarian cysts (would that be the Lutinizing hormone?) or basically producing hormone that theoretically should not be there...

2. Pelvic and abdonimal ultrasound

3. Urinalysis to see if there is some type of protien, infection, etc...

What do you think???? I am especially interested in the blood workup (which I hate by the way) to see about hormone production. I too had cystic ovaries - which was something that he remarked on after the TAH/BSO at how cystic my ovaries were in addition to the endo.

Thanks! I appreciate your input!

Samantha
  #15  
Unread 03-07-2005, 08:09 AM
Severe pelvic pain

Good morning;

Sorry to butt in on your chat but I am experiencing some of the same problems and would like to know if the doctors have ever suggested removing the ovaries to keep the cysts from coming back?
  #16  
Unread 03-07-2005, 08:15 AM
Severe pelvic pain

Blanka:

I had both ovaries removed last year when I had the hysterectomy.....So, I guess what we are looking at is a possiblity that some ovarian tissue was left over and is causing problems.
  #17  
Unread 03-07-2005, 08:21 AM
Severe pelvic pain

Blanka,
My ovaries were removed at the time of my hyster, as well. Do you still have yours? What type of problems are you having? I'm sorry you aren't feeling well!

Cortney
  #18  
Unread 03-07-2005, 08:28 AM
Thank you both for your interest and concern...

In Sept '04 my left ovary ruptured due to cysts and after a six hour procedure ended up with only a piece of my right ovary and a piece of my uturis. Now I am scheduled Thursday for a full hyst due to the cysts on the ovary blocking the uritor endangering my kidney. I've been for several different opinions and they all assure me the kidney will be OK as long as I remove the ovary so I must do What needs to be done! I'm just scared there going to come back and attack the kidney next, is something like this possible?
  #19  
Unread 03-07-2005, 08:44 AM
Severe pelvic pain

Oh, honey, I don't know. I've never heard of such a thing. It sounds horrible. I'm sorry you had to go through such a bad experience! MY OPINION is that a hyster will be far easier to recover from than anything kidney related! And if your docs seem to agree, I'd go with that! I think I read earlier (was it you???) that you were concerned because no one else in your family had any problems? It was like that in my family too... In fact, when I was growing up, my mother didn't believe me that I was having Menstral Cramps. I would have cramps so bad that I couldn't get out of a ball for 2 days. To sleep, I'd fill the bath tub full of hot water and lay in it. She thought I was making it up - she'd never had a cramp in her life. EVER. Some days I wonder if she had listened to me then if maybe I wouldn't have had to have a hyster when I was 25 years old!!! (Sorry! a little bit of venting!) But enough about that....... So, what I'm trying to say, I don't think it's always a family thing! And if you've talked to several docs, and they are all telling you the same thing, you are probably getting a good answer. But you are smart to keep researching. Please let us know how you are doing!

Cortney
  #20  
Unread 03-07-2005, 08:45 AM
Severe pelvic pain

Not sure if it can, but I have read about endo attacking tissue outside of pelvic cavity. Good luck with your surgery this week!
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