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New with Endometrial Hyperplasia New with Endometrial Hyperplasia

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  #1  
Unread 04-16-2005, 07:47 PM
New with Endometrial Hyperplasia

Hi - I'm new here and thought I would like to get some feedback. A little background. I'm 56 (late going into menopause) and started having problems in Dec. 03 with prolonged periods and heavy bleeding. Had sonogram that revealed 14mm endo lining. Had biopsy in Jan 04 (simple hyperplasia) and D & C in Feb 04. Put on Megace (20 mg daily). Repeat biopsies in June and Sept 04 came back normal but I had irregular bleeding (and from June to Sept bleeding lightly every day). By Sept had vaginal atrophy and was taken off Megace. Sono in Dec 04 showed 8mm lining. Had biopsy in Jan 05 (complex hyperplasia). Advised to have hysterectomy. Consulted oncologist/gyn and second gyn. Switched to second gyn (liked him better than woman I was going to). He refered me to second oncologist/gyn who said I did not need hysterectomy.

Had second D & C March 14th - pathology came back fine. The new gyn didn't want to see me for 6 weeks so I go back to him on the 26th. I'm a little nervous because he doesn't want me on any medication and the longest I have ever gone without bleeding is 4 months and both times I did that I had hyperplasia. Has anyone had a D & C take care of hyperplasia? I really feel fine and have no symptoms of menopause (no hot flashes or night sweats) but I've been told that is because I have unopposed estrogen.

I have also consulted a doctor about bioidentical hormones. Anyone on them?

Thanks for any info - sorry this is so long.
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  #2  
Unread 04-18-2005, 05:23 AM
New with Endometrial Hyperplasia

Hi

I do not have any personal experience with your situation but wanted to share some articles I found that may be helpful.

Endometrial Hyperplasia
http://www.althysterectomy.org/endohyper.htm

complex hyperplasia
http://www.baymoon.com/~gyncancer/li.../aa110600b.htm

Here are some articles about bio-identical hormones.
Hormone Jungle Articles

Hormone resources

I am using bio-identical hormones and I really feel good using them. My situation may be different than yours because I have already had a hysterectomy and do not have my ovaries.

Wome that use estrogen and still have a uterus also need to use progesterone or progestin with the estrogen in order to protect the uterus from cancer. I'm sure you already have been told this, but just wanted to pass that along.

Hopefully someone that has had a D&C and or experience with hyperplasia will come along and share their experiences with you.

Best Wishes

  #3  
Unread 04-18-2005, 05:46 AM
New with Endometrial Hyperplasia

Hi

I'm 41 and had a hysterectomy last year due to hyperplasia. In a 6 month period I went from simple hyperplasia to complex hyperplasia. My mom's sister died of endometrial cancer at age 51 - we felt that she probably had all of the same symptoms that I did but because of her age, and her not wanting to "bother" anyone - she wrote them off to menopause.

I was going to have to have in the office d&c's every 4-6 months and the agony of waiting and wondering when/if it would come back cancerous was mentally killing me. So I chose to have a TAH and not have to wonder anymore.

The decision is very personal - my SIL who is a nurse tried to convince me not to have the TAH. But as I told her - you're not living in my body or my head and I can't live with the threat of cancer hanging over my head.

Good luck in whatever you decide to do.

Julie
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  #4  
Unread 04-18-2005, 11:39 AM
New with Endometrial Hyperplasia

Hi, I had a dx of complex hyperplasia with atypica cannot rule out cancer when I was 4 years post-menopausal. Re my symptoms: There was very slight spotting which was sporadic and at first my PCP thought it was a urinary infection as a test seem to show this; took pills and everything was fine for awhile. Finally when the slight spotting returned 3 months later, my PCP sent me to a Gyn who did a vaginal-ultrasound and then a D&C which led to above DX.
In order to avoid surgery, I got opinions from 2 Gyn/Oncs in - this was to be a first surgery every in my life. Both Gyn/Oncs said statistically megace and other hormonal therapy do not work very well on women over 45 or 50 and they highly recommended a TAH/BSO to include view and possible testing of lymph nodes. If I insisted on megace, both would try but said to insure cancer was not developing, I would have D&C every 3 months and that was not a good idea given need for anesthesia,etc. When I asked what would you do if a member of your family, at my age, etc. had my dx both immediately said encourage a hysterectomy asap. So I had my surgery and thank God the surgery seems to have been the cure. I did not need even need lymph nodes dissections. In any case since they found stage 1B cancer I am very thankful this medical team steered my to the surgery.
I know you will come to an informed decision that is best for you.
PS: We have had women post on CancerConcerns who've used megace as they attempted to reverse suspect and even know endometrial cancer. You would be very welcome to post on CC if your would like.
  #5  
Unread 04-18-2005, 02:41 PM
New with Endometrial Hyperplasia

I thought I had breezed through menopause at the age of 53. Had occasional hot flashes and insomnia, but was feeling ok. No symptoms, except for occasional clear discharge, sometimes tinged with pink (I did not recognize this as a symptom of anything until I found this site). Had a pap smear that had some endomtrial cells on the cervix. Had an ultrasound which revealed a 9mm thickness of the endometrial lining. (Also, overweight and on unopposed estrogen) Had a D&C and hysteroscopy. Doc removed a benign polyp and biopsy came back : Complex Hyperplasia with Atypia -- pathologist also said there were a few "suspicious" spots. I had been told that in 25% of cases, this pre-cancerous condition turns out to be cancerous, but that the good news is this is a slow-growing cancer and a hysterectomy usually takes care of it. Because of my age, and because I didn't want repeated D&C's, I went ahead and had a LAVH/BSO. You must take everything you know about your body and everything you can learn into consideration when making this decision. It's not an easy one to make, I know. Good luck in whatever you decide!!
  #6  
Unread 04-18-2005, 07:08 PM
New with Endometrial Hyperplasia

Thank you to everyone who replied to my post. I do appreciate your sharing your personal experiences. This is never something that it entered into lightly and is a very personal issue. I trust my new gyn and will do whatever he advises.

I found out that he is against the bioidentical route and I will not do that. I also know that I cannot take any form of estrogen because of the hyperplasia, but since I really have no meno symptoms that's not a problem.

Thanks again for listening and being there.
  #7  
Unread 04-19-2005, 03:09 PM
New with Endometrial Hyperplasia

I see some familiar names responding to this post I'm surprised at how relatively few women post about this condition.
I too have hyperplasia, the complex atypical flavor. Is yours atypical??
I'm waiting for my TAH on May 16th. The waiting is a pain but I can relate to your situation. I've searched high and low for alternatives to a TAH, finally when my well repected doctor said "no doctor in America is going to tell you you don't need a hysterectomy" I settled down a bit.
You might look up some of my old posts as I went over this condition with many supportive sisters. I'll keep looking for your posts.......wishing you all the best of health.

Hi other sisters!
HJ
  #8  
Unread 04-19-2005, 06:47 PM
support needed

Well, read all your posts.
Tomorrow, I have a D and C scheduled after being on Megace 40 twice a day for a good while.

I am scared.

I am 48...the docs think that use of Tamoxifen for one year may be tied in. I did have the clear discharge thing, which lead to my diagnosis.

There must be cases of women who do well with medical management. ? The statistics are in our favor of stuff like Megace working. That is what I am hoping for.

I guess one reason I am scared of a hysterectomy is removal of the ovaries. I already have cardiac issues. Seems surgical menopause intensifies them?

I am so scared at this point.

Yasmina
  #9  
Unread 04-19-2005, 07:03 PM
New with Endometrial Hyperplasia

Yasmina - good luck with your D & C. I assume you have had one before. I was fine after both of mine and am confused how the D & C pathology both times came back with no hyperplasia!! With the first D & C I did have a lot of polyps (8-10) which were removed. I may be crazy but I don't consider myself post menopausal because I have not gone 12 months without bleeding (the most was 4 months!). Of course I could have had the bleeding because of the hyperplasia but I don't know for sure. Thank God both of my hyperplasia dx were without atypia which is a good thing.

When I was diagnosed in Jan 05 with complex hyperplasia (without atypia) from a biopsy I was told to go back on the Megace (20mg daily). After 3 weeks on it I went to the second oncol/gyn and he did a repeat biopsy which came back normal!! After only 3 weeks on Megace! So I guess the Megace worked but the new Gyn I'm going to doesn't like Megace for some reason and has me on nothing now which makes me nervous. I will find out next week what he wants me to do.

HJ good luck with your surgery on May 16th. I'm sure all will go well for you.

Thanks again to everyone for sharing.
  #10  
Unread 04-20-2005, 01:20 PM
New with Endometrial Hyperplasia

Dear March 1949,
I forgot who started this post and had to go back and check! I too thought I was having periods but it was the hyperplasia. I had no periods for 11 months and started bleeding in Dec. last year and then again the next month. So I casually brought it up to my doctor and the rest is history. I think the D&C took care of the bleeding for now anyway.
I just don't like waiting 2 months for an operation when I believe my condition (complex atypical hyperplasia) is right next door to the start of cancer. My doctor is in high demand, plus he's on vacation right now so there's no chance of a cancelation (I'm on a wait list to get in sooner) until he comes back. Oh well. Sometimes I spend a couple hours on this site and then stay away for a few days......this waiting is driving me nuts. Probably driving my DH nuts as well. There's a hot flash.....my emotions can set them off!
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