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Ilioinguinal/iliohypogastric Nerve entrapment Ilioinguinal/iliohypogastric Nerve entrapment

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  #1  
Unread 04-05-2005, 10:38 AM
Ilioinguinal/iliohypogastric Nerve entrapment

Hello to all: Once again it has been a long time since I posted and once again i'm extremely frustrated. Have been seeing PM dr. who hasn't written me off yet. Met with anesthesiologist re:nerve block as everything is leading to some of the pain being caused by these 2 nerves being entrapped. Anestesiologist wants to do a series of blocks, 1 a week for 4-6 weeks (at hospital 4hrs from home) and Pm dr. has referred me to a general surgeon and a new ob/gyn both for opinions. I guess i'm still hopefully of some kind of diagnosis. I agree with the nerve pain as dh and I have thought this for 18months but that does nothing to relieve the inner pelvic pain which is probably due to adhesions again. I also am extremely sensitive to the touch (nerve damage) and was prescribed a concoction of elavil/gerpabentin/ketamine and morphine in cream form. So far no luck not sure how long that will take to work (can't wait to wear clothes with zippers and buttons/no more elastic waistbands!). I'm just wondering what to expect with these injections I know they aren't long lasting and wondering if anyone has had similar situation. Also wondering why they can't find the nerves and untrap them. If anyone has any info please advise. Thank you Neener.
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  #2  
Unread 04-05-2005, 12:56 PM
Ilioinguinal/iliohypogastric Nerve entrapment

No information to share ... just s

Sounds like your plate is full. Also sounds like you are building a good system of medical support, too. I sure hope you find relief soon!

Take care
  #3  
Unread 04-05-2005, 01:34 PM
HI

Hi,
I know how frustrating all this can be!!! I am 1 1/2 years post-op and I have been to all kinds of doctors!!!! One said "that's just the way you healed" to "abdominal wall syndrome" to "lets cut your incision wide open and scrape out any scar tissue"!!!! I would LOVE to wear a pair of jeans again!!! I did NOT bargain for this! I thought, after 6 weeks I would be FINE!!! Silly me! The last Dr, a natural doctor, wants to do accupuncture directly into the scar. He has admitted that he has never tried to "break up" abdmonial scar tissue before. He has had luck with sports injury tissues. At this point, I am functioning, working full time, and keeping my house (somewhat) clean. I don't want to be someone's guina pig!!!! So, for now I do nothing. I take advil almost every day, and I use a heating pad, warm baths when needed. And I stay away from jeans. I'm sorry I'm not much help, but sometimes it is good to know you are not alone!!!
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  #4  
Unread 04-05-2005, 02:17 PM
Ilioinguinal/iliohypogastric Nerve entrapment

i'm sorry that you are dealing with this, but i'm very glad that you posted - i thought i was going crazy!

my dr. said that my nerves were trying to grow back and were getting kinda "jumbled-up" in my scar tissue. he offered me the option of injecting a local into the scar and if that helped, we could then try injecting cortisone. he said that might help get me thru until things "work themselves out" - i just don't know.

it hurts now, but the idea of needles going directly in there is not something i'm very excited about. i'm also not clear on how things are going to clear-up on their own if i give it "enough" time . . .

guess i gotta think about it some more - it really does help to know that i'm not alone!

s & good thoughts to all!
  #5  
Unread 04-05-2005, 04:51 PM
Ilioinguinal/iliohypogastric Nerve entrapment

Well thank you to all that replied. I guess I should have added to my story. All of this started 3yrs ago Feb.05/02 and I have been off and on this site since so when I post I don't really want to take up space telling the whole story but I should clear up a few things. I had surgery last February(5th one) and had my scar revised and adhesions removed again. Prior to that I was seeing a plastic surgeon for the outer nerve pain. He injected me numerous times with cortisone and anesthetic (in an o.r. room as whatever he was using had to be done in the hospital). I stopped counting at 26 injections, we attempted this 3 times(w/o local anesthetic) and nothing worked. This was prior to me being sent to the PM dr. The PM dr. has done 2 rounds of BOTOX injections one in July and one in Nov. I had a tingling sensation for a week after but again no relief. So I guess that's why I am nervous about the blocks as don't want to get my hopes up again. I will let you know whether the topical cream works. Sorry to take up more space but thought I should share some more of story. Also with this nerve pain it is all left sided. I walk very oddly, hunched over and dragging my left leg. It is also painful to sit in normal position without legs elevated as I get sharp pains, etc. Sorry to go on and on but thought I should update. Thank you to all that have listened and all that have responded. This site is a wonderful help. Please email or respond if anyone has advice. THANKS NEENER
  #6  
Unread 04-05-2005, 08:28 PM
Ilioinguinal/iliohypogastric Nerve entrapment

I have never damage and go in tomorrow for a steriod shot, we hope this works. He is also giving me a shot that will numb me for about 8 hours. If this didn't work he said he'd go in and kill the nerve, but I had to be sure I could live with being numb in the area. I'm so sorry to hear how long you have delt with this. My surgery was Feb 17th 05, I was complaining about the pain for the last 6 weeks. I hope the blocker works for you. Good luck.
  #7  
Unread 09-07-2005, 06:38 PM
Ilioinguinal/iliohypogastric Nerve entrapment

Neener, I know you posted this in april but...hope you will read this. For me, TAH/both ovaries 9/10/04. I had nerve issues from about 2 weeks after surgery...mine is in the pubic bone area. I couldn't wear regular clothes either...couldn't stand anything touching me...somedays even my underwear bothered me. The dr who did the surgery had no answers, just kept telling me I was thin and there were alot of nerves cut and to give it time...my GP thought I had broke of fracture the pubic bone...but CT was clean and clear. Anyway, finally the surgeon made some calls, after 8 months of me complaining!! I went to a female gyn. specialist in chicago. She told me that it was my outer scar was adhered, holding the muscle that runs over my pubic bone to tight againist my pubic bone in turn pressing the nerves againist the bone. She injected me with a numbing soultion right at my pubic bone...yes that hurt alot! (reason for the injection is because you couldn't take the touching and pressing, pulling that was to come next) Right after her injections.Then I went to a PT and she worked at releasing my scar, getting it to move. I did this once a week for 4 weeks, then spread them out further. I went a total of 9 times. For some people less time...some only need this once. I had those day where is was no pain, no gain!! But...it worked I still take neurontin 300mg twice a day, and I still can feel some hurt...but it is soooooooo much better. I can wear jeans w/zippers again and just regular clothes...nothing tight, tight but that okay I should also add that I too had injection of steriods...some other things too trying to rid the pain, but none of that worked (in fact i have a sunk-in spot @ the point of steriod injection)They say this can happen sometime the steriod diburses the fat that "was" there. It has been a long year but a happier one now!! I hope that maybe just maybe my story can help you!! And lol talk about taking up space...
Take care and be safe,
~Zoo~
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