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lichen sclerosis lichen sclerosis

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  #1  
Unread 03-19-2005, 11:57 AM
lichen sclerosis

I am 50 years old. My total hysterectomy was 7 years ago. I am on the .625 Premarin. I began this dosage about 8 months ago when I got nervous about the higher dose I had been on for years. Like most women, I decided it was time to cut back.

Atrophy, dryness, burning and itching became started appearing really fast so my doctor prescribed the Premarin cream. I used this for a few days and my symptoms became unbareable. My only relief was to sit in a tub of hot water and the only thing I found to ease the pain was cornstarch powder! I stopped the cream and the problem eased some - but never went away.

I decided to try the cream again in a smaller amount and this time it didn't even take 2 nights until I found myself right back where I had been before! My doctor & I decided I was having an allergic reaction to something in the cream.

Finally, this week after further examination my doctor has diagnosed Lichen Sclerosis. After researching on the Internet, I agree with her diagnosis. She prescribed the testosterone cream 2% which I began using last night. I have serious doubts about it's effectiveness - burning is greater today. Plus all of the websites say this is the treatment of the past and that steroids will need to be used.

I also am beginning to wonder about scar tissue building inside my gut - but that is a whole new thread!!

Any input out there on my new quest?

Thankyou
Lynn

[color=crimson]Lichen Sclerosis
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  #2  
Unread 03-19-2005, 04:28 PM
lichen sclerosis

Hi ((((Lynn)))) I'm so sorry you've been having such a hard time

I do not have any experience with Lichen Sclerosis, but this topic has been discussed a few times on Hyster Sisters. It appears that Testosterone Cream is still considered the treatment of choice, but it's always a good idea to explore your options

Here's a link to a recent thread where this condition was discussed: https://www.hystersisters.com/vb2/sho...hreadid=126946

Hopefully, others will come around with some insight.

Sending lots of s your way. Please be sure to keep us posted.
  #3  
Unread 04-01-2005, 08:46 AM
lichen sclerosis

Hi Lynn,

I have LS too and started having symptoms 3 years ago, shortly after I stopped taking HRT. The dermatologist I saw at the time prescribed this treatment: 6 weeks of Temovate (strong cortisone ointment) applied pea-size every morning and testerone every night. After that, I tapered to a mild cortisone every day then as needed. The treatment really helped and stabilised the disease. The scarring stopped and I have no burning anymore. As far as I know, the initial treatment must be the strong cortisone. After, you can use testerone and estrogen cream (Estrace better than Premarin) to rebuild the tissue.

Anyway, what really helped me was this website: http://groups.yahoo.com/subscribe/LichenSclerosis
<link added to the Hormone Basics Resource library>

I found loads of information, support and friendship there, it's a lot like here. So if you haven't yet, go visit, there is hope and relief for this disease. You can also email me privately, I'd be happy to discuss further with you.

Big hugs from a fellow LS sufferer.

Soleil (Diane)
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