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Uterine Cancer, help, please... Uterine Cancer, help, please...

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Unread 04-12-2005, 10:01 PM
Uterine Cancer, help, please...

With my D&C I was just diagnosed with uterine cancer today, stage 1. Undifferentiated cells. My doctor told me my only viable option was to have a hyesterectomy and I'm absolutely devestated. I want to have my own children. I'm only 29 years old. Is it unusual that my doctor didn't even offer the possiblity of this "megace"? Should I have a second opinion before getting the hyst, he wants to do it Monday, six days away. I would do anything for the chance to have my own children, but I'm also scared of the cancer.
With my endometrial biopsy I was told it's complex hyperplasia, then a month later with the D&C I was just told it's cancer.

Please help with some advice. Thanks so much. Kathy
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Unread 04-13-2005, 06:02 AM
pls see gyn/onc for second opinion

Hi ((Kathy))

According to the two gyn/onc specialist I saw, and one is head of the gyn/onc dept at a major university, statistics show that women under the age of 40 do the best (have reversal of even complex hyperplasia with atypia (cha) -we did not talk re cancer being there) with megace and/or other hormone therapy. He said he will at least try megace or another drug if a woman of child bearing age comes to him with cha and says she still want to have children.

Of course I don't know if having a low stage cancer already may exclude such therapy, etc. but I strongly suggest you get at least a second opinion and from a gyn/onc. In any case when cancer even is suspect it is prudent to have a gyn/onc involved.

Good luck and pls let us know how you are doing.
s, peggiesue
Unread 04-13-2005, 07:07 AM
Uterine Cancer, help, please...

You and I share the same dx....but I was 43 when dx, three years ago...At this point.....my most crucial advise to you is to get an appt with an onc/gyn. Find out who is known in your area and get an appt with ASAP. The onc/gyn will be able to give you all of your options....It is also very very important for your lymphnodes to be sampled if a hyst is done....most reg. gyn's dont do that. Email, pm, or post any questions. Chris
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Unread 04-13-2005, 11:56 AM
Uterine Cancer, help, please...

Hello, thank you all for your emails and words of kindness. I did see a gynocological oncologist, and at Roswel Park here in Buffalo NY, the best anyone can see for hundreds of miles, and the head of the dept at that. There really is nowhere else for me to go, I think I've come to that conclusion this morning. I just find it so hard to believe that I will ever be happy in my future without having my own children. Thank you all again.
Unread 04-13-2005, 12:10 PM
Uterine Cancer, help, please...

Hi Kathy,

I too am another endo CA survivor (diagnosed at age 42). When I read your age, 29, I continue to be shocked at how many young women are getting this desease. It "used" to be something that didn't rear its ugly head until decades later. In any event, here we are.

First, big hugs to you as you go through this discernment process, we all know how hard this is!!! I did want to say that I know you will have the strength to do what you need to do to take the best care of yourself, and that you will be OK (and even very happy) after all of the aftermath is over.

Cancer is soooo hard in that it comes in and takes over our lives, but only for a while, until we figure out how to beat it and move on. We are all changed for it, but we Sisters have the spirit and determination and support to go on with our lives and enjoy every minute of it.

So I am not trying to make light of your situation at all, I feel your sorrow and know first hand you have lots of tears and fears - just wanted to share my belief for you that you will get beyond this and you will survive and thrive. You may not see it now, but it will happen. All the best, Judy
Unread 04-14-2005, 02:58 AM
Uterine Cancer, help, please...

Thanks for responding to my post. My surgery is Monday and now I find myself worried that the cancer had already spread past my uterus even though I know it most likely didn't, and even the doctor told me he doesn't think it had (he said he was 90% sure) but the what if's are keeping me up at night (it's 5am now!). I'm so scared and I don't want this disease and the fear of it to consume the rest of my life.
Unread 04-14-2005, 03:28 AM
Uterine Cancer, help, please...

Hi Kathy,

While this may be difficult to believe for you now, as Judy says you will get beyond this and cancer will not consume your life. In fact, and this will be even harder to believe, you may later look back, as many survivors have, and realize this beast can even have a positive aspect in that for example some come to realize and focus on what is really importance to them in their lives.

Pls ask your doctor to give you something to help any sleep and possible anxiety problems; many women facing surgery alone need this and your doctor will understand that this is a very trying/ unsettling time for you.

BTW both my gyn and gyn told me before my operation that if one had to have cancer, endometrial cancer was the one to get because it often gives clear symptoms which thus allow it to be caught in an early stage and for early stage endometrial cancer the surgery alone is often the cure.

I am keeping you in thought and prayer.
s, peggiesue
Unread 04-14-2005, 02:28 PM
Uterine Cancer, help, please...

I agree with Peggiesue.....ask one of your docs for some meds to get you through this part of the process. My gyn prescribed the lowest dose of Xanax for during the day and Ambien at night....It settled me down....allowed me to think clearly....
My gyn also told me if you have to get a cancer.....endo/uterine is the best to get as it is the most curable with surgery alone.
Unread 04-15-2005, 09:26 AM
Uterine Cancer, help, please...


My thoughts and prays are with you. Hearing the diagnosis at any age is hard, but especially 30 years before you are supposed to be concerned about this cancer is heartbreaking. It especially hit home when you discussed the infertility factor and your concern that you will never be happy if you do not birth a child. I hope my experience helps you a little.
Prior to my surgery last year, several people at work suggested that maybe I should get pregnant, then have the surgery after having the baby. My gyn-onc. thought that these people were very insensitive but my gyn. said it best and I have much less concern about my failure to have a child before the hyster. My gyn said, well your child will likely be motherless after birth...basically the hormones during pregnancy could cause the disease to spread more rapidly, the approximate year without treatment can easily cause a Stage 1 to become a Stage 2-4, and finally, even if you can be treated for the latter stage disease, you likely will be too sick to enjoy your child's early years... I took comfort in these words because I certainly thought that maybe I was being selfish for scheduling the surgery before having a child, but if you are too ill to take care of your child, is it fair to either of you???
Right now it sounds like you can be treated successfully for your cancer. What happens in the next years are open to many possibilites, including adoption, surrogate mothers, marrying a man with children, enjoying your neices and nephews and your friends' children. Please don't lose that opportunity.

Lexis: endo.can. 1 (b), 3; TAH/BSO February 2004
Unread 04-16-2005, 07:42 PM
My prayers are with you Kathy

Hi Kathy,

Although I am now 57 years old and 9 days post op for uterine cancer, I have dealt with a lifetime of infertility. I grieve for you but know that God can take all things and turn it to good. Soon this will be over; the waiting is the worst.

I've had a full life; 36 years of teaching children and loving it. I have all kinds of children in my life; they are just not biologically mine.


If the cancer has NOT spread beyond the uterine wall ( and my gyn says that is probable) why do I still read other posts on this site that say most women have radiation treatments. Thanks

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