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Adhesions? Severe Back Pain Adhesions? Severe Back Pain

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Unread 03-15-2005, 12:20 PM
Adhesion info needed FAST

Hello Sisters. Thank you for being here for me. I need some advice fast. I am 15 months post op. I had a TAH last Dec and another operation to repair my bladder last Feb.
Since then nothing has been the same. I have had constant pain since my surgeries and am going in for a lap to see if I have adhesions. I have been told twice by two different doctors that the pain is either adhesions OR my intestins. My intestins were fine until those operations so I'm thinking it IS adhesions causing me so much grief.
Amyway, the pain is mostly on my left side. Right aftr my hysterectomy I called the gyno about the pain there and he said, "it's where the knot is." Stupid me didn't ask what the "knot" was and figured it would go away. 15 months later the "knot" is still there and I'm wondering if anyone else has heard of this. My pelvic bone is still very sore and so is my stomache. If the slighteset thing touches it I am in severe pain. I still can't wear jeans. Only soft cloths for me.
My question ladies is regarding this "knot". Has anyone else had it? Also, has anyone else had this lap procedure and found out there wasn't adhesions?
What could this be? I am at my wits end and if it wasn't for you ladies, I would be very alone in this.
Any advice or experience with adhesions would be greatly appreciated. Thank you for listening and God bless you all.
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Unread 03-15-2005, 01:13 PM
Adhesions? Severe Back Pain

I have always had a lot of back pain but I noticed since my TAH that I have weak abdominal muscles. I find that I lift myself up using my back muscles now, not my abs. Could the increase in your back pain be because you are using your back to lift yourself up?

I cant really answer your question if your back pain could be caused by adhesions. I hope not.

I hope you are feeling better soon.
Unread 03-15-2005, 01:51 PM
Adhesions? Severe Back Pain

Hi Chrissy
I have never heard of the knot. I also had pain in my left side after my hyst in May. I had a impacted bowel and constipation problems right after having the hyst. My gyn sent me to a adhesion surgeon thinking my bowels may have been stuck down. I had adhesions sticking my bladder and uterus together and to the abdominal wall when opened for my hyst.
I had a lapro in Sept for adhesion lysis. Unfortunately the surgeon didn't find anything being stuck down. He did however see tons of scar tissue on my abdominal wall. He said that can be causing the pain. He also mentioned that he and the surgical asst. had a hard time locating my colon on the bottom left side. I have no idea what would be causing that.
I had a rectocele and enterocele repair Jan. 25. I thought this would stop the thumping as I would be able to have a bm much easier. I am 7 weeks post op and still have that thumping sensation on the lower left side. I asked my gyn about it at my post op appt. three weeks ago. He still thinks I have adhesions in there. I have on and off sharp pains in the lower abdoman and overall soreness across my lower abdoman.I am opting to do nothing about it unless it gets worse.
I hope your lapro goes well and the surgeon finds what is causing you the pain and can fix it.
Hopefully another sister will come along who can help you out. My lapro wasn't a waste however, my GB was very inflamed and covered in adhesions so it was removed at that time.

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Unread 03-15-2005, 03:04 PM
Adhesions? Severe Back Pain

I do, but its from arthritis. Hope you get some answers.

Unread 03-15-2005, 03:34 PM
Adhesions? Severe Back Pain

I do too!! It's been suggested on this site it could be from Osteitis Pubis. My doctor is looking into it. I go back to see him on Friday. 2 weeks ago he did an exam and I thought I would go through the roof when he lightly touched my pelvic bone. I'd love to hear if other people have found other issue to be the reason. I'll keep you posted if I hear more.
Unread 03-15-2005, 05:10 PM

Hi Chrissy!

Dont know if this helps, but I have a "knot" on my right side under my scar. I had asked the surgeon during my recovery what it was and he said he "did it like that on purpose" What does that mean? I just assumed it was the way he sewed me up and for some reason created this knot for a reason. It doesnt bother me that much and there isnt any pain, just a tugging feeling. I'm just assuming its adhesions and can live with it.

Good luck and I hope you find some relief for your pain.

Hugs, Cheryl
Unread 03-15-2005, 05:57 PM

Hi Crissy,
I had my surgery in August of 2003, and I still can't wear jeans either!! It is so annoying. Any pressure on my abdomen causes it to ache, and sometimes I end up running for the heating pad like I did BEFORE the TAH/BSO!! I am also at my wits end, and I have been to 7 different doctors and have all sorts of opinions as to what it is, the most popular one is adhesions. Have you had a CT scan yet? I think before I agreed to a lap I would insist on one. My CT scan showed nothing (as adhesions don't show up on them) but I felt better mentally knowing that it wasn't anything else. Who recommends the lap?? As more surgery can mean more adhesions, we end up with a catch 22 situation when dealing with this monster. I wish I had just left the endo there, at least that would have gone away after I went into menopause. Good luck, and let us know what you decide.
Unread 03-15-2005, 06:18 PM
Adhesions? Severe Back Pain


I had my hysterectomy 3 years ago - I had more surgery 8 months ago to remove my right ovary and adhesions.

I was having pain and a "tugging" feeling on my right side. The pain was not a sharp pain, it was a dull, constant pain. The pain got worse if I was active or in certain positions. The pain would radiate down my leg and into my back. How adhesions feel for people varies - it can depend on the location of the adhesions and how severe they are.

I had another surgery 4 weeks ago to remove additional adhesions, a pelvic mass on my right side, and to have some mesh barriers put in. I'm hoping this is the last surgery.

The only way to positively diagnosis adhesions is by having lapraoscopic surgery.

The pain they may cause can be quite severe as can the possible complications they can cause. They are an almost inevitable outcome of surgery - a high percentage of women undergoing a hysterectomy will develop adhesions. Not all adhesions will cause pain or problems. Some people go through life never even knowing they have them. Then there are those that can have a small amount of them but suffer a great deal of pain & sometimes ongoing health issues because of them. Their location and what they are adhered to can make a big difference in the issues they may create.

If you want to read more about adhesions check out the HysterSister Resources:

Adhesions Resources

Unread 03-16-2005, 07:01 AM
Adhesions? Severe Back Pain

Originally posted by kelkal
It's been suggested on this site it could be from Osteitis Pubis. My doctor is looking into it. I go back to see him on Friday. 2 weeks ago he did an exam and I thought I would go through the roof when he lightly touched my pelvic bone. I'd love to hear if other people have found other issue to be the reason. I'll keep you posted if I hear more.
I am so sorry that you are going through all of this (( chrissy))...I had a visit to a chronic pelvic pain specialist on the 25th of Feb and she did the same exam as Kelkal here, she just lightly pressed on my pubic bone (something 2 diff GYN's never have done) and I screamed very loudly and you could have pulled me off the hurt like heck and shocked the heck out of me too. But she didn't go over the entire bone, and there was no mention of a knot.
When are you having your lap? This knot could be a few things that run in my mind---adhesions that have formed into a sort of mass thing (had this myself),if you still have that ovary, the adhesions could be wrapping around it creating this knot feeling (that is what I actually had) could just be inflammation...I pray that it is not adhesions---this is a horrible monster to deal with. Please keep us updated and let us know what the surgery shows.

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