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I'm at the end of my rope I'm at the end of my rope

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Unread 04-23-2005, 03:37 PM
I'm at the end of my rope

Hi Ladies:

I hope everyone is doing good and enjoying spring.

Ok, I'm at the end of my rope and so is my body...

I'm sure you have read my post about this starting in Feb after having intercouse. VERY bad cramps, was in the hospital on IV's sent home on Antib. Had a ct/altersound/pap/pee test/ all AOK...Saw the gyno who is a NUT, wanted me to go off my HRT and try this shot he thinks I might have Endo (no way) you don't get a high white count fever etc from Endo plus I did not have it when I had my hyst. I was tested for PID AOK, he would not do a "lap" because I would not take this shot, I walked right out...

I'm still taking the Zitromax 250mg a day and have been for 30 days, cramps are better but still there and I still have that flush/hot feeling (no temp anymore) ( its mostley in my left side).....I'm seeing the GI for a scope (butt test) next week and my HMO doctor wants me to see a surgan, not sure if they do "LAPS" or not or what he can look for, she is still thinking I have an infection of some sort, BUT WHERE.....Urlogist said all is AOK....

I don't know where to turn anymore, I live with a heating pad, I'm back at work and its so hard to make it though the day, and I don't know how long a LIVER can take me being on the Zitromax, I'm scared to go off it.....

She is referreing me to an infectious disease (however you spell it) specialist, maybe he can help me, I have no idea anymore...

I have not had intercourse since Feb as I'm so scared to, I thank god everyday that Jim is so understanding....

Any ideas anyone?????????????????

Thank you so much
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Unread 04-23-2005, 06:25 PM
I'm at the end of my rope

Oh ((((Julie)))) I'm so sorry you're having such a hard time of it I don't have any answers for you but do have a suggestion: since you had such a bad experience with your GYN, you may want to try a second opinion. That way, you would have another point of you as to what may be going on for you.

Sending tons and tons of s your way. Please be sure to keep us posted.
Unread 04-24-2005, 04:28 AM
I'm at the end of my rope

Thank you for the hug....I will ask my HMO doctor for a referrel to another Gyno..My HMO doctor is giving up I think...Then she said its in my HEAD, NO ITS NOT.....all I want is my life back...At least in October I can get off this HMO and go to a PPO...

Thanks for the hugs
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Unread 04-24-2005, 06:42 AM

Hi Julie,
I am sorry that you are going through all this. I had my hyst almost two years ago and have never been the same. Seven different doctors since all this happened. The first said it was all in my head also. The GYN was gung-** for endo. I NEVER had any endo symptoms my entire life. I never had any bleeding, cramping, nothing!!! I DID have a huge cyst on the fallopion tube. Had a lap to remove that, and that's when all the other problems started. Then had a TAH/BSO and never did HRT, so I am sick of the suggestion that it could be "endo". I think that is just a way out for some of these doctors who don't know, or just plain don't care about what is causing our pain this far out. I believe I have massive adhesions from these surgeries. CT, IVP scan shows nothing, so it's not a hernia or tumor or another cyst finding somewhere else to grow. I don't have any suggestions for you. Just wanted you to know that you are not alone, and you ARE NOT crazy!!!!
Unread 04-24-2005, 06:52 AM
I'm at the end of my rope

Good Morning:

THANK YOU.....Sometimes I wonder if I am going crazy from all this...I have not had one problem since my Hys 3 years ago, not one. Then I had intercourse (never had a problem in that area) and this all started. I still believe its an infection of some sort.

I did find out I don't need my HMO doctor to refer me to another Gyno, so I will make yet another appointment with someone new.

The other gyno just thought I was nuts for not taking that shot for "ENDO" something I know I don't have. He even got my path report from my HYST and it said "NO ENDO" and wanted me to go off my HRT for 6 months NO WAY, I love my patch never had a problem with that either....

I'm so sick of being sick I could scream....

I feel for you, I will pray for us both, maybe someone will find an answer for us both...I do see my GI doctor on Wed (he is a really nice man) and said he will do the scope up the butt, maybe that will show something..I just want the cramps/pain/flush feeling/hot feeling to be out of my life...

Many, many hugs to you
Unread 04-24-2005, 07:14 AM
hi again

Hi again Julie. I know I need to see a GI guy also, but we are in the middle of selling & buying a house, so, it will all just have to wait!!! I figure, since the CT scan showed nothing, and all the doctors I've seen just push me off to the next, I can wait. My GYN first suggested Lupron, without even doing a CT or ultrasound to see if anything was going on!!! He was sooooo very he** bent on his endo theory, that he never looked for a cyst!!!! Anyway, again not 'telling" you, but stongly suggesting this one. I researched Lupron, went to the pharmacy and had them print out all their info, actually called the manufacture of Lupron (who raved about it, but why wouldn't they?) and decided, that at least for me, that stuff scared me to death!! That is why I had a TAH/BSO because I just wanted the pain gone. Only ended up with more problems anyway, bigger ones in my opinion. It is rather odd that you never had any problems before this though. But I will tell you from experience, if that cyst is in the right place, the pain can be intense!!! My SIL had a large cyst pop up out of nowhere and ended up in the ER, thinking it had to be a kidney stone. Her gyn put her on a certain birth control pill, and in one month it was gone. I know for me, the pain was just too great, and it just kept getting bigger, so that's why I had the lap that started me on this long, winding road.
Unread 04-24-2005, 07:36 AM
I'm at the end of my rope


Yup that was the shot he wanted to give me Lupron, after I read about it (like you) I said no and without a lap how could he know if I have Endo WHICH I KNOW I DON'T....

My CT scan was normal and so was my ultersound, they saw nothing whatsoever...

Its funny I was ok when I woke up this morning, then after moving around the pain in the left side and in the groin/burning feeling in the pelvic area start and then the cramps and the flush/hot feeling....When they put me into the hospital my white count was very high and its still alittle high (I'm still in the zitromax 250mg a day) I still say its an infections that she/he can't find....They just shake there head when I walk in and that really UPSETS me to no end....

Like I said to her (the doctor) "I don't come here unless I have a problem" and in one year that I've been on this HMO this is the only time I've seen her, she asks like I'm in there everyday....Wait till its them someday and no-one listens...

I do hope you find some answers its hell feeling like crap day in and day out.....

I'm here with you if you need to vent, believe me I know how you feel....

Unread 04-24-2005, 01:34 PM
I'm at the end of my rope

I'm sorry that you're in so much pain. I'm also sorry that your doctor gave you the run around. Sometimes getting the run around or the brush off can be as bad as the pain inself. Seeking another opinion is a good idea. I've been to many docs since my hyst, if I had settled for some of their answers I wouldn't have found some of the good ones that I now see.

Good luck my friend. I hope you can find someone to help.

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