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Reoperation, Rare Diagnosis 14th Reoperation, Rare Diagnosis 14th

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Unread 03-08-2005, 03:38 PM
Reoperation, Rare Diagnosis 14th

I am preparing to face my eleventh surgery this coming Monday, 14th, though the procedure itself is a first for all of us. My doctor has never performed surgery for the complication that I have. It truly is a step of faith for her and four our family to go through with the operation. We have been met with understandable apprehension of those close to us in doing so.

History: 10 years with pathology confirmed Endo, several surgeries, infertility 2.5 years before blessed conception of two children now 3 years and 17 months, post-birth complications requiring surgery both times, hemorrhaging, retained products requiring D&C, infection Endometritis, septicemia, potentially fatal intestinal toxin, LAVH April 2004, Vault Hematoma with 3 months of bleeding, suspected surgical injury post-Hyst requiring further surgery, Laparoscopy for adhesions, Embolization, and now this. It has been a very long road.

I have been diagnosed with something my doctor(s) have not seen before which is somewhat daunting because there are so many questions and very few answers. I trust it is not easy for my surgeon as it is not for us because we are stepping into uncharted waters with little certainty. Yet, there is no other option for treating the condition that I have but the surgery. The risks are significant including uncontrollable bleeding.

My surgeon has even shared very transparently that she is scared. That is hard because I think you want to believe the confidence that you are shown by your doctor and hold onto that. I respect the honesty that she displayed though because it is a reality, and I am scared too. I am trying to keep looking up and remember all the incredible little miracles that I have found in the most unexpected places and times.

One thing that is especially important is that our young children are OK and my husband. I think about their comfort a lot and pray that they may feel at peace. As I go through this surgery one thing that is very important to me is that my surgeon is with me during the induction of the anesthesia. It is something that has helped a great deal in the previous operations and just having her by my side is a great support. I had open heart surgery as a child and did not receive such care and have some significant fears. Having her hand to hold and hearing her voice is very reassuring. I always get worried before the day that she won't be there, and that is a special prayer that I have each time, that God would make a way for my surgeon to be by my side.

I look forward to one day being able to share our story and the many ways that God has worked in our lives and given us strength when our strength was gone. It is incredible to reflect on the little blessings even in the midst of the challenges and rejoice in them. I trust one day that I will have the honour of sharing my heart and giving thanks for what we were guided to overcome.

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Unread 03-08-2005, 04:28 PM
Reoperation, Rare Diagnosis 14th

You are in my prayers. I would love to hear your story someday.

I've seen the little things that God will do in my life to reassure me that He and His angels are still watching over me. Some of the things may sound trivial to others, but we KNOW when it is a sign of God's Presence.

S and ers to you, your family and your surgeon. With love,~Moonchime
Unread 03-08-2005, 04:42 PM
Reoperation, Rare Diagnosis 14th


You had your hysterectomy a couple of weeks before me and I have been following your story and keeping you in my prayers.

I am so sorry you have had these complications. I pray that this surgery is successful and that God is with you, your doctors and nurses, and family. I hope and pray that this will be the last surgery you will need to be on the road to a complete recovery and a happy and healty, pain-free life.

God bless you.

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Unread 03-08-2005, 04:45 PM
Reoperation, Rare Diagnosis 14th

Bless your sweet heart, You are a strong and brave woman, I can also tell your faith in Him is strong too. First I would love to give you some*big* s, s.... your journey has not been an easy one , but I know God has been with you and His Divine Grace is definitely upon you. God is able.

Heavenly Father, we lift up to you our sister Blessings before your Mighty Throne, she has had numerous surgeries, and now will be having yet another one, we know that you are the Great Miracle worker, there is nothing too big for you to handle, so asking that you lay your powerful healing hands on her, heal her, let your Holy Spirit move through her whole body, mending and fixing what needs to be done, if not and the surgery is still necessary, Blessings, her surgeon and her family are very scared, hold them in your tender loving grip, calm their fears and worries, reassure them that you will be there with all of them, go with her to the operation room, surround her, the surgeon with your Spiritual presence, guide the surgeon hands and mind as she performs this high risk surgery, let Blessings body stay strong, even though this surgery is know for high risk complications, we trust that you will keep the complications under control, let the surgery go smoothly and bring our sister through, her family, especially her young children need their Mom, give knowledge, wisdom to all those who are involved in her care, let her castle stay be without incidence, give her a blest recovery, let your will be done, in your merciful gracious name, Amen.

Blessings, I love your name, it says it all.....God has bestowed many blessings on you and may He continue to do so. Thanks for sharing some of your story, what a beautiful Testimony He has given you.
Unread 03-08-2005, 05:39 PM
Heartfelt Thanks

Wow, I am overwhelmed with the kindness and care that you have shown. What a great gift, compassion is. Thank you so much for your words of encouragement and support. I will be thinking of God's loving arms and protection in those moments that my heart is filled with fear and remember those who are praying on my behalf. Heartfelt thanks.

Unread 03-09-2005, 07:15 PM
Reoperation, Rare Diagnosis 14th


When I wake at night your are in my prayers along with 2ofeach and Comedienne, my hystersisters.

I pray for you and your family. I am so sorry for your complications and hope that God will guide your surgeon.

Unread 03-11-2005, 07:51 AM
Waiting On Time

Today I am expected to hear the time for my upcoming surgery on Monday, March 14th.

We have been praying that it may be an early morning time and that everything will move forward with the date as expected.

In a matter of a few hours we should know more.

I will post when I hear something. In the meantime I keep hopeful and prayerfully consider all that is upcoming.

Unread 03-11-2005, 06:16 PM
Reoperation, Rare Diagnosis 14th

Blessings, I pray that our Lord guides the hands of your surgeon, and especially grant your surgeon abundant wisdom
feeling that the Lord is performing this delicate surgery. May God be with you.
Unread 03-11-2005, 07:43 PM
Reoperation, Rare Diagnosis 14th


Your faith and trust in God is encouraging and inspiring. As I was reading your post, I thought, how easy it is for us to not be fearful because someone else is confident or the experience is familiar to us.

We should all be as surrendered as you are in preparing for this surgery.

Just remember, God is never surprised, even when we are.

He has seen ahead and made provision for everything you need.

Personally, I think working with a surgeon who is a little uncertain is a good thing. People make mistakes when they're too comfortable, not when they're on edge.

Several years ago, my Mom had a CAT scan that showed a tumor that was dangerously close to her eye. This type of tumor was so rare, that the specialist said he could only find 3 other cases documented.

The doc did everything he knew to do while he prepared. He meet for many hours with the other specialists in his practice and had thought through the procedure a million times.

We are a praying family and believe God can use any means He chooses to bring health to us. During the surgery, the doctor couldn't believe that all that was there was a polyp. Not that a polyp in that location isn't serious.

I've heard many people since then tell stories where the imaging technology did not match what was really going on inside someone's body. For our family, we believe God's goodness was shown to us.

We'll be praying this weekend and on Monday. Be sure and let us know how you're doing as soon as you're up to it.....although it's not because we're worried....we'll just miss you.

Unread 03-12-2005, 03:37 PM
Reoperation, Rare Diagnosis 14th

You will certainly be in my prayers Monday

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