How to deal w/nerve pain? | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

How to deal w/nerve pain? How to deal w/nerve pain?

Thread Tools
  #1  
Unread 04-25-2005, 04:42 PM
How to deal w/nerve pain?

I know there are others out here who are dealing w/nerve pain & entrapment, just woundering how you cope & deal with the pain? Any one have nerve blocks? DId they help?

My PM doctor is going to be doing a nerve block, but not until May 4th and the pain has been flaring so I am having alot of problems trying to deal with the pain. I have hardley slept since I saw the PM doctor last week Tuesday as the exam has caused a lot of pain. Right know next week Wednesday is feeling like a really long time.

Thanks,
Kim
Sponsored Links
Advertisement
 
  #2  
Unread 04-25-2005, 05:01 PM
How to deal w/nerve pain?

I had what they thought was a neuroma (trapped nerve?) but turned out to be necrotic tissue.....they just went in and removed it but before they did that they put in some long lasting freezing (marcaine?) to see if that would stop the pain and it did and that's how they knew what it was.....unfortunately that's when we also found out I was developing an allergy to the freezings.....anyways it was very effective for about 5hrs....and that was just a shot so I would think a nerve block would work even better, hang in there! 's!!
  #3  
Unread 04-25-2005, 07:29 PM
How to deal w/nerve pain?

Hi Kim
That is a good question and I am looking for a answer too. Mine is off and on in my vaginal area. I can go for several days and not feel it, then all of a sudden a terrible pain shoots through me. My dr. believes scar tissue rubbing on nerves is causing it. I don't want anymore surgeries. I know more surgeries would just cause more nerve damage.
Where is your nerve damage? I believe I have nerve damage around my abdominal incision too. I had 4 c sections and the hyst through the same incision. I am still numb below it and sometimes myincision aches so bad. I would love to know if there is any treatment to help with the pain.
I had rectal testing done and they couldn't locate one of the nerves they were looking for. I believe it is trapped with something in my vagina. Anyway, she said if I do have nerve damage there is nothing they can do for it. What a cop out !!!

I hope you find answers.
Peggy
Sponsored Links
Advertisement
 
  #4  
Unread 04-25-2005, 08:05 PM
How to deal w/nerve pain?

Peggy,

My nerve damage is on the left side in my low groin area (the area where hernia's normally form), hip area, and low abdomon. The pain radiates down my hip & groin area to my knee. Going from the side by my hip down with constant pain in the groin. I have been told that there is more then one nerve involved she said either 2 or 3 differnt nerves. I too can go days with very minumal pain, mainly discomfort & then it hits.

The exam the PM doctor did last week Tuesday has left me pretty much in constant pain. I am at my witts end. I don't know how much tyenol one person can take as I swear I am eating it like candy & getting no relief. DH has told me no more tyenol.

The only treatment my PM doctor has offered me is nerve blocks for the pain & I am to scheduled to receive on until 5/4/05. I have to get the ok from my Wound specialist to make sure it is okay because she wants to use a steroid & steroids can slow down the healing process & my incision is still trying to heal.

I am under the impression from the PM doctor that the only treament offered is nerve blocks, and that the first one will not be permit pain relief but if it works they will do one that is permit.

I hope for sure that these blocks work for ever as she has stated.

Kim
  #5  
Unread 04-26-2005, 02:26 PM
How to deal w/nerve pain?

Kim, too much Tylenol isn't safe for your liver. Call your doctor and ask about liver function testing, especially if you use alcohol at all (they cross-react, Tylenol and alcohol).

I know what it's like to live with nerve pain, and I've found a couple of things that help: first of all, I take a very low dose of Welbutrin, which buys me a bit of relief (seems to dial down the pain level a notch); and I take a sublingual B-vitamin complex (I believe it's folic acid, B6 and B12). B12 especially is supposed to help with nerve issues.

Acupuncture is also amazingly effective. My brother's DGF is an acupuncturist, and she works with many chronic nerve pain patients. She herself has reflexive sympathetic dystrophy and lives with more or less chronic nerve pain and truly understands.

But most importantly, get that liver checked out. Going above the recommended dose of Tylenol (especially when it doesn't work -- can you take NSAIDs like naproxen instead?) is dangerous for your poor liver.



Audrey
  #6  
Unread 04-26-2005, 04:28 PM
How to deal w/nerve pain?

Audrey,

I wish I could take NSAIDs but because of the barret's esophugus I can't. No Ibprofine or anti inflamitories. I don't consume an alchool at all because it upsets my tummy to much & makes my heart burn to bad.

I know the tyenol is not good for me, but yet that's what everyone has been telling me to take everytime I complain or ask what I can take for the pain, even the pain managment doctor told me to take tyenol because she can't perscribe medication for pain.

I am going to have to check into the B vitamins anything at this point is worth a shot. I dont know if my insurance would cover acupuncture? If I may ask is it expensive?

My pm doctor wants to do a tempory never block next week... I am so afraid of it not working or lasting very long & being back in pain. I have not had a good night sleep in a week.

Kim
  #7  
Unread 04-26-2005, 04:43 PM
How to deal w/nerve pain?

Kim,
There are meds for nerve pain also, I have read of Neurontin being one of them.

I've been going to acupuncture for about 1-1/2 years now. It's helped me alot. I've still got a LONG way to go, doc says I'm her most difficult case, but it has helped lots with the nerve pain. My doc also looks at the big picture, not just one area of pain, she treats the whole me.

The insurance I had previous to the one I have now did cover the acupuncture treatments, up to $1200 a year. The one I have now doesn't cover the treatments. At this point it's all I have, so I do continue to go, I just can't go weekly like I was doing. I shudder to think where I would be right now if it weren't for my wonderful acu doc.

  #8  
Unread 04-27-2005, 05:02 AM
How to deal w/nerve pain?

Hi Kim;

I suffer with neuropathy and the pain is unbearable most of the time. Especially when I try to go to sleep. So, I don't get a lot of sleep.

I take neurontin which ((Kim)) mentioned and I also take elavil with it. The two medicines together are supposed to give relief.

I can say even though I am in a lot of pain most of the time, I also know that when I "forget" my medicines I am in a lot more pain all of the time!

So, they do help in a weird way.

Have you seen a neurologist? One might have a better idea of what is happening to you and why.

One of the many reason's I like to help out here is because taking my mind off of MY pain for a while is a welcome relief.

Best wishes to you! I pray you get some relief soon!




Sybie
  #9  
Unread 04-27-2005, 10:59 AM
How to deal w/nerve pain?

Hello: Sorry to hear of your nerve pain but I can also relate to all of you. I have been suffering from nerve pain and adhesions since first surgery 3yrs. ago. I have been seeing pain specialist(neurologist) for awhile now and have been diagnosed with alot of nerve damage, both internal and external. I have had numerous cortisone/anesthetic injections(nofreezing) which did not help. Also had 2 rounds of Botox injections with no results and have now been advised by pm dr he thinks the ilioinguinal and iliohypogastric nerves are entrapped so met with anesthisiologist who is going to perform a series of nerve blocks, once a week for 6 weeks?! I have severe pain in the right side from the incision to the groin and also in hip, inner thigh and pubic bone all right sided. The external nerve damage has resulted in only wearing clothing with elastic waistbands. I was prescribed a concoction of amytriptiline/morphine/gerpabentin and ketamine in a cream form. I have been using it for 2 weeks and slowly I think it may be helping a bit with the external pain. I have also been referred to a general surgeon and a new ob/gyn both affiliated with the pm dr., the only problem is all the appt.s are at a hospital 4 hrs.! At this point i'm willing to try anything. I just wish they could permanently untrap or get rid of these painful nerves! <oops, no legal discussions please>. Well I don't think I have helped with this email but I really needed to vent to others who have had similar experiences. Maybe someone may suggest the BOTOX to their dr. and have better luck. Just an idea. I am nervous about the nerve blocks too as not sure what to expect. Good luck to all of you and thanks for listening.
  #10  
Unread 05-02-2005, 05:37 PM
How to deal w/nerve pain?

i'm so sorry that you are having so much discomfort, Kim

i'm afraid that i don't have any advice; just wanted you to know that you are in my thoughts & prayers.

hope that you are feeling better soon.

s

bonnie
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
31 Replies, Last Reply 03-19-2009, Started By honor435
5 Replies, Last Reply 03-17-2009, Started By january2700
4 Replies, Last Reply 02-05-2008, Started By LoriCx3
4 Replies, Last Reply 01-25-2007, Started By JPeacock02
4 Replies, Last Reply 12-01-2005, Started By Sweety Tweety
2 Replies, Last Reply 07-28-2004, Started By yummieforthetum
3 Replies, Last Reply 06-25-2004, Started By LINDAMAR
3 Replies, Last Reply 04-28-2004, Started By BillsSweetie68
4 Replies, Last Reply 04-15-2004, Started By croxie
2 Replies, Last Reply 11-25-2003, Started By tahil
3 Replies, Hysterectomy Recovery (post hysterectomy)
23 Replies, Hysteritaville General Discussions
5 Replies, Hysterectomy Recovery (post hysterectomy)
8 Replies, Hysterectomy Options and Alternatives
12 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
3 Replies, Preparing for Hysterectomy (pre hysterectomy)
4 Replies, Hysterectomy Options and Alternatives
7 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, Hysterectomy Options and Alternatives



Advertisement

Hysterectomy News

September 26,2020

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  



Advertisement


Advertisement