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strange, intense skin sensations strange, intense skin sensations

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Unread 04-26-2005, 06:18 PM
strange, intense skin sensations

Anybody ever been diagnosed with peripheral neuropathy? About 2 weeks ago, out of the blue, I started experiencing intense icy-hot sensations in my hands/forearms, feet and shoulders with lower back pain........very debilitating....worse at night...hits with intensity after eating, too, with stomach and chest pain, rapid heart rate. Very weird. Symptoms make no sense.

Have lost 20 pounds in 2 weeks. Docs still looking for underlying cause. Labwork, EKG, ABD CT and UGI all normal.....EGD scheduled for next Monday. Many answers. unable to function (drive, work, etc.). Difficult to make it through each day. Have never had any health problems, until my hyst.

I have no idea if it could be related to any nerve disturbances as a result of hyst........OB/GYN doesn't think so (Did ascertain that my rectocele is "small and not indicative for surgery".).

Anybody have/heard of something similar?...........Deb
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Unread 04-26-2005, 06:37 PM
strange, intense skin sensations

Hi Deb
I am sorry to see you are experiencing these problems. I have never heard of it except with it being associated with diabetes. I hope they find out what is causing it and you get relief soon.
I know what you mean by being healthy until having your hyst. My 1 year anniversary will be the 4th and I have had all kinds of problems this last year. I never would have dreamed so much could happen in a year.
Good luck and I hope you feel better soon.
Unread 04-26-2005, 08:43 PM
strange, intense skin sensations

Oh boy I am so glad I am not alone. I have the same thing in my legs. Itold the doctor. h said I was getting old. Then he saiad it was because I have diabetes. Diabetes doctor never heard of such a thing. I feels lilke burning sensation. I am glad it has a real name. Thanks. You helped me alot. You are not alone. I am not that old. I turn 40 next month. However, this pains started at 36 when I woke up from hyst surgery. Not yet gone away.
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Unread 04-27-2005, 01:57 PM
strange, intense skin sensations

I would have them check you for diabetes...peripheral neuropathy is a classic complication for diabetes. I would definately have them do some blood work and I definately hope you feel better soon and get to the bottom of this.
Unread 05-04-2005, 10:57 PM
strange, intense skin sensations

Hi (((Deb))) I'm so sorry you are dealing with peripheral neuropathy. It can have many different causes:
Peripheral neuropathy may be either inherited or acquired. Causes of acquired peripheral neuropathy include physical injury (trauma) to a nerve, tumors, toxins, autoimmune responses, nutritional deficiencies, alcoholism, and vascular and metabolic disorders. Acquired peripheral neuropathies are caused by systemic disease, trauma from external agents, or infections or autoimmune disorders affecting nerve tissue. Inherited forms of peripheral neuropathy are caused by inborn mistakes in the genetic code or by new genetic mutations.

That's a great website which has links to other organizations for support on this issue, and even a list of clinical trials that are seeking participants.

One thing that struck me when I read that web page is that it can be caused by autoimmune disorders. In some women, a hysterectomy (especially if the ovaries are removed) can trigger or worsen autoimmune disorders... fibromyalgia, MS, Sjogren's syndrome and others can all be contributed to by the hormone changes that result from the surgery (yes, even when the ovaries are kept or the woman is on HRT).

With all the tests your DR is doing, have they ordered an FSH test or hormone level tests? I would be curious to know if your hormone levels have changed as a result of the surgery. Are you having any trouble with vaginal dryness (might feel like you're getting a yeast infection)? That can be an early indicator.

Just another avenue to explore... I hope you get some answers soon.

Unread 05-08-2005, 06:36 PM
strange, intense skin sensations

Deb - I'm so sorry this is happening for you. You're definitely one of the special sisters to me - you helped me so many times during my recovery. If there was only any way I could offer anything in return, you know I would. Just wanted to let you know that you've been in my thoughts & prayers.

Can you let us know how you're doing?

Unread 05-08-2005, 07:25 PM
strange, intense skin sensations

Thanks for all your support.

I have been through every kind of doctor and most tests known to man. Whatever is occurring within my nervous system is not showing in any testing. Docs have me on several meds to interfere with pain receptors to the brain...........they have helped me sleep through the night and eat.

Otherwise, I am in pain most of each day: Awakening in the morning is met with a burning sensation in my forearms and upper back, and my face. Upon getting up and about (I sleep as long as I seems to be my only escape.), the pain subsides to slight numbness of both feet. Then, the lower back pain starts.

Approximately an hour after eating, the GI distress starts.....feel thumping sensations (increased circulation?) in my abdomen, which sets off all kinds of unpleasant skin sensations.........rectal,vaginal, you name it.

My symptoms make no sense at all, I know......except that I've experienced them every day for the last 3 weeks. I feel doomed in not having the control of a clear diagnosis. I now know I must learn to work with this pain.................must find a way to return to work. Other people function with chronic pain...I must buck up and learn how.

Thanks for letting me vent. I feel so self-absorbed lately that even I tire of thinking about the whole situation!............Deb
Unread 05-09-2005, 05:44 AM
strange, intense skin sensations

Originally posted by Fibroid Woman
. I now know I must learn to work with this pain.................must find a way to return to work. Other people function with chronic pain...I must buck up and learn how.

Thanks for letting me vent. I feel so self-absorbed lately that even I tire of thinking about the whole situation!............Deb
Now Deb, you know better than most that you can not compare your situation to others and how they handle their chronic pain. I know of others here that are functioning with their chronic pain, I am not one of them and I accept that I can't. Don't beat yourself up because you can't and some can. And this is the time to be almost have to in order to cope sometimes.
I will continue to pray for you.

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