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checking after pre-cancer cells? checking after pre-cancer cells?

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  #1  
Unread 04-01-2005, 08:24 AM
checking after pre-cancer cells?

Hi everyone,

I've been reading in this section and noticed that many of you say that you had a hysterectomy because of atypical hyperplasia and that you have to keep checking for possible cancer??? I don't understand, I had a TAH BSO last Jan 14 which showed precancerous cells and my doc said that that was it, I was cured, nothing to worry about anymore. Should I be worried?

The bad cells were caused by Tamoxifen which I had been taking for 3 years. Now my breast oncologist wants to see me every 6 months (instead of once a year). That has me confused and worried too.

I certainly don't want to worry unnecessarily but I feel I should know the real situation I'm in. I also have a vulvar condition called lichen sclerosus which, if not treated regurlarly can turn into cancer. My feminity has been under the gun so much since I turned 50, I just want some peace of mind and a normal life.

Please anyone, if you can reassure me or inform me on this, I'd be grateful to hear from you.

Thanks a million times.

Soleil
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  #2  
Unread 04-01-2005, 12:03 PM
checking after pre-cancer cells?

((Soleil))

I understand your worry and concern. I don't have an experience to share with you but I wanted to give you a big and say that you are in my prayers.

s and ers

Deb
  #3  
Unread 04-01-2005, 03:12 PM
checking after pre-cancer cells?

Hi Soleil,

I'm probably one of the ladies you've read about.

I had a TAH/BSO last November due to severe atypical hyperplasia. My gyn told me that "pre-cancer" does not automatically mean that it would turn to "cancer". However, atypical almost certainly would. I had "severe" atypical and I was told that it would definitely have turned to cancer.

I have got to have check-ups every 4-6 months for two years, and then yearly until five years. I really don't know if it's necessary for "pre-cancer" of "atypical" to have regular check-ups, as like I said before, my path report showed "severe atypical".

Someone here might be able to explain it a bit better, or in more detail. I'm just repeating what my gyn told me.

I hope this helps.

Geraldines
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  #4  
Unread 04-01-2005, 05:05 PM
checking after pre-cancer cells?

Hi Soleil,

(what a beautiful name!)

I have no experience with pre-cancerous conditions, but I'd think your doctor would want to keep tabs on you. Why not call your gyn/oncologist and ask him? I think if it were me, I would look at it with less panic and more thankfulness that I'm being monitored closer so that anything abnormal could be caught earlier. NOT THAT ANYTHING ABNORMAL IS GOING TO HAPPEN, but just in case.

Hang in there...I know how confusing this must be for you, since you were under the impression that you were finished with this cancer stuff.

xoxox
K9
  #5  
Unread 04-03-2005, 11:01 AM
after precancer cells???

I appreciate your answers Deb, Geraldine and K9.

K9 you are so right, I know that I tend to 'catastrophize', to panic too much and worry myself sick. I've been doing yoga and meditation for 3 years now and it taught me a lot. Well, I still fall into the old habits.

Yes, I feel grateful that I have such good doctors who are looking after me and sooooo happy that it wasn't cancer. I'm doing remarkably well at week 11 and feel good.

Thanks for putting me back on the right track and praying for me. This website is full of wonderful caring women and may God bless you all.

Soleil
  #6  
Unread 04-03-2005, 11:11 AM
checking after pre-cancer cells?

Thanks Soleil, keep up that great attitude!
XOX
k9
  #7  
Unread 04-08-2005, 06:01 PM
To Soleil/atypia

Soleil,
Atypical cells do not mean you will have problems. I also had taken Tamoxifen, and am now trying to avoid a hyster.
You had a hyster, right? Endometrial cancer is slow growing. Your atypia was removed, right?
You should have a fine prognosis.

Yasmina
  #8  
Unread 04-08-2005, 06:54 PM
atypia

Hi Yasmina,

Thanks for answering. I had been on Tamoxifen for 3 years following breast cancer (DCIS). Then last August, I started spotting (I'm 56 and way postmenopausal). I had a first D&C that showed hyperplasia with no atypical cells. Yayy. However, 3 weeks later, the spotting started again and wouldn't stop. In November, I had a second D&C which showed atypical cells this time and I was told I needed a hysterectomy, ovaries, cervix everything out. I had the hyst. in January and tests showed no cancer cells.

I don't take Tamoxifen anymore. My breast tumor was estrogen negative but progesterone positive, that's why I couldn't use Megace or any other progesterone treatment.

Are you on Megace? How long were you on Tamoxifen before you started having endometrial problems?? Personally, nobody sent me for an ultrasound test to check the thickness of my uterus while on Tamoxifen. On hindsight, I should have insisted to have this test, perhaps you can avoid a hyst if the thickening is found early? Hope this is your case and that all will be well.

I'd love to hear from you and thanks again for replying.

Soleil
  #9  
Unread 04-09-2005, 08:40 AM
tamoxifen

Soleil,

I was on tamoxifen for about one year. I took myself off of it, as I didn't feel right. I started bruising like crazy. I was diagnosed with endometrial hyperplasia with a focal area of atypia about 9 months later.

They did do an ultrasound when I started having symptoms of wierd discharge (and a cervical polyp). Interesting that the ultrasound did not indicate the lining of the endometrium was thicker than usual.

Also interesting that the first two doctors refused to admit Tamoxifen for a year could possibly be related to my endometrial problem. My oncologist has agreed that this whole ordeal is probably related to the Tamoxifen.

I am hoping so. I was taking Tamoxifen as I am higher risk for breast cancer. I haven't had breast cancer. I am hoping that when I have my d and c in a couple weeks all will be OK. I do worry about my breasts...but I figure one thing at a time.

The whole process has taught me that taking medicine is very risky. I only take medicine now for very ultra significant reasons. Right now, taking the megace with all its' horrible side effects is definitely something I have no choice about unless I have a hysterectomy right now.

Now I am curious if my sudden breast tenderness (very recent problem) is an indication of a breast issue. Hope not. I am trying to deal with one physical problem at a time, and the endometrial issues are most pressing.

For me, this whole year and a half has been impossibly stressful. One physical thing after another. I have learned to just accept and know that it will 'not be over.' ...I just try to feel blessed each day that I am basically a healthy person.

Yasmina
  #10  
Unread 04-10-2005, 01:59 PM
atypical cells

Yasmina, please let us know the results of your next D&C. I'm sure all will be well. You'll be in my prayers.
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