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Medical/Technical Support Needs Medical/Technical Support Needs

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Unread 04-08-2005, 01:19 PM
Medical/Technical Support Needs

Do any of you know a support forum where they discuss ovarian cancer, and the medical/technical aspects of it? I would like to hook up with a support network that is keeping up and sharing medical research, etc..

I have cancelled my surgery, because I was being pushed into a procedure that would only make me go through multiple surgeries. The doctor who was doing the surgery kept making 'mistakes' with the paper work. He would not take my calls or answer my questions. There were a whole lot of other things that happened that were potentially disastrous and even life threatening.

You can either respond here or contact me through PM. I really need medical/technical support. Thank you ladies.
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Unread 04-08-2005, 03:10 PM
Medical/Technical Support Needs

You might want to try the ACOR ovarian problems list, maintained by the Association of Cancer Online Resources. There are new medical abstracts on there just about daily. It has a membership of about 1200.
Unread 04-08-2005, 03:23 PM
Medical/Technical Support Needs

Goodness, (((Sharon))), it sounds like you've been put through a lot of stressful waiting and planning and changing of plans lately. I'm glad you're taking time to get your thoughts together and carefully decide what treatment option is best for you. I hope you find a DR you feel more comfortable with and whose judgment you feel you can trust, so you can get on with the business of being a healthier you

I'm not quite sure what you're seeking in terms of a support forum where research is discussed. Most of the larger OvCa (and other cancer) support networks have subforums for medical professionals in which such information is shared as it applies to their current practice. Are you a medical professional?

Otherwise, the "main" forums at all these sites are for patient to patient support - discussions of personal experiences with OvCa rather than in depth technical discussions.

We do have an evolving Resources directory here which contains some more technical information than would be appropriate on the message boards. For example, I noticed you had just put a couple of links about a particular procedure in a reply to someone else on another thread, and I submitted them to Resources; once approved, they'll be available there to anyone who might want to access them.

Members are encouraged to submit links to sites with basic information about procedures and treatments as well as current research abstracts which they think might be of interest to other members. We find that the Resources directory method of handling this information is much better than posting it on the message boards, because if a link is posted on a thread, it may be seen by those who happen to read that thread before it falls off the first page, but otherwise tends to get lost in the shuffle; Resources, OTOH, is always there and separately searchable You might want to check it out -- just click on "Resources" in the banner at the top of the page and scroll down the list to the particular subsection you are interested in.

Good luck with whatever treatment option(s) you decide to pursue.
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Unread 04-08-2005, 03:26 PM
Medical/Technical Support Needs

s Sharon

I read your profile.
If ovarian cancer is suspected, you were correct to cancel a laprascopic hyster with a BSO!!
Was this doctor a gynecologic oncologist?
Please share more about your situation.
And acor is a wonderful place for advice.
Let me know if you have any difficulty accessing that site and I will send along more detailed directions.
Best wishes to you.

oxoxox karenann
Unread 04-08-2005, 03:54 PM
Medical/Technical Support Needs

Originally posted by surferbabe
[b]Most of the larger OvCa (and other cancer) support networks have subforums for medical professionals in which such information is shared as it applies to their current practice. Are you a medical professional?
I checked that out. There is a .org and and .net that both look like they might help me. I am not a medical professional. I have just been a cancer advocate for a number of years, first as a list manager for ACOR for several years, and then through my own websites. So, I have a tendency to want to know a whole lot more than the average cancer patient would.

I talked to the new doctor yesterday, and I think he believes what I believe after reviewing the latest research documents - that there is a definite reason for me to be concerned about this being cancerous. He is being very prudent. Which made me feel a whole lot better about everything.

I always want to know the nitty gritty and the 'what ifs' ahead of time. Call me a control freak, but if I am a cancer 'double hitter', I BETTER take this very seriously. And I do. Thanks for the websites. This will help a lot.
Unread 04-08-2005, 04:31 PM
Medical/Technical Support Needs

Hi Sharon

You are so right about the connection between breast and ovarian cancer.
Also colon. It is a triangle. We mention that frequently on Cancer Concerns.
I have read some of your previous postings.
It is almost hard to believe that this credible gyn onc was going to perform laprascopic surgery where ovarian cancer was suspected. Most gyn oncs will not even biopsy an ovarian surface via a laprascope. The risk of spillage with these cancer cells is soooo high.!!
Have you had a CAT scan or an MRI?
How about a ca 125?

oxox karenann

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