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gyn. oncologist  vs.  ob/gyn gyn. oncologist vs. ob/gyn

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  #1  
Unread 04-08-2005, 10:56 AM
gyn. oncologist vs. ob/gyn

hello ladies,

This is a pre-mature question and I don't know that I have anything more than a cyst and a "mass". I am just trying to get a handle on things... getting concerned that too much info is NOT a good thing... A CT Scan (Feb. 23) of the kidneys (many UTIs and bilateral kidney stones) kidneys are fine...turned into a "surprise" ... a cyst on the left ovary and a mass of the right ovary... I have had a transvaginal pelvic ultra sound (Thurs Mar. 31), saw the ob/gyn Mon. Apr.4,... CA125 test Tues. Apr. 5, ... Had a chest x-ray (Apr. 1) ordered by Gen. Practitioner because of pain in the bone of my shoulder or under the shoulder... bone scan scheduled... I am thinking these tests were ordered because of the cyst/mass as this was written on the hospital request form that I had to give to the x-ray dept at the hospital... No interpretation of Pelvic US as they had not completed the results at the hospital when I saw the ob/gyn...

The OG/GYN says not to be concerned at all that this is normal...he did the physical and confermed there was swelling on both sides and I am tender (during exam and US) women have cysts and mass all through there lives... he is sure nothing is wrong and I have nothing to be concerned about... hmmmmmmmmmmmm ... I wonder?????

I certainly am not "claiming" cancer...

I have follow up appointment with him Apr. 21st at which time he said they would schedule another pelvic US... which amazes me as they were found the 23rd of Feb (CT) and seen on US the 31st of Mar. felt on the 4th of Apr. and I have to wait another 4 weeks after Apr. 21 ????????...... WOW....... all US and x-rays done at the hospital here.... the US technician said it would take 3 - 4 working days, the Dr said they would call if they got the report back on the US before the 21 of Apr... they have not yet although I feel sure they have received it... I have an appt scheduled and they will let me keep it I think....

I live in Bermuda am from the U.S North Carolina... I have read on some of the posts to see a gyn. oncologist, there is not one on the island and I am not sure if the insurance company pays for going abroad for a diagnostic surgery, which is what the OB/GYN said would happen if the cyst and or mass does not go away...

oh, I had a hyster in Feb of 1994 uterine fibroids, painful periods and excessive bleeding, no cancer. The ovaries obviously I was able to keep.....

Cancer, not ovarian , that I know of ... colon, bone, lung runs in both maternal and paternal sides of my family for generations I am told...

Gosh this is alot... I apologize....... but thank you in advance for advice here....though I do understand it is not to take the place of a DRs advice...

Questions:

Should I be concerned, or would you be concerned if you were told of cyst/mass?

Do I demand to see a GYN. Oncologist and not allow a Dr here on the island to do this surgery? At this point I am told it's nothing... that we will just remove the cyst and mass????

Should I call the ob'gyn and ask if they have gotten the results from the pelvic US and ask for an earlier appointment?

I am feeling a little anxious....

I really appreciate this web site and have found great information here through the resources and messages......

Thank you all,

Sallie
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  #2  
Unread 04-08-2005, 11:42 AM
gyn. oncologist vs. ob/gyn

Sallie -

If it is "nothing" why are they removing it at all? You have had all the proper tests done - CT, US and CA-125 to indicate whether there is a possibility of cancer - ovarian or other.

IMHO, take all of your test results to a gyn onc and get an opinion. All of these test results should be "in" within 4-5 days of being performed. Personally pick up the paper and the copy of the CT and bring them to a board-certified gyn onc.

Hoping that it is just "nothing"

Dorrie
  #3  
Unread 04-08-2005, 11:45 AM
Re: gyn. oncologist vs. ob/gyn

Hi - here are my comments, based on my own knowledge and experience - and I'm sure other sisters here will have a lot more information for you.

Questions:

"Should I be concerned, or would you be concerned if you were told of cyst/mass?"

I would definitely be concerned with either a cyst or a mass.

Ovarian cysts can come and go by themselves, especially in pre-menopausal women. In post-menopausal women, cysts and masses must be looked at because they don't usually go away on their own. (Even in pre-menopausal women, if the cysts don't go away in a few weeks, they need further examination.)

Cysts need to be examined is because that is the only way to find out what they are. I had a hyst last fall after unexpected discovery of ovarian masses and cysts. My MD said he didn't think it was cancer (and it wasn't), BUT the only way to know for sure was with surgery. Also - I do have a bad family history (ovarian, pancreatic, colon cancers).

"Do I demand to see a GYN. Oncologist and not allow a Dr here on the island to do this surgery?"
Should I call the ob'gyn and ask if they have gotten the results from the pelvic US and ask for an earlier appointment?"

Because of where you live, that's hard to decide, but I believe that is the best kind of MD to see for something like this.

I would encourage you to get an earlier appointment, and have the tests and exams rechecked. Maybe some of the x-rays, etc., could be sent to a GYN/ONC elsewhere for review. That might give more help in deciding who to see.

The bone cancer in your family could have been metastasized from another location - it would be useful for your MD if you can track that down.

I know this is scary, but the sisters on this board provide wonderful support.

Please stay in touch -
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  #4  
Unread 04-08-2005, 12:32 PM
gyn. oncologist vs. ob/gyn

Thank you...

I just faxed a request for the written results to the ob/gyn's office... at least I would feel more informed of what is there if I saw that report... the Drs seem reluctant to give any written information...... I'll let you know what turns up and I am calling the insurance company to inquire about coverage for going abroad for medical assistance....

Thank you again,

Sallie
  #5  
Unread 04-09-2005, 10:07 AM
gyn. oncologist vs. ob/gyn

((((Sallie))))

I'm sorry you are going thru this! Why do those doctors have to give you the run-around? You have a right to access your medical information and I hope they get those reports to you soon.

You have gotten excellent advice from our sisters here. I would agree that there is every reason to get to the bottom of this....yes, it could be "just" a cyst..and I'm praying that is so...but you dont' know til you explore every avenue.

I would STRONGLY recomend you seeing a gyn/oncologist just in case they do find cancer when they do the surgery. They are the best MD's to be prepared for just such a situation.

There's a good chance that this is all benign stuff....but, you want to be prepared with the best possible medical team, just in case.

Please keep us updated.

XOXOX
Gini
  #6  
Unread 04-11-2005, 10:36 AM
Difficult to get written results - gyn. oncologist vs. ob/gyn

Hi Ladies...

Friday 04/08/05... I faxed my ob/gyn and gen/ practioner for the results of the pelvic US performed Mar. 31... I received nothing on Friday and nothing over the weekend which I would not expect to have recieved then... I faxed a second request to both DRs this morning.......

Have any of you all had a difficult time getting your information from DRs.... is this "normal" ?

I don't understand what the problem is as it is my body....

Thanks,

Sallie
  #7  
Unread 04-11-2005, 01:45 PM
gyn. oncologist vs. ob/gyn

Sallie,

I know here that sometimes docs have specific release forms that they would like you to sign, and that can be the hold-up.

I have found what works best is a call to the office, and let them know that you'll stop by tomorrow or whenever to pick up the reports.

Have you received the results of your CA-125 or CT yet?

For the CT, you can often just go to the facility where the scan was done and get the report

Dorrie
  #8  
Unread 04-11-2005, 06:26 PM
gyn. oncologist vs. ob/gyn

s Sallie

That is a long wait, from the testing to the office visit, to get results. They mention scheduling you for another ultrasound during the office visit, when you haven't even gotten the results from the first ultrasound yet?
Cysts are common, masses are not. Cysts will often disappear during the next menstrual cycle.
You cannot go wrong by consulting with a gynecologic oncologist.
If after all the testing, the suspicion of ovarian cancer remains, you do not want your ob/gyn to perform any surgery or even a laprascopic biopsy.
Be persistent and get those results. I agree with Dorrie. Show up in person.
Best wishes.

oxoxo karenann
  #9  
Unread 04-12-2005, 12:01 AM
gyn. oncologist vs. ob/gyn

Hi Sallie,
I am an American living abroad also, and last April I went to a doctor and found I had an ovarian 'cystic mass'. I talked to 3 doctors here and they all said the same thing; cysts are not a big worry, but if there is a mass (partially solid), that is a concern. My insurance first said get a second opinion, and I did, and that ob/gyn said the same thing. My insurance company had me medically evacuated to Thailand. The whole time I didn't expect the mass to turn out to be anything... but it DID. If I had had the surgery here in Nepal, I may have had a skilled surgen as far as tumors go, but for cancer, JUST IN CASE it is cancer, and you don't know until the surgery, you need to have a specialist. If not, your chances of survival are less. If I had had that surgery here, I would'nt have had much chance of survival!
If I were you, I would DEFINITALY insist on an oncologist.
I feel so fortunate to have gotten out of here and gotten proper treatment. Now I can go on with my life. I have two friends here in Nepal now who have cancer, and they don't have much hope. I hope I haven't scared you, but I hope you will go to where you can get good treatment. Perhaps they have good treatment there, but if you have a 'mass' then you need a gyn/onc. to make sure... then if it turns out to be nothing. all the better.
You will be in my prayers. Keep us informed.
-Sue
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