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Severe rectal pain post TVH Severe rectal pain post TVH

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  #1  
Unread 03-21-2005, 09:29 AM
Severe rectal pain post TVH

Sorry if this is too much information but this is my dilemma:

I am 32 yrs old, with three children, and had a vaginal hysterectomy on 9/27/04 due to endocervical adenocarcinoma (cervical cancer).

Almost immediately post-op I began suffering from sporatic, no warning rectal pains that honestly feel as bad as labor pains in my rear-end. They take my breath away and I have to breathe through them like a labor pain. Sometimes to such an extent that I actually get light-headed. I immediately head to the bathroom and sit on the toilet til the pain subsides which can be minutes sometimes. I honestly cannot explain how intense the pain is. After an "attack" I am very achey and sick to my stomach for hours.

I finally sought the attention of a colorectal specialist who is attributing it to scar tissue and remaining swelling of "everything down there". She did a CT scan as well as a sigmoidoscopy. The sigmoidoscopy was very uncomfortable but was fine. The CT scan however didn't show anything related to my pain but did show a fairly large left ovarian cyst and a smaller one on my liver.

For one, I'm scared and worried about the cysts but also, I have continued bowel spasms, if you want to call them that, for which I have no answers.

Anyone experience this type of pain? I've had these spasms hit me while driving and that was so scary. I also have considerable very low back pain which the doctor said could be from the ovarian cyst.

Please help--I'm stressin'
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  #2  
Unread 03-21-2005, 12:47 PM
Severe rectal pain post TVH

Kmello,

I am so sorry that you are having to deal with all of this after your sugery. I haven't had any experience with rectal pain, but I am sure another sister who has will show up soon with some answers for you.
What did the colorectal doc say about all this?
Did you see your GYN about these cysts?
  #3  
Unread 03-21-2005, 01:14 PM
Severe rectal pain post TVH

The colorectal specialist doesn't really know what has happened or why I'm experiencing these pains. She is calling it Irritable Bowel Syndrome for lack of anything else to call it.

I haven't talked to my OBGYN yet about the cysts although I'm trying to get in touch with them today. My biggest concern is that I have such significant low back pain so that may be due to the cyst.

Right now I'm just worried and frankly-- tired of worrying.

Out of curiousity what do pelvic floor spasms feel like? My pains started literally days after the hysterectomy so I know it's surgicially related. Now if I could only make it stop! Perhaps it's really not rectally related and more with just stuff going on in that area. Ugh. I just don't know what to think.
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  #4  
Unread 03-21-2005, 05:18 PM
Severe rectal pain post TVH

Hi ((( kmello))),

Sorry to hear you are having pain...nothing more worrisome. To ease your mind, maybe you should call the dr. who did your surgery. It may be related and something they would want to know about. While you are healing you will feel pain, but this pain sounds so specific and intense that, I too, would wonder what it is. To be on the safe side I would just call and explain what is going on. Saying it's IBS right off the bat seems a little lazy on the part of the colorectal specialist to me. Usually they say that only after they have done other tests and things. It never hurts to call and be on the safe side. If they act funny about it that's their problem. It's your body and you need to know what is going on.

Sherry
  #5  
Unread 03-21-2005, 06:25 PM
Severe rectal pain post TVH

Hi Kmello

I am sorry you are having so much pain and hope you find some answers.

I can relate to the rectal pain. I have had it a few times. It will wake me up at night. I get up and walk and usually go to the bathroom and it subsides. It seems to be related to gas built up in there and once I go, it's okay. But, before I go it really, really hurts.

I had this pain when I woke up from my TVH. It was much worse then. Now, I still have a feeling of constant pressure in my rectum. I don't know if that is from my surgeries or if it is from my hemorrhoids. I am only bothered by the rectal pain (the real bad pain)occasiionally and for me it always happens at night. I only had it happen one time in the day.

I too have a cyst on my ovary but I don't see how that could cause this pain.


Poofy
  #6  
Unread 03-22-2005, 05:45 AM
Severe rectal pain post TVH

Hi Poofy,

Wow, it sounds as if you might understand the pains I have. Mine happen however any time of the day--never during the night. I've had them driving, standing in my kitchen--you name it. They happen several times a week. The most intense one ever was just a week or so ago. I thought I'd lose my mind until the intensity let up enough that I could walk and make it to the bathroom. I too will say that there seems to be some gas related to it but that doesn't always help either. I end up sitting on the toilet forever afraid to get up that the pain will come back. I feel so awful for hours later--kind of like when you have a diarrhea flu or something. Just that achey belly sore hiney kinda feeling.

I put off going to the doctor for six months because I kept thinking it was part of the healing process and that it would go away. It certainly hasn't and the intensity has even increased. Ugh. It's starting to affect my life in that I'm afraid to go out in the event it might happen. I had a dinner party not too long ago and was getting out dessert when it hit. I hightailed it to the bathroom with my guests clueless to what the heck happened to me. My husband has seen the attacks hit me and when my babysitter saw it once she was ready to call 911.

At any rate, thanks so much for your support. I hope your pains ease and so do mine!

(((Hugs))))
Kathi
  #7  
Unread 03-22-2005, 03:26 PM
Severe rectal pain post TVH

  Quote:
Originally posted by kmello
Out of curiousity what do pelvic floor spasms feel like?
\

I have no clue! When I went to the chronic pelvic pain specialist, after she examined me internally, she said that I had this. All I know is that I hurt from my belly button down and all in there too. The pain doesn't feel any diff this time from all the other times--tugging, pulilng, sharp stabbing pains all over constantly.
  #8  
Unread 03-22-2005, 07:28 PM
Rectal pain

Hi Kmello,

I'm sorry that you are having so much pain and that you have had to go through so much.

I, too, have experienced sharp rectal pains. Two months ago I had laproscopy to remove a large cyst (18x14cm) that had adhered to my intestines, left ovary, and left tube. The cyst had been causing pain in my lower abdomin, so the dr drained and removed the cyst. Since the surgery. I'm having rectal pain and an ultrasound shows another fluid-filled cyst. It is certainly my experience that cysts can cause abdonimal and lower back pain. If you also have adhesions from the surgery involving a cyst and your intestines, perhaps they are causing the rectal pain.

I would follow up with your gyn and a gyn oncologist regarding the cysts and your rectal pain.

Hope you get some answers soon,

Quetzal
  #9  
Unread 04-04-2005, 10:06 AM
Severe rectal pain post TVH

Hello Kmello,

I found your thread while on the hunt for some answers to the severe pain that I've been having. I wanted to post to your thread to let you know that I'm super sorry that you are going through all of this, but also to share my story (if you don't mind) -I dont know if it will help anyone...however I wouldnt know unless it was thrown out there, right?

The symptoms of pain that you describe sound soo familiar to my situation, except that mine are strictly cyclical. I've checked my calander each time and the pains fall right in between 28 - 32 days apart. I'm only assuming that they are ovary related. But at my post-op 08-05 (from my TVH-ovaries remain) my GYN said that I should go to my PCP and then to a gastroenterologist. Real bad breast pain, horrible night sweats, anxiety attacks and crying spells go right along with the time frame. Yet, the lower abdominal pain comes out of nowhere...I mean that I'll be feeling fine with not even mild cramps, and then out of the blue come the severe spasms, that are soo sharp, reminding me of labor pains that have even, this last time, hurt into my vaginal canal and legs. I feel like I am going to have a bowel movement, but when I try to, I feel like I am impacted and nothing happens but more spasms..into to the rectum and bladder.

3 months ago I went to my PCP..and she said that I was (get this) !!constipated!! The last two spells that I had were so severe I wanted to call 911, but couldnt even get to the phone and didnt even want to be moved. That led me back to the PCP (after 3 months of fiber pills, green leafy veggies and a ton of water... I wanted to chew her out and explain that it is not constipation, but she wasnt available (luckily) so I saw her N.P. She was smart and ordered a ton of tests including blood work, abdominal ultrasound and pelvic ultrasound. And told me to see a different GYN after the tests were done. Well, I had all of the tests done and now my appoinment with the new GYN is on april 6. Do you all think that just incase all of these tests say that they are neg. I should be pushy about having a lap? Of course I dont know what will happen at this appointment...I'm just really scared about the results and what the GYN will say. I know that it's not going to be good news, because regardless of the results or what she says -the pain is always reaccurrant and is getting worse. I forgot to tell you that these pains began 2 months after I had an Endometrial Ablation, 1 year before my TVH. I thought the TVH would make the pains stop...and now not only do I have no Uterus or Cervix but the pains remain!! And now worse than ever before!

I will make sure to post back the findings from my tests and what the GYN says...if it helps anyone -I hope. If anything (hope you dont mind) I'm reaching out for a connection to others that are going through pain as well. Hope everyone gets some relief. Take good care, Krisclynn
  #10  
Unread 04-04-2005, 10:26 AM
Severe rectal pain post TVH

Kmello,

I am so glad to hear that I am not the only one going through this. For background, I had my TVH in 02, then a lap in 04 to remove my left ovary and then had one again on 3/15 just 3 weeks ago to remove a LOT of endo. I felt ok for the first week and a half, then all of a sudden I started having this pain, but it is constant, and it seems to be from the front to the back in the pelvic floor with pressure, and then the rectal pain. It hurts to sit, walk, move, urinate and then I will get sudden severe pains that just hit me out of nowhere, I was in target the other day when one came on and I just had to stop walking and lean on my cart. The dr. cleared me for intercourse after 2 weeks, well I tried this, thinking it might be ok, it was the worst pain I have felt my entire insides ached. I haven't called my dr yet for fear that I will get the same answers as you, it's IBS, your constipated, its gas buildup. I know this is not it, but I am going to give it a little more time before I call. If you find out anything post and let me know, and I will do the same.

Heather
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