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wrtergrl interesting memo /hyperplasia wrtergrl interesting memo /hyperplasia

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  #1  
Unread 01-31-2001, 02:53 PM
wrtergrl interesting memo /hyperplasia

Hi: I just read you last post re: hyperplasia.. I will stay tuned to your post re: this subject.. even tho I am 9 mo post tah/bso uterine cancer but doing good to date.. no chemo nec. My yearly pap and sonogram was ok one year prior to my diag. 4/00 Mine was picked up on a biopsy following several years of benign a typia hyperplasia condition....boy was I surprised... but was caught fairly early so this is the good side... I would like to learn more about how it was really hidden or I fell through the cracks ....thanks for doing your research it will be very interesting to check back. I am thankful for a good watchful gyn and glad it is over and I m into a good recovery ..... maybe I'll get your email going...Thanks {{{HUGS for you}}}}
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  #2  
Unread 02-01-2001, 07:32 AM
thanks, Carole

Carole,
I appreciated your reply, and am glad to hear that you are doing well after a scary diagnosis. In the absence of symptoms (i.e. abnormal bleeding)endometrial problems are easily missed in an annual exam. It is somewhat uncommon for a pap smear to pick up an endometrial abnormality. When you are pretty young, abnormal bleeding isn't always looked into very thoroughly, either. The only symptom I had was heavier menstrual clotting about 3 months before I went in for my exam(although I had never been extremely regular with my periods). Because of my age (31) my nurse practioner wasn't overly concerned about slight menstrual irregularies (I wasn't spotting between periods or anything) The pap result very probably saved me from developing cancer. Glandular abnormalities that show up on a pap are pretty uncommon, and they can signal anything from infammation to a pre-cancerous or cancerous condition virtually anywhere in the reproductive system, or simply be an overcall by a lab tech. Talk about hidden! Many doctors even chalk an AGCUS pap result up as a "minor abnormality" and retest months later.
The bottom line, in your case, was that the cells causing your hyperplasia did not turn up on your pap (which, unfortunately is usually the case). After my result, my doctor did a vaginal ultrasound, and all that showed was possibly a polyp, so the hyperplasia was missed there, too.
One of the reasons I am writing the article is to advocate that women insist on the new ThinPrep pap test, which is far superior at picking up glandular abnormalities AND specifing what those abnormalities are. Use of the ThinPrep pap could potentially pick up more hyperplasias and other glandular irregularities. Also, many of us who have had hysterectomies will still get paps and we should absolutely insist on the ThinPrep!! Thanks, again, Carole, for your note and the hugs !
  #3  
Unread 02-01-2001, 10:40 AM
wrtrgrl re: thin prep paps

Thanks for getting right back wrtr Your answer was well written are you in the nursing profession? Well actually I had been having spotting ever so slight.. it was hardly recognizable sometimes.....and this still happened to me but maybe I should have had more frequent tests and the thin prep as you mentioned. (actually it turned bright red and this really got my attention rest is history as I went right in and the tests began immediately...

Lately I have actually mentioned it (thin prep) to my new gyn and he just shrugged his shoulder so I didn't pursue but I will certainly ask again as it is new to me. I have heard of it. Looking back I should have probably been given another biopsy that year prior my "H" in addition to my pap and sonogram.mmmmm that showed normal(( mmmm again... I think I was a little ostrich head in the sand thing...it is so good to listen on these boards and know there are women who really stay on top of things I have learned so much...& so thankful for women like you who write and we all benefit one way or the other so ANOTHER {{HUG}} for you. I do have a question tho I am doing so well now.... but is it true if your going to get adhesions they happen early after a "H" I always forget to ask my dr just wondering--need to read more on these boards Thanks again wrtr
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  #4  
Unread 02-12-2001, 06:35 AM
Sorry so long in Reply

Carole,
I can't believe it has taken me so long to get back to you...when the server was down, I couldn't post and then, well, I guess I got lazy . No, I am not a nurse, I am a writer, and I love research. So when I was going through the hyperplasia thing, I wanted to find out all I could. As a writer, now I want to inform women about some of the things they should know about but aren't being told...(ie: AGCUS paps, Thin Prep, etc...) If I should happen to mention your experience (being shrugged off by doc about the Thin Prep) would you mind? About your question about adhesions soon after hysterectomy, if you are wondering about bad pap results being right after...from what I know women who have hgad a hysterectomy have about the same chances as the general population to have irregular paps...at any time. So keep getting them! HGope to talk to you again.
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