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  #1  
Unread 03-14-2005, 11:10 AM
BSO Update

Well, I remain confused. Went to my gyn on Friday with the intention of scheduling a BSO. He seemed less sure than I would like that the BSO would work to fix my problems "he thinks it may, he hopes so".

Also he seemed pretty unconfindent about getting my HRT balanced, is not very open to the idea of bioidenticals and that rattled me. He even threw in a story of one of his worst patient outcomes in which the patient never did get her hormones balanced ... part of that was her issue for not letting him know/not following up.

I woke up Saturday morning, just after midnight and couldn't sleep. "I just can't do this .... I just can't do this" If it weren't for the zoloft I probably would have been in full scale panic attack. I was to go into talk to one of his partners tomorrow and schedule the surgery. I called this morning and cancelled the scheduling appt. and left a message for them to just tell my doctor that I had cancelled for now. Did not request a call back, but at the receptionists request (in case he has questions, as she put it) I left my call back number.

Well, my docs nurse (who is just the best nurse ever) calls and says, hey I got your message that you wanted only to talk to the doctor and he's in surgery all morning and I didn't want you to think he just wasn't returning your call. So, I told her that was not the message I left at all and gave her the the message I gave the receptionist. Anyway, she'll let him know for me this afternoon.

Just goes to show you that you can have a wonderful compassioniate (if at times too honest) doctor and a wonderful right hand nurse, and things can still get so jumbled up!

Jiminee!!! And, so I decided to slow things down and do more some more overthinking (what I'm best at!) and avoid any further decision making until I am less emotional.

s for you all! Thanks for being here. DH has been quite incredible thru all this, but he admits he has no clue how it feels to be me right now. So, here I am.
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  #2  
Unread 03-14-2005, 12:22 PM
BSO Update

Michelle

I am sorry you are going through all of this. I can't even imagine worrying about hormones right now and trying to decide on keeping or letting go of the ovaries.
I just wanted to give you a big and let you know I will be praying for you.
I think making medical decisions is the worst. I hope you find a answer soon.

s
Peggy
  #3  
Unread 03-14-2005, 12:34 PM
BSO Update

I am trying to understand how removing the ovaries is going to straighten out a hormonal problem. But then, I am so confused by the whole subject period. I went to 3 doctors and got three different opinions, but the doctor who did my surgery also has a side business in bioidentical hormones and uses a compounding pharmacy. We decided not to have HRT for a couple of years. Perhaps a second opinion on your situation would be in order?? At any rate, I hope you feel better soon!
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  #4  
Unread 03-14-2005, 01:00 PM
BSO Update

Hi ((Michelle))
I'm sorry you're having a diffidult time, that's a big decision.
It's wonderful you an understanding DH that makes it easier.
I hope that you weigh all options and decide what's best for you. You're always so kind to me and reply to my posts and know that we're here to listen. Please keep us updated.




You are in my
  #5  
Unread 03-14-2005, 02:03 PM
BSO Update

Hi, Michelle.

I know how you've been struggling with this whole BSO issue. I'm so sorry you're going through this. Believe me, I know those nighttime panic attacks, too. Have you been able to figure out what scares you the most about the BSO? Is it the surgery itself, is it the fact that you might have not be able to take HRT at all with your endo history so you're scared that you'll be unregulated, etc.? Also, what is it that you're hoping to accomplish by having the BSO - - is it all hormones or is it also to help combat your pain issues? Sorry for so many questions but, aft least for me, sometimes if I can just sit down and figure out what my worst fear is I can deal with it (or choose not to) a little easier. Prayers and hugs for you, because, regardless . . . it's awful when you have that sense of not knowing what to do next. Let us know how we can help.
  #6  
Unread 03-14-2005, 02:41 PM
BSO Update

Awww (((Michelle)))!! I'm sorry you are so confused right now! It's better to take the time and over-think something and come to the right decision than to make a rash decision which you end up regretting. Remember, there is no going backward after a BSO, so hang in there until you decide what is best for you! Having an understanding DH makes it easier....lucky you.
  #7  
Unread 03-14-2005, 03:30 PM
BSO Update

Thanks for all the supportive replies.

To answer the questions that have surfaced ... the thought is that the endo has invaded my ovaries and they are severely malfunctioning. I am on continuous BCPs right now and it did not help at all ... still in pain at the same time period ... 6 weeks. The pain is thought by the endo specialist to be caused by endo tissue inside the ovaries. Also, he said the ovaries are probably leaking blood from the endo tissue and that's why my ovaries keep getting attached to my bowel, vaginal cuff, side walls, etc. He said both ovaries are immobilized right now with scar tissue.

So, the Yasmin was supposed to stop the ovulation and therefore quiet down the ovaries and with any luck, stop the pain. Well, didn't work like that. I've been on it long enough to halt ovulation and the pain returned right on schedule.

Both the endo specialist and my gyn think that there is no question I will be put on hormone replacement therapy (estrogen and progesterone) immediately because of my age and the thought that the endo is currently in my ovaries.

I am most scared that I will feel worse rather than better after the surgery. My gyn really scared me by being quite closed-minded on the HRT issue and gave me the trial and error speech. I never expected that from him.

I was floored when he said it would do no good to test my hormones now and use that as a benchmark for replacement. He said my hormone levels fluctuate throughout the day and it just isn't that scientific. There's no rule of thumb and we just have to work through the options and hope one works.

Made me think perhaps I need to get an endocrinologist on board. The endo specialist I saw is an endocrionologist as well as a gyn, so I have a call into his nurse to visit with her about the whole thing. She's been working with him forever and is really helpful. At least the specialist told me quite convincingly that he was going to get me better.

If I have to have surgery, I'd like to do it in town. But, I want effective HRT. Perhaps I can get everyone to work together :hair:

One bright thing. My son had a doc appt today and his doctor told me twice that I really look great! He has no idea about my health issues. I must be hiding it well.

Well, back to work. Again, thanks for the support. Here's to a place where I don't have to hide the pain
  #8  
Unread 03-14-2005, 05:13 PM
BSO Update

Dear Michelle,

First I wanted to send some soothing S your way...

I want to say that I think you made the right decision about canceling your operation. It is so important to listen to that inner voice - I believe it is God talking...

I'm not sure if you recall, but I've been having horrible trouble with Endo for years prior as well as since my Hyst in Nov/00. I had everything, including my ovaries out, and the monster is still wreaking havoc on my body.

One thing I wanted to mention...I was very bluntly told by a very rude doc about a year ago that if the Lupron did not get rid of my pain that I should have never had a hyst. I don't like to admit it, but he was right. I would have been better off having a lap every so often and going into pain management. The reason I bring this up to you is because you mentioned that your body hasn't been ovulating and you are still in pain. Perhaps a lap would be an alternative...And if down the road you are ready to have those ovaries removed then you still have that choice...Just my thoughts my dear...

Take Care and let us know how you are doing...
  #9  
Unread 03-14-2005, 05:17 PM
BSO Update

  Quote:
Originally posted by michelle35

Both the endo specialist and my gyn think that there is no question I will be put on hormone replacement therapy (estrogen and progesterone) immediately because of my age and the thought that the endo is currently in my ovaries.

(((Michelle)))
I am sorry that you are having a hard time with all of this. This quote is where I have the question. Both these docs want you on HRT immediately cause they think you have endo in your ovaries? To me that doesn't make sense. A lot of sisters who have endo, stay off HRT for a while to make sure all the endo cells are "dead" before starting HRT. I had horrible endo, but my doc after removing the last ovary, put a patch on me in the recovery room. I guess I am a bit confused with that thought about the doc's reasons for HRT.
I would not feel comfortable with this GYN after your conversation with him last week and his wishy-washy response to you having the surgery. I mean, why does he think you won't have your hormones balanced? If you are unsure about it at this time, then you were right to hold off. You need to be more sure of this surgery before agreeing to it. I hope you find peace soon with all of this. I wish you the best.
  #10  
Unread 03-14-2005, 06:40 PM
BSO Update



(((Judester)))

Lupron is something I am sort of actually considering. You are right, if it doesn't work, taking my ovaries out won't probably work either. Something to consider ... a menopause test drive. The lupron will wear off... the ovaries can't be put back in.

I had Synarel for 6 months back in the early 90s and I did not find it too tough and it really worked well for me in killing off the endo. My gyn and the endo spec gave me the lupron option and I was in the "heck no" camp, but maybe I'm totally wrong about that?

I'm not keen on a shot, not because of the needle (I'm in much more pain than a shot) ... just the all at once dosing when Synarel was a nasal spray and probably the effects were more gradual. Need to look into that.

Wonder if anyone else has been on both???

(((Marian)))

I guess I should have been more clear. The endo specialist thinks the endo is ONLY in my ovaries, since my pain is coming from there. At my last lap I was "remarkably clean of any visible endo" according to my gyn. So the thought is that there isn't any endo growing in my pelvis to feed. Of course, its all just theory and that's what bugs the heck out of me!!!

My gyn is one of those ... you need to understand every foreseable risk kinda docs. Sometimes he says too much.
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